Crohns Disease/eating

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Question
Hello,   I was hospitalized 5 years ago and they told me I had Celiac disease.  They told me to avoid Gluten which I have done in USA.  I had been on Prednizone and now for the last 3 years I am on Metheltrexate.  I am in Sweden and find I can't avoid eating Gluten so I have been eating what is put in front of me like breads, cakes etc because I don't want to insult my hosts.  I have done this for a month with no symptoms at all.  Do you think I am not allergic to Gluten or is it building up for an attack or is the Metheltrexate keeping things under control or is European gluten different from American gluten?

Answer
Hi Don,

Sorry to take so long for the response.  Unfortunately, this is a little out of my expertise, but I did want to comment on one of your statements because it is interesting.  I do think that European gluten is different from American, because of the way we treat our wheat here in the US.  It is not so pure anymore.  I would be curious to know how many people in Europe are diagnosed with Celiac vs. the amount in the US.   But also, the metheltrexate can certainly be keeping things under control- did you ever test that in the US by eating gluten here while taking it?  

Sorry I couldn't be of more help, good luck!

Jaime

Crohns Disease

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Jaime Coyle

Expertise

I can answer any questions regarding what it's like to live with Crohn's, Ulcerative Colitis an ostomy bag, or a j-pouch. Symptoms, medication options, what to expect after some surgeries, and what to expect overall if you are diagnosed. I can give advice on how to explain the disease to friends and family, as well as answer questions for any family members who feel helpless. I am familiar with many support groups and websites dedicated to the diseases which I can refer people to. I also know many products available to help with some of the more uncomfortable issues that come with having these diseases.

Experience

I am not a doctor. I was diagnosed with Ulcerative Colitis when I was 14. I had a very quick and serious bout with it in which I was hospitalized on and off for more than a year. I tried many different medications and finally had to resort to surgery. After my large intestine was removed I lived with an ostomy bag for a year as a teenager. My second surgery was to create a j-pouch and reconnect everything to my rectum. For the last 13 years I have been relatively healthy however have been diagnose with most likely having Crohn's. During these years I have joined numerous support groups and have been in touch with tons of people who are going through it. I keep up research on the newest medications and talk to people who take them about the side-effects. Also when I was sick I tried almost every medication available and can personally talk about the side-effects. I was a camp counselor for the United Ostomy Association's Youth Rally where I taught kids how to live with their diseases. It is something that I feel very strongly about and having gone through it I know that it feels like you are alone.

Organizations
Crohn's and Colitis Foundation, United Ostomy Association, Youth Rally Committee, J-pouch.org

Education/Credentials
bachelor degree in management from Emerson College

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