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Brain Tumors/meningioma grade 3

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Question
Hi I'm 21 and have just recently been diagnosed with a grade 3 meaning, i had brain surgery in august and the whole tumor was successfully removed, I've also just finished 6 weeks of radiotherapy. I have my first scan in January and i am really nervous, there isn't much information online because this is extremely rare, i feel fine but the doctors seem really negative. I feel sick when i read that this is something that is more than likely to reoccur and in the majority of the cases be terminal, i can't find any survival stories or positivity online and feel a bit hopeless. How do i stay positive?

Answer
MY first suggesting is seek out a support group, I have found much hope and comfort and positivity, in the safety of a group of people who have been there and done it!  I think the doctors have to be a certain way and not offer too much hope I felt the same way about my doctor at the time he basically told me I was going to die, but I chose to hear the brighter side, I heard that I was getting to go home from the hospital, I also suggest that you stop reading about cancer, and  choose to LIVE, seek out positive people and fun things, get mad and fight your disease.  I hope I have been helpful, I wish you many years.



         maryann

Brain Tumors

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maryann carrigan

Expertise

I can give hope where there is none, I am a 14 year malignant grade 3 astrosytoma survivor. First diagnosed malignant and inoperable...I am sick and tired of reading there is no hope for a grade 3 or 4 brain tumor! I am literally LIVING PROOF there is HOPE!!!!

Experience

My experience is that I went through surgery and chemotherapy and radiation. I am still here and I have a few things to say. I also had a beautiful baby girl after all was said and done. She is now a full of life 10 year old who really keeps me and her dad going!!

Organizations
none at this time, just a mom and house wife, doing my job! Anyone I see with a visible scar that says to me they too have been in this situation I talk to to make sure they are doing okay and are living life to their full potential. Don't ever let anyone get you down!!! We control us and our feelings!

Education/Credentials
My educational credentials are as follows: I have been there and walked the walked, I lost hair (that wasn't supposed to grow back, but it did), I was sick with the chemotherapy, and the best thing of all was I had another baby, she is my shinning glory my gift from God and i think these are very good credentials....

Past/Present Clients
Anyone I see with a C cut on their head, or other cancer victims, who need to hear my story to know that anything is possible!!!!!!!!!!!!!!! YOU are all my clients!!!

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