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Crohns Disease/Questions
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Jaime Coyle
Top Expert on this page
Expertise
I can answer any questions regarding what it's like to live with Crohn's, Ulcerative Colitis an ostomy bag, or a j-pouch. Symptoms, medication options, what to expect after some surgeries, and what to expect overall if you are diagnosed. I can give advice on how to explain the disease to friends and family, as well as answer questions for any family members who feel helpless. I am familiar with many support groups and websites dedicated to the diseases which I can refer people to. I also know many products available to help with some of the more uncomfortable issues that come with having these diseases.
Experience
I was diagnosed with Ulcerative Colitis when I was 14. I had a very quick and serious bout with it in which I was hospitalized on and off for more than a year. I tried many different medications and finally had to resort to surgery. I had my large intestine removed during my first surgery. I lived with an ostomy bag for a year as a teenager. My second surgery was to create a j-pouch and reconnect everything to my rectum. For the last 10 years I have been relatively healthy however have been diagnose with most likely having Crohn's. I have had some complications and continue to take mediation. During these 10 years I have joined numerous support groups and have been in touch with tons of people who are going through it. I keep up research on the newest medications and talk to people who take them about the side-effects. Also when I was sick I tried almost every medication available and can personally talk about the side-effects. I was a camp counselor for the United Ostomy Association's Youth Rally where I taught kids how to live with their diseases. It is something that I feel very strongly about and having gone through it I know that it feels like you are alone. If people are coming to this forum with questions, I can help them feel like they are not going through this by themselves and if anything, direct them to organizations near them who can help.
Organizations
Crohn's and Colitis Foundation, United Ostomy Association, Youth Rally Committee, J-pouch.org
Education/Credentials
bachelor degree in management from Emerson College
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