Chronic Fatigue Syndrome/CFIDS

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Question
hello, i was just wondering around sites trying to find more information about
CFIDS.  Just last night i was looking up things with different symptoms of
mine, and i had run across a website of CFIDS. and i was shocked in what i
had just read.. i called my step father because i am away at school, and the
first thing he said was wow you definatley hit the nail on that one.  i couldnt
believe it, everything i have been going threw latley, there was actually a
diagnosis, and i wasnt just going crazy and making up things like everyone
was saying. its just something you know i guess, you just have a feeling
something is wrong no matter what people will tell you. the only thing i am
not sure about is, what kind of doctor do i go to? because i had read some
things that some doctors won't take you seriously.  i have a feeling that i
have this, actually i know deep down that i do.  its such a relief to actually
find something that fits to everything... and i would like to be taken seriously
when i go to the doctor.  Do you have any advice on what kind of doctor i
should see?  or any advice about the illness, and what did they do for your
recovery if you dont mind me asking.  im really curious about this disease,
and it seems to be unknown when i try searching for answers.  
Thank you for your time in reading this.. hope you can help.
Amanda

Answer
Any Internal Medicine physician or General Practioner will be able to run an Epstien Barr blood test.  If the results are positive you have CFIDS.  Below are some of the natural remedies that have helped me.

Vitamins and Minerals Maximum Daily Dose

Malic acid/Magnesium hydroxide 1,800-6,000 mg (take in 6 small doses)
Beta carotene (pro vitamin A) 10,000 I.U.
Vitamin B complex
B1 (thiamine) 50 mg
B2 (riboflavin) 75 mg
B3 (niacin amide) 200 mg
B5 (pantothenic acid) 200 mg
B6 (pyridoxine) 75 mg
B12 (cyanocobalamin) 100 mcg
Folic acid 400 mcg
Biotin 400 mcg
Choline 700 mg
Inositol 500 mg
PABA (para-aminobenzoic acid) 50 mg
Vitamin C 2000 mg
Vitamin D 200 I.U.
Vitamin E 400 I.U.
Calcium aspartate 1200 mg
Magnesium aspartate 600 mg
Potassium aspartate 200 mg
Iron 18 mg
Chromium 150 mcg
Manganese 20 mg
Selenium 50 mcg
Zinc 15 mg
Copper 2 mg
Iodine 150 mcg

Dosage: Take one-quarter to full amount of the above nutrients on a daily basis. Begin this formula with the lowest dose of each nutrient and increase the dose slowly and gradually to the recommended maximum depending on how you are feeling.

yourbal Tinctures Maximum Daily Dose
Ginkgo biloba 2 droppers full
Ginger root 2 droppers full
Burdock root 2 droppers full
Dandelion root 2 droppers full
Licorice root 1/2 dropper full

Dosage: Take one-quarter to full amount of the above nutrients on a daily basis. Begin this formula with the lowest dose of each nutrient and increase the dose slowly and gradually to the recommended maximum depending on how you are feeling.


Food Sources of Vitamin A

Vegetables
Carrots
Carrot juice
Collard greens
Dandelion greens
Green onion
Kale
Parsley
Spinach

And here are some websites.

www.cfids.org

www.ncf-net.org

www.cfidsselfhelp.org

wwcoco.com/cfids/forms.html

www.cfidsers.org

www.supportalk.com/detail-1244625.html

virtualhometown.com/dfwcfids/doctor.html

www.cdc.gov/ncidod/diseases/cfs/support/supus.htm

www.healingwell.com/pages/Chronic_Fatigue_Syndrome/Organizations

Hope this helps.  Just remember....you are not alone.  I wish you the best of luck.

Chronic Fatigue Syndrome

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Expertise

I was diagnosed (finally) with CFIDS (Chronic Fatigue Immune Disfunction Syndrome) in 1993. I am currently in "remission" (for whatever that`s worth). I have experienced the full range of emotions that go along with this disease and will be glad to "listen" to anyone who needs to vent their fears, confusion, frustrations, anger...(it helps). I can share what worked for me and what others have shared that worked for them. I can steer you in directions of help (ie: Social Security Disability claims, natural remedies, support groups, etc.). You are not alone.

Experience

Since my diagnosis, I have done a lot of research on the illness. I started the first support group in my area and organized "training" for physicians, nurses and care givers who believed in this disease and wanted to treat their patients that suffered . (It helped that I had been a Paramedic for 10 years before getting sick and had some medical knowledge.)

Organizations
National CFIDS Association, American Association of Emergency Medical Technicians and Paramedics

Education/Credentials
Emergency Medical Technician II, Emergency Intensive Care Paramedic

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