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Chronic Fatigue Syndrome/Questions

SubjectDate AskedExpert
florinef1/26/2010Suzan Jackson
  Q: I am 34 and for the past 15 or so years I have suffered from chronic tiredness, feeling really ...
  A: Jade - No, I had never seen that website before. That's an interesting experience - different ...
florinef1/26/2010Suzan Jackson
  Q: I am 34 and for the past 15 or so years I have suffered from chronic tiredness, feeling really ...
  A: I feel very uncomfortable offering you any advice since I know nothing at all about this particular ...
florinef1/25/2010Suzan Jackson
  Q: I am 34 and for the past 15 or so years I have suffered from chronic tiredness, feeling really ...
  A: I'm sorry you've had such a rough time. Let me see if I understand your situation...you've been ...
fatague1/23/2010Candy
  Q: a few years ago i was admitted to hospital with what was thought hepatitis. then my white bloods ...
  A: The only way to tell is to ask your doctor to run an Epstein Barr test on you. If it comes back ...
CFS1/13/2010Suzan Jackson
  Q: I am 30 years old with CFS. What diet plan (nutritional supplements) should I try or use to gain ...
  A: Although diet and nutrition are always important, these things alone don't make much of a difference ...
CFS and SS disability benefits1/6/2010Candy
  Q: How in the world do you get started to get social security disability benefits? I've contacted 2 ...
  A: Applying for Social Security Disability based on CFIDS or Fibromyalgia alone can be an ordeal in ...
Always low on energy12/28/2009Candy
  Q: I've tried everything to be more awake, (coffee etc.) I excercise etc. I have a lot of health ...
  A: While debilitating fatigue is the hallmark of chronic fatigue syndrome (CFIDS), a feeling of ...
Chronic Fatigue12/7/2009Candy
  Q: I am hoping to get information relating to whether or not Chronic Fatigue is a ‘real’ illness. I am ...
  A: CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) is DEFINITELY a very real illness. While ...
Chronic Fatigue12/7/2009Suzan Jackson
  Q: I am hoping to get information relating to whether or not Chronic Fatigue is a ‘real’ illness. I am ...
  A: Unfortunately, Chronic Fatigue Syndrome (CFS) has been the source of controversy for decades, but I ...
excercise10/27/2009Suzan Jackson
  Q: I have CFS and by the end of the day or the work week, I am too tired to exercise. Should I push ...
  A: Deborah - First, I'd like to apologize for the delay in getting back to you. I've been severely ...
cfs/bp/or neuro?10/16/2009Suzan Jackson
  Q: I am a mom with a new baby and 4 yr old. I am exhausted, but have been ill for 2 weeks. I had a ...
  A: I apologize for not getting back to you sooner. I've been very, very ill myself for weeks and ...
CFS but maybe not10/15/2009Candy
  Q: Candy, Forgive me if this entry is long, but this is my story. I'm a 23 year old male and all my ...
  A: First I am going to give you a list of Natural Remedies that have helped me. Vitamins and Minerals ...
Possible CFS?10/13/2009Candy
  Q: my name is Genna and I was just browsing allexperts and I saw this Chronic Fatigue Syndrome page. I ...
  A: While debilitating fatigue is the hallmark of chronic fatigue syndrome (CFIDS), a feeling of ...
CFS?10/13/2009Suzan Jackson
  Q: my name is Genna and I was just browsing allexperts and I saw this Chronic Fatigue Syndrome page. I ...
  A: I'm not really an expert on pain, but I'll do my best to answer your questions. I've had CFS for 7 ...
Symptoms9/23/2009Suzan Jackson
  Q: I've had M.E/CFS for about 4 years; however in the last year or so I've been getting a lot better. ...
  A: First, I'd like to apologize for the long delay in responding to you. I've been in a very bad crash ...
CF9/23/2009Suzan Jackson
  Q: I'm seriously so tired during my waking hours that every second feels like a constant struggle ...
  A: First, I'd like to apologize for the long delay in responding to you. I've been very sick this past ...
CF9/23/2009Candy
  Q: I'm seriously so tired during my waking hours that every second feels like a constant struggle ...
  A: In order to determine if you have CFIDS you need your doctor to run a blood test for the Epstein ...
Leg weakness, fatigue9/13/2009Candy
  Q: My mother has had increased leg weakness during the past year in spite of regular exercising to ...
  A: You need to have her doctor run an Epstein Barr blood test. If it comes back positive then she's ...
CFD and Vitamin deficiency7/17/2009Suzan Jackson
  Q: This may not be exactly in your line of expertise, but I'm seeking an answer, and hopefully you'll ...
  A: I apologize for the delay - we were on vacation, and, with my kids home from school for the summer, ...
Fatigueness that disables me.7/16/2009Suzan Jackson
  Q: What kinds of medicine do doctors prescribe for CFS patients and for what dose in the USA (and if ...
  A: I apologize for the delay in responding to your question - we just got back from vacation, and with ...
I'm like a zombie these days along with everything else I'm experiencing6/5/2009Suzan Jackson
  Q: I'm posting in multiple categories because I'm unsure of who to ask. There's a lot to read but its ...
  A: I'm sorry to hear you've been through such a difficult time recently. I have had CFS (Chronic ...
Diagnosing Chronic Fatigue5/21/2009Candy
  Q: I appreciate that you volunteer to answer questions on here since this is the place of last resort. ...
  A: I'm not a doctor...just a CFIDS sufferer...so I cannot say one way or the other. You would need a ...
Alternative therapies5/6/2009Candy
  Q: I'm a 25 year old who has had ME for almost 2 years. My GP offered me graded excercise therapy, ...
  A: Below is a list of things that have helped me. Vitamins and Minerals Maximum Daily Dose Malic ...
Fibro3/20/2009Suzan Jackson
  Q: Have you tried Dr. Lerner's anti-viral treatment? Viewing his site I did not see how to get it ...
  A: I'm sorry you've been through so much, both with your health and with the hurricane. I don't have ...
Question re: resources3/19/2009Candy
  Q: You mention that you can recommend natural treatments, websites, etc. That would be awesome to ...
  A: Vitamins and Minerals Maximum Daily Dose Malic acid/Magnesium hydroxide 1,800-6,000 mg (take in 6 ...
My Sister Has2/8/2009Candy
  Q: Candy, my sister has almost the EXACT same issues that you have her readings were 2,612!!! Please ...
  A: Since you didn't add your email address I wasn't able to read the rest of the doctor's summary but I ...
CFS2/3/2009Suzan Jackson
  Q: I'm not sure if I really have this disease, I might just be paranoid. I am always tired though, at ...
  A: I'm sorry you're going through such a rough time. Based on what you've described, it is possible ...
I've been diagnosed with CEBV1/12/2009Candy
  Q: I have been diagnosed positive for the EBV test. This has answered so many of my questions about ...
  A: First I am going to give you a list of Natural Remedies that have helped me. Vitamins and Minerals ...
sore throat12/15/2008Suzan Jackson
  Q: I heard that a sore throat was a common symptom of CFS. I was wondering if this sore throat comes ...
  A: Yes, sore throat and swollen glands are symptoms of CFS, but there are typically many other symptoms ...
CFS or Epstein-Barr11/14/2008Anne Hillebrand
  Q: I have never been conclusively diagnosed but I find myself in a re-occurring abnormal pattern of ...
  A: Elizabeth. Thanks for your question; it is clear and concise. I don't have as clear an answer, ...
CFS/ME9/20/2008Suzan Jackson
  Q: I have been diagnosed with CFS/ME since May this year, but have been unwell since Feb 2007. I am 16 ...
  A: I am so sorry to hear that you're going through such a difficult time. I have had CFS for 6 years, ...
CFIDS9/19/2008Candy
  Q: i was just wondering around sites trying to find more information about CFIDS. Just last night i ...
  A: Any Internal Medicine physician or General Practioner will be able to run an Epstien Barr blood ...
Potassium Limits7/29/2008Michael L. Johnson, DC
  Q: Johnson, I have been studying a bit, on the internet that is, concerning sodium/potassium imbalance ...
  A: It appears you are in fact well read on this matter. Potassium and Sodium are in opposition in the ...
Tiredeness and aches and pains7/23/2008Suzan Jackson
  Q: I don't know if I have asked my question in the right place, but would like any advice, or even who ...
  A: I'm glad to hear my suggestions and resources were helpful to you. Hopefully, you'll get some good ...
Tiredeness and aches and pains7/17/2008Suzan Jackson
  Q: I don't know if I have asked my question in the right place, but would like any advice, or even who ...
  A: I'm sorry to hear you're suffering so much and have been unable to find effective treatments yet. ...
medical mystery?7/9/2008Michael L. Johnson, DC
  Q: This is a little of the subject b/c I do not has CFS. But i'm having a hard time navigating this ...
  A: It is difficult for me to answer this question with the information you have given. It sounds ...
lifestyle7/8/2008Candy
  Q: Candy, when you were very ill, and you still had to juggle all of lifes demands, did you find a ...
  A: I am still what you would call "very ill" but in the beginning I learned a valuable lesson. I would ...
Epstein Barr symptoms/side effects and how do you seek good medical help?7/7/2008Candy
  Q: My daughter was just diagnosed with Chronic Epstein-Barr/Chronic Fatigue Syndrome. She has seen a ...
  A: Yes.....CFIDS can cause irregularity. Below are some of the natural remedies use that have been ...
chronic EBV/CFS6/5/2008Candy
  Q: Good morning. I have Chronic EBV/CFS. I have tested positive for mono for almost two years now. The ...
  A: The way it was explained to me when I first was diagnosed with CFIDS was that people who test ...
advice for chronic tiredness?6/5/2008Michael L. Johnson, DC
  Q: I am ALWAYS tired, sometimes having to take up to 2 naps a day. I am on Adderall and Zoloft and ...
  A: To understand Chronic Fatigue better don't think of it as a single problem but rather an amalgam of ...

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Chronic Fatigue Syndrome

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Suzan Jackson

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Expertise

I have had CFS since March 2002. My 14-year old son and 10-year old son also has CFS. I have a scientific background (chemical engineering) and have read and researched extensively to try to help myself and my sons to improve our symptoms, with some success. I`ve also conferred with some of the top CFS doctors in the U.S. I have a lot of hard-won experience working with school systems to get appropriate support for my sons. This is a very debilitating and isolating illness, and I would be glad to help anyone else who is struggling with CFS themselves or with a family member. You can read about our experiences in learning to live with CFS at my blog: www.livewithcfs.blogspot.com.

Experience

Have had CFS/CFIDS since 2002.
Two young sons have CFS/CFIDS.

Organizations
CFIDS Association of America
Various listserves that provide up-to-date information on CFS research.

Publications
www.livewithcfs.blogspot.com

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