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Chronic Fatigue Syndrome/Dysautonomia
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Question
Hey I was wondering if there has been any breakthroughs finding a cure for dysautonomia?
Dear Nathan -
Sorry for the delay in getting back to you - my computer was out of commission for a few days.
No, no cure for dysautonomia yet, but there are many ways to treat it.
The best resource I know of is Dr. Rowe's article. Although it is written for CFS patients, the treatment advice applies equally well for all types of dysautonomia. Here's a link to a slideshow presentation Dr. Rowe recently gave:
http://www.cfids.org/webinar/series2010-past.asp#13
And a link to his full article which is excellent and very thorough:
http://www.cfids.org/webinar/cfsinfo2010.pdf
My kids have had good success treating OI with Florinef, I have recently started beta-blockers with good results, and we have all benefited from lots of extra salt and fluids.
Good luck -
Sue Jackson
www.livewithcfs.blogspot.com
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Answers by Expert:
Suzan Jackson
Expertise
I have had CFS since March 2002. My 14-year old son and 10-year old son also has CFS. I have a scientific background (chemical engineering) and have read and researched extensively to try to help myself and my sons to improve our symptoms, with some success. I`ve also conferred with some of the top CFS doctors in the U.S. I have a lot of hard-won experience working with school systems to get appropriate support for my sons. This is a very debilitating and isolating illness, and I would be glad to help anyone else who is struggling with CFS themselves or with a family member. You can read about our experiences in learning to live with CFS at my blog: www.livewithcfs.blogspot.com.
Experience
Have had CFS/CFIDS since 2002.
Two young sons have CFS/CFIDS.
Organizations
CFIDS Association of America
Various listserves that provide up-to-date information on CFS research.
Publications
www.livewithcfs.blogspot.com
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