Brain Tumors/Lipoma Brain Tumor
k wrote at 2006-09-29 01:17:26
Hi, I do not agree with this answer. You can have a lipoma inside your brain. I have one and it is classified as a benign tumor. However, unless it grows, nobody seems to care about it. It is 2 cm by 4 cm in the center on my corpus callosum (spelling) - it has totally engulfed the surrounding tissues and is hard to operate on. I am have extreme lethargy and think this might be because of the pressure it is has on the surrounding tissues - please educate yourself before you talk about these rare tumors...nobody knows anything about them because they are so rare that nobody is willing to go out on a limb per say to treat it because they worry about lawsuits instead of my medical health - and to the lady with the daughter,good luck and find a doctor that will help you and not tell you what they have told me all these years, "it is nothing live with it" wrong answer!
Amelia wrote at 2006-09-30 04:17:55
Hi. I totally disagree with this doctor's answer. I was recently diagnosed with an intracerebral lipoma. I went to the emergency room complaining of lethargy, dizziness and headaches that ran from just over my right eye to the back of my neck. I was told to take aspirin for the headaches and scheduled for an MRI. When I saw a neurologist she commented that it was a "cute little thing". I didn't think that was funny. I feel that I'm not being given the proper attention because it is small, benign, and rare (being intracranial) so the problem isn't understood. In the meantime I worry that if the experts don't understand it what am I to do? To the mother of the 14 year old with the lipoma I say continue your research, seek out other doctors, insist on more thorough tests and continue to believe your daughter's symtoms because they are very real. Take care.
Jessica wrote at 2007-12-11 15:38:51
I have had a lipoma on my brain stem for over 20 years and actually have had brain surgery (done by Fred Epstein) to remove some of the tumor. It has been responsible for headaches, nausea, etc..
A lipoma is a brain tumor.
Allisa wrote at 2008-02-04 04:00:44
I was diagnosed with a Brain Tumor called a Lipoma, yes I have 2-MRI's and a CT to prove it. It is located by my brain stem. I am having headaches, blurred vision, nausea, vomiting, hearing loss and even simple partial seizures. I have even found other cases such as mine but I am told it is rare to have it in the brain and rarer to have it at this location.
I do not understand why you are telling this person that it is not a B. Tumor, all it takes is some research on the net or in MD Journals to find it is possible. I am a Nurse and I located the info quite easily but any non medical person can do the same research.
MCRCMATH wrote at 2008-06-27 01:52:00
I have an MRI proven lipoma of the brain. It is not below the scalp. This physician is incorrect. YOU CAN have a lipoma of the brain, even deep in the brain. In fact, my neurologist stated that rarely calcifications can be found in brain lipomas, and if that were the case mine would not be operable because it is deep within the brain. I also suffer from migraine headaches, which my neurologist feels could be related, but he is unsure.
Surge wrote at 2008-09-05 10:11:58
Back in October of 2007 i had an MRI which revealed a lipoma of the corpus callosum. My family and I were horrified by the news. However I have shown and discussed the MRI to a neurosurgeon and two other neurologists. All three said the exact same thing. It is a rare congenital anomaly that is more frequently found during autopsy. They are found more commonly nowadays due to the increase in medical imaging usage. Therefore they are found by coincidence like mine. All have also said that they are not true neoplasms rather they are congenital malformations.
M wrote at 2008-12-16 04:01:20
well I just had my MRI and CAT scans..................diagnosis?......1.8 cm Lipoma in the 4th ventricle. Benign Tumor in the brain.
JMOinNC wrote at 2008-12-31 04:10:43
With all due respect, I have a lipoma brain tumor. It is on my brain stem and is wrapped around the 7th and 8th nerves at the CP angle. It caused severe vertigo and hearing loss. My neurosurgeon in Washington, DC stated that this is not the first lipoma he has operated on.
Me wrote at 2009-03-18 12:13:37
I beg to differ. A lipoma CAN be IN the brain. I have one near the "tentorium cerebelli" of my brain. It's no big deal - they are just small fatty tumors and they grow very slowly.It's a bit rare to get one in the brain but it is possible.
Brainiac86 wrote at 2009-04-21 07:14:20
I have just been diagnosed as having a Lipoma... IN MY BRAIN! So to correct u.. it is possible to have one & they are indeed considered a tumor of fatty masses! Unbelievable!
Kristy wrote at 2010-02-28 13:15:25
I also have a BRAIN Lipoma, (fatty mass benign brain tumor), on the top of my brain stem. It was found by accident/coincidence w/ MRI & CT scans in 2004 because I was having a lot of upper back/neck pain.
I was sent to Westchester,NY to a Neuroncologist immediately.
She told me it could have been there for years or I may have been born with it & because it is not known for growth she would recommend leaving it alone for now because the surgery risks of possible deficits & difficult recovery involved are greater than the benefit. She also said I may never have any problem with it, but we will cross that bridge when we get there-so far I don't have any symptoms that I can definitely say are directly caused by the Lipoma.
I would like to know more from the other people on here about the symptoms they experience just for the knowledge of what to watch for.
sanadana wrote at 2010-04-02 00:51:59
Is this a real doctor??? I mean come on, what kind of advise is this. I have a lipoma on my brainstem and had part of it removed by surgery in Dec.09. A lipoma IS A brain tumor, a tumor is an adnormal mass. It was discovered becouse of vision, balance and speaking problems. I acted like I was drunk! And to this day I still have headaches! It was explained to me that this condition is rear and my doctors were unsure of the outcome. Main rule of thumb, if you feel like there is something medical wrong, listen to yourself. I've learned that doctor are wonderful brillant people they dont know everything.
Lori Baldwin wrote at 2010-05-25 07:22:39
i also have lipoma in my brain on the midline and yes i have CT scans and MRI and about three doctors that will attest to this. I also found out along with this that i also have a condition call psuedo tumor ceribi witch causes brain fluid levels to be to high and they can't do the lumbar punctar to relieve pressure because of the lipoma so yes it is possible to have this in your brain.
Danielle wrote at 2010-11-04 02:35:33
I also have a tectal lipoma. I saw a Neurosurgeon about it who had me in and out of his office in under 10min (literally) and he told me that I was probably born with it and don't worry about it. I am now seeing a Neurologist who is actually tending to my headaches....YAY...finally!! :)
I am wondering.....
are they able to biopsy this? Can it be removed? He told me he can't be sure 100% though if I have a lipoma or glioma because he doesn't have more than one brain MRI to compare to.
Has anyone else encountered this?
I am just happy I found this, because the first two doctors I dealt with told me a tectal lipoma is very rare in adults.
Mari wrote at 2010-11-12 18:42:56
I was diagnosed with a moderate size lipoma that is capping my splenium of the corpus callosum. was diagnosed in 2004 with this in NJ, saw 2 neurologists and one neurosurgeon. First one actually opened a TEXT book because he'd never seen one like this before. I was dismissed with a waive of the hand that it wasn't a tumor. Now let me reverse time: I had seizures as a child,which thankfully went away in time then began to suffer from migraines in 1998 and since then i still suffer from them only now i have to add dizzy spells. i went for a follow up and have another MRI done and took my original film..my current neurologist made a joke of it until she saw the film, then she blandly looked at me with an "OH DARN" face and said, i've never seen one like this before, maybe i should schedule you with another MRI.DUHHHH.What is wrong with this picture..i've never gone back to follow up. What for, i refuse to receive the same dumb ignorant answer that i have been given 4 times now. Do i worry? of course, but if it's life threatening i guess i'll know when it happens...and all thanks to these idiots we call "specialists" Unreal...
Donnalyn wrote at 2010-11-15 21:42:17
My daughter has been experiencing headaches for the past 5 months. An MRI revealed that she has a small tectal lipoma. We keep seeing specialists, but to no avail. Let me add that she just turned 10. I'm so very worried. How could I not be. No one can guarantee that it won't grow or become cancerous. And all the specialists say it is an incidental finding and is NOT causing her headaches. I find this hard to believe. Any info anyone has is greatly appreciated. I, too, live in NJ, like Mari ^ above. Any doctor reccommendations would be appreciated as well. We're also willing to travel to NY or PA. Thank you.
C. wrote at 2011-01-05 17:35:37
Regarding the brain lipomas, let me add this. I had a sister born many years ago with an enlarged head,hydrocephalus, and a large benign brain tumor that her Neurologists at a supposedly very advanced medical institute to admit they really did not know what they were looking at. They were stumped. They told my parents they had not come across this type of growth before. They called it an "unclassified glioma", and that was the best they could do. My sister died of this growth at six months of age. Remember, it was benign. I am not sure exactly why it killed her. Did it simply take over her brain functions?
I have gone over my sister's case again and again through the years since. As it happened, another sibling had a childhood lipoma, and then my own young child began growing internal lipomas at a young age. We may have some type of hereditary genetic syndrome that isn't obvious. I ask myself now whether that large, congenital brain growth that killed my sister at six months of age was actually a brain lipoma, as opposed to the similar "unclassified glioma". Odds are that it was. Take note.....it was not harmless. Don't let the Neurologists fob you off with that statement.
Tracey wrote at 2011-04-06 03:58:02
I have also just been diagnosed with a lipoma in my brain. They do exist and they do cause symptoms. I suffer debilitating headaches, dizziness, neck pain and just general blurry head and eyes. What is my neurologist going to do about it? I see him in a few weeks and I just hope that he doesn't have his head in the sand about lipomas as many other specialists seem to. There is too many of us suffering similar symptoms who have been told we have lipoma for it not to be taken seriously. It may not be fatal or cancerous but to us it is a serious, life changing problem. Good luck to you all.
mari wrote at 2011-04-13 19:31:24
To Tracy: How did your visit go? Did they tell you anything that makes any sense for once? it's just disturbing news hearing these specialist blow patients off with a wave of the hand without further studies. It cannot be just a coincidence that we are all suffering with the same symptoms. mine, of course, have progressed a little but i just gave up on following up. I know i have to though. can't ignore it much longer.
worried mom wrote at 2011-07-26 01:03:18
i have a 5 year old daughter with a large lipoma in the corpus callous 4x6 cm it is considered large. she has speech problem and forget things. she has trouble answering question, and struggles to find the correct worlds. she is developmentally delayed and flinches and has rapid eye movement with simple things like washing her face.i use to think some of these issues were do to prior abuse from her maternal mother but quickly realized there was something more. i have found no help for this child and no seems to be worried except for us. lately she gets stuck when trying to speak.... how do they know its not growing if no one is following up. the report also said something about a brain lesion and a pineal cyst but there not worried about that either.they removed a lipoma from the intranasal in aug and thats it
sharon wrote at 2012-07-04 16:12:02
In 1996 I fell and hit my head, had a concussion, got a CAT scan and they found a growth in the center of my brain. I was sent for an MRI. The results were a lipoma(doughnut shaped) wrapped in and around my corpus callusom. I was sent to a neuro surgeon(couldn't get an appt for 8 weeks)When we sat down in his office he said "do you want the good news or the bad news first?" Bad, it is in operable, good, should be slow growing enough that it won't kill you. it is also sitting on the third ventricule. When we asked how we would know that it had gotten big enough to start doing damage, he said"oh, you will see a personality change and other symptoms, but there is nothing that can be done. I do have vision problems on and off and believe my memory is shot. I forget things constantly. I was also told that it was something I was probably born with and is some kind of birth defect. since there is nothing I can do about it I try to put it in a box and live my life. I have had 2 more MRIs since 96 and there has only been microscopic growth. I also have had many other small lipomas removed from arms, leg, back and stomach that were causing pain. I think in time we will know much more about these brain tumors, so hang in there.
valetina rutherford wrote at 2013-07-04 16:54:48
I was DX incidentally after surgery for bilateral brain aneurysm. I am asymptomatic but all info I have acquired thru the internet says mine in the corpus callosum is a congenital anomoloy. And my take is if you are with out symptoms and older it won't kill you.!
Nhleiks wrote at 2013-07-10 12:10:58
I was recently dignosed with lipoma and i am scared as i read all this stories and the explanations from the neurosergons, it is true it seems like our specialist are not clued up about this and that make me even more scared cause we having continuous headache for how long.
true hope wrote at 2013-09-05 01:24:11
I also had a lipomia removed and unfortunately it has grown back even bigger. It was on my 7th and 8th cranial nerve. So lipomia’s are in the brain and you can get help. Just keep looking for the right doctor. Leonette at Loyola hospital was my original surgeon and he will be mine again if needed.
Kim wrote at 2014-07-29 13:46:27
I have had a lipoma (brain tumor) since birth! and the only way it was found was a cat scan. i went into the er for a horrible horrible migraine. There isn't anything they can do bc of the area it's located on top of the brain stem. i've suffered with migraines for several years and now i have been to several drs and also have fibromyalgia. And i found out the 2 are related. when i was younger they thought i needed glasses or i was just having "growing pains" everywhere. when it wasn't that at all it was the fibro and the headaches were caused by the position of the tumor. NOW i have epilepsy bc i broke my nose last year. and it moved the tumor slightly and the synapses don't connect properly.
melisa wrote at 2015-08-06 18:08:55
In the LEFT CP angle there is a 1.6 x 0.7 CM lipoma.
This may be insignificant but could possibly cause mass effect
upon the LEFT vestibular nerve.
Ashley wrote at 2015-12-31 14:42:11