Crohns Disease/Apriso

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Question
I've had elimination problems since contracting a food bourne illness, but had too many side effects from motility drugs. Although all my labs are normal for inflammation and only test ever performed is hydrogen breath test, which was positive, dr recently told me to take Apriso with no diagnosis ever received for colitis or crohn's. Is there any danger in taking Apriso without such a diagnosis or is this type of trial and error in gastro common?

Answer
Hi Marie,

I'm sorry, but I won't be of much help with your question, as I'm not very familiar with Apriso. I will say though, that trial and error is pretty common- it helps them rule out all of the other GI problems that are so similar.  That being said, you should still be going through all of the common tests, like a colonoscopy, endoscopy,and barium enema.  I would only be concerned that by taking the Apriso before these tests that it will mask your problem before they are able to figure out what is causing your discomfort.  

Don't be afraid to question your doctor, and request tests and more information.
I hope this helps a little, good luck!

Jaime

Crohns Disease

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Jaime Coyle

Expertise

I can answer any questions regarding what it's like to live with Crohn's, Ulcerative Colitis an ostomy bag, or a j-pouch. Symptoms, medication options, what to expect after some surgeries, and what to expect overall if you are diagnosed. I can give advice on how to explain the disease to friends and family, as well as answer questions for any family members who feel helpless. I am familiar with many support groups and websites dedicated to the diseases which I can refer people to. I also know many products available to help with some of the more uncomfortable issues that come with having these diseases.

Experience

I am not a doctor. I was diagnosed with Ulcerative Colitis when I was 14. I had a very quick and serious bout with it in which I was hospitalized on and off for more than a year. I tried many different medications and finally had to resort to surgery. After my large intestine was removed I lived with an ostomy bag for a year as a teenager. My second surgery was to create a j-pouch and reconnect everything to my rectum. For the last 13 years I have been relatively healthy however have been diagnose with most likely having Crohn's. During these years I have joined numerous support groups and have been in touch with tons of people who are going through it. I keep up research on the newest medications and talk to people who take them about the side-effects. Also when I was sick I tried almost every medication available and can personally talk about the side-effects. I was a camp counselor for the United Ostomy Association's Youth Rally where I taught kids how to live with their diseases. It is something that I feel very strongly about and having gone through it I know that it feels like you are alone.

Organizations
Crohn's and Colitis Foundation, United Ostomy Association, Youth Rally Committee, J-pouch.org

Education/Credentials
bachelor degree in management from Emerson College

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