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Question
hello, kevin-

over the course of the past 2 months i was prescribed
5 days of prednazone twice and 2 doses of dexamethasone
once for asthma related symtoms- while on these medications
i felt absolutely fantastic- after they wore off i once again
felt like absolute dookie- these medications not only helped
my asthma related inflammation but other body aches and pains
as well- i was told by the doctors who prescribed them to me that
that they would not prescribe them to me for long term use but
as a rescue- neither gave any in depth explanation as to why,
just more or less said if taken long term that steroids can screw
up more than they help- i'm wondering if in your life experiences
or knowledge of others experiences you found such claims about
steroids to be true or mostly bologna- if true, have you or others
discovered healthier alternatives to dealing with asthma related
inflammation?

most sincerely, teresa


Answer
Hi there Teresa,

I can honestly say, if there is one thing I've had experience with, it's prednisone - I'm currently on 20mg/daily until further notice because it's simply the only thing that keeps me relatively symptom-free under general conditions. Over the years, I've been on some pretty whooping doses of it, and usually average around 6-8 courses over two weeks a year.

Prednisone, because it's a steroid, can play absolute havoc with your system. It's a pure life-saver at times when nothing else is working, but there can be, and will be, a price to pay for long-term use. For me, personally, since I've been taken large doses fairly frequently for over 25 years now, I have osteoporosis, some liver damage, eye issues, am sterile, gynecomastia, etc etc - and most of that is likely influenced strongly by the steroid use - then there are the more 'temporary' issues like crazy appetite and major water-retention, etc that one deals with.

Would I go back and change it - nope, as I'm alive because of it - pure and simple.

As for healthier alternatives, my first thought would be to be on an inhaled steroid, such as Pulmicort or a combo-steroid drug like Symbicort or Flovent. While these are still steroids, their side-effects and long-term effects are not nearly as bad as oral corticosteroids like prednisone. Many people find a 'sweet-spot' dosing of these drugs that keep them quite healthy.

Other non-steroid possibilities could include long-acting broncodilators such a Serevent (SALMETEROL) for asthma-control.

I hope this helps out some - let me know if you have any other questions, or just want to share your experiences!!

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Kevin Smith

Expertise

I can answer questions on general living with severe asthma including home modifications, diet, general medications, symptoms, psychology, indications, and social interactions. While there are expert present who are involved with the care of asthmatics from a professional point-of-view ( respiratory techs, for instance ) I would prefer to answer questions from asthmatics, their families and friends who wish to hear from someone with the disease in a severe form in order to gain 'general' advice.

Experience

Severe asthmatic for 30 years. I have been ventilated six times for asthma, and have been active in areas of research and counseling of asthmatic, COPD, and CF patients. I am also both a registered pharmacy tech who specialized in respiratory medications, and a professional counselor with a BA-psych degree who has seen many respiratory clients professionally.

Education/Credentials
I do not have any educational credentials related directly to asthma. However, I have my degree in psychology which I have used in conjunction with my disease to counsel other sufferers.

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