I can answer any questions regarding what it's like to live with Crohn's, Ulcerative Colitis an ostomy bag, or a j-pouch. Symptoms, medication options, what to expect after some surgeries, and what to expect overall if you are diagnosed. I can give advice on how to explain the disease to friends and family, as well as answer questions for any family members who feel helpless. I am familiar with many support groups and websites dedicated to the diseases which I can refer people to. I also know many products available to help with some of the more uncomfortable issues that come with having these diseases.
I am not a doctor. I was diagnosed with Ulcerative Colitis when I was 14. I had a very quick and serious bout with it in which I was hospitalized on and off for more than a year. I tried many different medications and finally had to resort to surgery. After my large intestine was removed I lived with an ostomy bag for a year as a teenager. My second surgery was to create a j-pouch and reconnect everything to my rectum. For the last 13 years I have been relatively healthy however have been diagnose with most likely having Crohn's. During these years I have joined numerous support groups and have been in touch with tons of people who are going through it. I keep up research on the newest medications and talk to people who take them about the side-effects. Also when I was sick I tried almost every medication available and can personally talk about the side-effects. I was a camp counselor for the United Ostomy Association's Youth Rally where I taught kids how to live with their diseases. It is something that I feel very strongly about and having gone through it I know that it feels like you are alone.
Crohn's and Colitis Foundation, United Ostomy Association, Youth Rally Committee, J-pouch.org
bachelor degree in management from Emerson College