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Autism/new dx for Asperger's

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Question
Hi Catherine, I have a 9yr old son dx with atypical Asperger's. I have come across a new diagnosis called Pathological Demand Avoidance Syndrome which is often first dx as atypical Asperger's. It is supposedly in the autism spectrum which is why it's so close to PDD and Asperger's. Have you ever heard of this? I can only find info coming from the U.K. on this and wondered if it is diagnosed here in the U.S.? I'd appreciate any help! Sue

Answer
Hi Sue,

I have not heard of it. I would like some time to research it.

I will be away from my computer for the next 4 days. I will get back to you in about a week. If you need help sooner, there is another expert who answers autism questions at allexperts.com. She is a professional in the area and may have more information.

Her name is Sharon Mitchell.

Best wishes,
Catherine  

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Catherine Ridenour

Expertise

I can answer your questions about parenting your High Functioning Autisic or Asperger`s Syndrome child. In particular, questions about family life, discipline, siblings, finding resources, and working with (sometimes opposing) the educational system are welcome.

Experience

I am the parent of an Asperger's Syndrome child who is now 22 years old. She went undiagnosed for 14 years of her life, so I have done extensive reading and Internet research into the possible cause of her difficulties. Even a short 8 years ago, A.S. was practically unheard of by the public educational system.

We fumbled our way through her childhood and early adolescence without any effective outside support. In some ways, that may have been a blessing as we were focused on her abilities rather than a label for her disability. However, I can think of many times when knowing WHY would have been comforting.

Had we known very early on, some social skills interventions might have made her life in school easier. At this point, I like her for who she is so I do not regret how things have turned out. More importantly, she likes herself.

Education/Credentials
I have a Bachelor of Science in Education.

I have worked to educate myself about Autism in general and HFA/AS in particular.

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