Expert: Claes-Gustaf Nordquist, M.D. - 9/27/2005

Question
I had breast cancer surgery in Oct '04, stage 2 cancer 2.5 cm tumor, cells had entered sentinel node only. Surgeon removed 22 lymph nodes. I received 3 monoths chemo & 16 sessions radiation. My primary condition is distal bilateral sensory peripheral neuropathy [insensate feet], the long term results of a work related injury suffered 22 years ago.
I was told I would have [and did have] severe reactions to chemotherapy, including nausea, and was too ill to leave my homy 16 /21 day cycle due. I got 13 gum line cavities, a spastic colon, supersensitive tongue [permanent] and haven't finished experiencing my one-year of post-chemo side effects, so there may be more.
Radiation was fine but chemo oncologist sees changes in breast skin he does not like [spoke of skin cancer potentiality].
Could only take Arimidex for 3 monthsn due to severity of side effects. Apart from most common side effects [joint pain, anxiety, hair loss, etc.]I also suffered dizziness each time I stood up, which made made it impossible for me to maintain my balance or walk without assistance [use cane].
Unless I intend to use a wheelchair, and I don't, I would have to give up quality of life for a longer life. My family is not long lived. Two members of my immediate family died of cancer and I would prefer to be in control of a shorter life than simply live long through drugs.
 My Oncologist is upset with me for refusing to continue with Arimidex. I think I am taking a calculated risk, considering I also have PN, I am in chronic pain, which I have learned to live with and have taken steps to control through meditation and community involvement. I don't want to take another medication that which may well contra-indicate what I am already taking and feel that I would sooner be in control of a shortened life than go through the horror of a life made more difficult by the side effects I suffered when I took Arimidex. Your advice would be much appreciated.


Answer
The decision is yours & yours alone!It is your life, your health & your body as well as your future, that is why. Your dr. can ONLY advice. I may agree with him/her in principle that the drug would benefit you with regards to your cancer. BUT it is you who experience its side effects! If you find them unbearable you do and that is it! Good luck!