Chronic Fatigue Syndrome/CF
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Question
I'm seriously so tired during my waking hours that every second feels like a constant struggle underwater, uphill in February. If that makes any sense. I have horrible dreams every night. People say "we control our dreams...blah blah...just don't let yourself have bad dreams....blah blah.." but there's no controlling it. When I wake up, it feels like the sleep did much more harm than good. It feels like I never even wake up, like my whole day is just one dragged out dream. I've tried guzzling coffee, various meds and drugs but nothing helps. Exercise does nothing. It's terrible. I haven't been diagnosed with anything really except trendy problems like "Depression" and "Social Anxiety" and whatever other diagnostic flavor of the month's are.
I really don't want to do it, but will I need a sleep test to diagnose this? How do I convince these freakin doctors that I can barely make it through the day no matter how much or little sleep I get? Why don't they seem to care or listen?
Many thanks
-Adam
In order to determine if you have CFIDS you need your doctor to run a blood test for the Epstein Barr Virus. Until you have those results I can't really advise you further so if the results come back positive for the Epstein Barr Virus contact me and I have a list of some of the natural remedies that have helped me along with some informative and helpful websites. I wish you the best of luck.
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Answers by Expert:
Candy
Expertise
I was diagnosed (finally) with CFIDS (Chronic Fatigue Immune Disfunction Syndrome) in 1993. I am currently in "remission" (for whatever that`s worth). I have experienced the full range of emotions that go along with this disease and will be glad to "listen" to anyone who needs to vent their fears, confusion, frustrations, anger...(it helps). I can share what worked for me and what others have shared that worked for them. I can steer you in directions of help (ie: Social Security Disability claims, natural remedies, support groups, etc.). You are not alone.
Experience
Since my diagnosis, I have done a lot of research on the illness. I started the first support group in my area and organized "training" for physicians, nurses and care givers who believed in this disease and wanted to treat their patients that suffered . (It helped that I had been a Paramedic for 10 years before getting sick and had some medical knowledge.)
Organizations
National CFIDS Association, American Association of Emergency Medical Technicians and Paramedics
Education/Credentials
Emergency Medical Technician II, Emergency Intensive Care Paramedic
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