Chronic Fatigue Syndrome/question re CFS (ME)

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koj wrote at 2011-01-21 17:03:47
Sue gave you excellent advice and answers.

I too, am an ME/CFS patient. I've experienced exactly what you're describing. It is Vasovagal Syncope. It os part of our autonomic system malfunction.

Chronic Fatigue Syndrome

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Suzan Jackson

Expertise

I have had CFS since March 2002. My 14-year old son and 10-year old son also has CFS. I have a scientific background (chemical engineering) and have read and researched extensively to try to help myself and my sons to improve our symptoms, with some success. I`ve also conferred with some of the top CFS doctors in the U.S. I have a lot of hard-won experience working with school systems to get appropriate support for my sons. This is a very debilitating and isolating illness, and I would be glad to help anyone else who is struggling with CFS themselves or with a family member. You can read about our experiences in learning to live with CFS at my blog: www.livewithcfs.blogspot.com.

Experience

Have had CFS/CFIDS since 2002.
Two young sons have CFS/CFIDS.

Organizations
CFIDS Association of America
Various listserves that provide up-to-date information on CFS research.

Publications
www.livewithcfs.blogspot.com

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