Question Hi
Thank you for your respond,I thought he was getting sicker because it comes and gose.we have been dealing with this since july ,and on our forth doctor. cause no one knew why he had the ulcer on his bottom which grew quite large so we spent two weeks in hospital and did the tpn feedings and no food .he's had an upper gi and the colon scope twice first doctor didnt do it all just cleaned the area ,he also had the one that gose down the throat which is why he is on famotidine which is like pepcid to keep the gas from keeping him up all night . he had so many test that im not sure what they all are .we are just learning and not to sure what bothers him and what dont .i am so glad they have this web site so we can ask questions from people who are going through the same thing it helps alot .if i understood you right it's normal for him to have days when he just wont want to do anything and the best way to handle that is to let him rest and not push .what is a flare up for most people and do u call the doctor for all flare ups ?
thank you
moni829119
Answer Hi Monica,
Nope, seldom do I or most of us call the doctor when we have regular flares. What you need to watch out for is bleeding in the stools, throwing up (may be caused by an obstruction)and fevers. Watch out what foods he eats. No fried foods, no corn, popcorn, lettuce and those kinds of foods that do not digest well. A good rule of thumb is: If you have a hard time digesting the foods, then he will end up in pain because it causes the intestines to over work. Yes, it is so normal for him to have days where he is litle to no energy. It is our way of having to shut down. CD takes a lot out of us and our bodies tell us when to stop. l
A Flare up can be runs like crazy or our intestines "twisting" so that we can't even stand up. Going to the bathroom 17 times a day is not uncommon for us, but if this happens, I would contact the doctor as he could become dehydrated, so watch out for that.
Please email me any time you need to. If you would like to know some support groups on the internet, let me know.
