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Alzheimer`s Disease/Parkinson/ lewy body dementia

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Expert: - 2/8/2011


Question
Good evening Mary, this is the second time within a month and the information I received was so helpful.
My spouse is having a very difficult time with pain on both of his sides right at the belt going into the hips so bad this past week that he is having a hard time walking or even moving to get into or out of bed I don't know what to do, might you have any suggestions..
He is 71, recently been diagnosed with lbd..did have physic for over a year but stopped just before Christmas it wasn't helping, is this part of the Parkinson disease?

Joy

Thank you so much

Answer
People with Parkinson's do sometimes get pain. Here is a good article
http://www.pdf.org/en/winter04_05_Pain_in_Parkinsons_Disease

The best advice is to see a doctor about this. As many as half of all Parkinson's patients experience severe and chronic (greater than 6 months) pain. People with PD, however, don’t usually tell their doctors about this pain, so all too often it goes untreated - your husband should not have to suffer like this. So, the first stop is the doctor to get it evaluated and treated.

Hang in there - I think the doctor should at least be able to suggest ways to help his symptoms to make him more comfortable.

Mary

Alzheimer`s Disease

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Mary Gordon

Expertise

Several years direct experience as caregiver for family member who died of end stage AD. Did lots of research and dealt with a lot of health care professionals and caregivers over the 7 years from diagnosis to the end. Used various care options from community based resources to increasing levels of institutional. Mother of three, two born during our loved one's decline, so I know what it is to be the ham in the sandwich, taking care of the older generation and the younger at the same time and trying to balance everyone`s needs. Ask me, I`ve probably been there, done that. We made lost of mistakes and learned everything the hard way - but you don`t have to! If I can`t answer your question, I`ll steer you to a place or person who can.

Experience

Currently a program manager for a large utility company. My Alzheimers experience comes from having the illness in our family. Out of necessity, we did a lot of research in order to understand the disease, plan for what might come next, and make the right decisions to help and support our loved one. Please note, I am a Canadian living in Toronto, and therefore am not the best person to ask about US regulations and insurance rules!

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