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Dentistry/Ectodermal Dysplasia

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Question
Hello, my name is Cayla, I'm 16 and I live in Upstate, NY. About a year ago I was diagnosed with Ectodermal Dysplasia by a dentist at Aspen dental. I've had problems with my teeth since I was born, (I was born with no enamel on my baby teeth) we were told that it would be rare for it to affect my adult teeth, but it has. My teeth are rotting from the inside out, have little to no enamel, are extremely fragile, and most are either broken down to the gum line or badly chipped/broken. I'm writing you in hopes that you may be able to point my mom and I in the right direction for treatment. We have Medicaid/HMO blue for insurance and I'm on SSDI (For mental health) so we're having trouble finding someone who will take our insurance to extract all my teeth and put in implants. Aspen only accepts private insurance, so in order for us to have them do it, we'd need about $16,000-$18,000 and well, we just don't have that. It's getting harder day by day to eat, drink, and sometimes talk. Do you know of anyone in New York who would take my insurance, and who could help. I'll need someone experienced in Ectodermal Dysplasia who can perform the operations I need. Any help/advice is highly appreciated, thank you for your time.

Answer
Dear Cayla:
I am sorry to hear of your troubles.  Your situation is not common, and as such, you should really see a dental specialist called a prosthodontist.  Most prosthodontists will be expensive.  However, many have an affiliation with a hospital, or a dental school who will be able to help.  New York is a very big state and I do not know what is available in your area.
Go to www.gotoapro.org and look up a prosthodontist near you.  Even if you only go in for a consultation, it will be worth it.  It will help you and your family make some long term plans.  There are grants available for treatment such as yours, but they are generally given to dental school specialty training programs.
I'll be more than happy to talk to your or your mother by phone and point you in the right direction.
Best of luck to you.

Dentistry

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Zev Kaufman, D.D.S.

Expertise

I can answer any question from simple routine dentistry to very complex dentistry with emphasis on reconstructive, cosmetic, and implant dentistry. My expertise is in co-ordination of very complex treatment plans with other dental specialists or as a one-man-team, since I have extensive training in Prosthodontics, Surgical Implantology, and orthodontics.

Experience

Over a decade in private practice of Surgical Implantology and Prosthodontics. Founder and owner of Prosthodontics & Implant Surgery of Manhattan, PC. Clinical Assistant Professor at the Post-Graduate Department of Periodontics & Implant Dentistry at New York University College of Dentistry. Lecture weekly since 1999 on advanced Implant Prosthodontics at New York University College of Dentistry Post-Graduate Program in Periodontics & Implant Dentistry. Former clinical assistant professor of Dental Radiology at the NYU College of Dentistry. Former clinical and lecture faculty at Lincoln Hospital, Dental residency program. Former clinical and lecture faculty at St. Barnabas Hospital (Bronx, NY) dental residency program. Lecture nationally on Prosthodontics and Implant Dentistry.

Organizations
Memeber of the American College of Prosthodontics. Memeber of the Acacdemy of Osseointegration. Member or the Omikron Kappa Upsilon (OKU) Honors Dental Society. Member of the American Dental Education Association.

Education/Credentials
Graduated with Honors from New York University College of Dentistry. Post-Graduate training and certificate in the specialty of Prosthodontics. Post-Graduate training and ceritificate in Surgical and Prosthetic Implant Dentistry. Honors-program in Comprehensive and Applied Practice Management. Honors-program in Orthodontics.

Awards and Honors
NYU Cervice award to the community. OKU honor society. National Dean's List. National Who's Who.

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