I can answer questions related to Familial Exudative Vitreo-Retinopathy (FEVR), as well as more general questions concerning blindness in children.
I have five family members with Familial Exudative Vitreo-Retinopathy (FEVR), my husband and four of my six children. My husband and my two youngest children are blind, and my two girls are losing vision. We deal closely with Dr. Michael Trese and his associates in Royal Oak, MI, making trips to see him about once a month for somebody to have surgery or an angiogram or some other exam or procedure. I am familiar with much of the research on FEVR, and can research answers to questions I don't know.
I am a member of both the NFB and AFB parents' organizations.
I have some time in college.