Fibromyalgia/Fibro and Seizures
Karen wrote at 2008-04-22 00:03:17
I would try seeing a chiropractor, as it sounds like something out of place in your neck is pressuring a part of your brain that is causing the seizures. As a young child I took seizures , the doctors had me on many different drugs, but it was a chiropractor that helped me. I have now been diagnosed with fms as a adult, and after hearing your story it just reminded me of when I was young. See a chiropractor its worth a try.
kris wrote at 2008-06-25 14:37:11
maybe you need to see if it is chiari malformation. Need a doctor who know's about this. most fibromyalgia may be caused by this.
jen wrote at 2008-09-07 20:53:19
it doesent sound like a seizure. I have complex partial epilepsy and it usually would interfere with your consciousness
Kriss wrote at 2009-10-15 16:21:32
I too have had all these same symptoms with my fibromyalgia. They thought at first it was epilepsy, put me on all kinds of meds. Still having these non-epileptic seizures and cannot drive. The meds made me so much worse. I now go to CBT and am taking Buspar for my worry. I can not stand the headaches and am goofy with the seizures but, I feel blessed it was not epilepsy.
Mrs. Brooks wrote at 2010-01-21 03:40:36
I am researching these symptoms for my Mother-in-law who is suffering from the exact same symptoms. She too was diagnosed with Fibromyalgia as well as Chiari 1...Anyway I'm so glad to find "like" stories. I think it's encouraging to her %26 to the family.
I think the "experts" should be studying this more closesly %26 seriously!
Zkitty wrote at 2010-02-12 14:19:23
Me too. I can go long periods w/o having one. I to can process speech but not resond to it. Once I am having a seizure, I have sensory triggers such as loud unexpected noise, bright light cold etc. The first one occurred 10 years ago and now I have as 6 a year. The last one caused me to lose consciousness. I affects my speech and ability to think clearly as well
jazz wrote at 2010-03-10 18:34:17
I also get seizures from fibro. I had a bad fall which left me with a closed head injury and my doctor told I will be at risk for fibromyalgia seizures. There are 2 kinds of seizures associated with fribro..Sure enough I started having them. I see a nuerologist for my fibromyalgia. He has assured me that the seizures do not cause brain damage. I have had them last a short period of time to much longer period of times. I hope this helps a little.
Gina wrote at 2010-04-22 18:39:01
I have fibro and seizures. I can't find a dr that will agree that the fibro is causing the seizures, but I have read of rare cases in two books. I have an average of 5-7 a month. I have found out (through keeping a journal) that there are triggers that set them off. Bright lights, loud piercing noises, stress, and mostly weather changes. Rainy and windy days are like every cell in my body is electrified! I am so frustrated with them and the fact that nobody can give me an answer.
M. Noriega wrote at 2010-08-15 01:16:12
WOW. I have been having the EXACT same thing happen, and have had blood tests, 48hr EEG, brain MRI, two CT scans, Neck MRI and full body bone scan. I was in 2 auto accidents in 2009, in the first I suffered a neck injury, the 2nd I hurt my lower back (sprained sacrum). The sacrum pain has been daily and sometimes so excruciating I lose sleep. I've now been diagnosed with fibro. I've had what I thought were absence seizures, but all my neuro tests came back normal. I do have an extreme amount of stress in my life, I have been in a nasty custody battle for 2 yrs where I have been harassed continuously. I do admit I am depressed and my anxiety is through the roof. I agree that these "seizures" did seem to slow down considerably once I started anti-depressants. I composed a list to help explain to doctors what was happening...
Intense dizziness/spacey, "drugged" feeling
Tension builds in neck and upper back
Pressure in head/headache (usually front half of head)
Feeling of electrical shocks causing twitching
Extreme itching (causes twitching)
Left arm aches
Extreme fatigue afterward
This is pretty crazy but it feels good knowing I'm not just nuts (or maybe technically I am? lol). I've read these seizures can be a psych disorder called conversion disorder. That would explain why anti-depressants help.
Victoria wrote at 2010-09-21 02:45:04
I am as frustrated as the lady, who has stated she has been experiencing seizures, but have not found any doctor to help her. I have been told that it is psychogenic, in my head, and my way of dealing w/ stress. I am so exhausted and have spent so much money to be told the very same thing. I did not have any trouble until my back was operated on in 8/06 (microdiscectiomy). I was experiencing tremors, but started having the seizures she is explaining 11/07. The seizures got even worse in January, therefore I was advised to have another back surgery (interbody fusion), which I had. Since the surgery the seizures are worse, I have a C-PAP, because I do not go into REM sleep, because of the pain, and I also have a nebulizer machine, because the physician I was receiving injections from that were suppose to help me, but didn't, but instead gave me CHF and asthma. I saw another neurologist today, but I feel like he is thinking the same as the other doctors and if the video EEG does not show seizures again, then I will be back at first base. I don't know when science will catch up w/ the symptoms people have, but it will not be soon enough for me.
Fibro wrote at 2010-11-02 20:43:12
I'm currently experiencing the same thing, but it's been going on for months. I've had severe Fibro for most of my life, and am in my mid 20s. If I find anything, I'll post back.
Victory wrote at 2011-02-21 07:23:00
When I read your letter for a second, I thought maybe I had posted it, as the symptoms are all what I have experienced, since 11/07.
Recently, I read about Pyschogenic Non-Epileptic Seizures (PNES). This article, which can be found at www.epilepsy.com, appears to suggest these seizure like episodes are in actuality a Conversion Disorder, which is a somatoform disorder, defined as physical symptoms caused by psychologic conflict, unconsciously converted to resemble those of a neurologic disorder (Martin, Jenna; 2005, Apr. 8).
I am a psychotherapist by trade and would never have thought I would experience these symptoms, which I do not believe to be Conversion Disorder. It has been very frustrating trying to get someone to provide me with another reason for these seizure like episodes, which have been disrupted my life and led to my being placed on disability.
These episodes started after my first back surgery, in 2006. My thought is either a nerve was effected during the back surgery or the symptoms are medication related. It is my hope they will find the cause of these symptoms and develop and effective treatment.
I wish you luck in your ability to cope with these symptoms,and hope you can also, receive a correct diagnosis and effective treatment.
Victory wrote at 2011-02-21 07:34:47
Jazz, 3/2010, you mentioned the neurologist told you there are two different types of seizures for fibromyalgia patients. I would like to the the name of the physician, contact information and what specifically did they tell you in regards to the seizures. I have not been able to get a physician to agree seizures are a symptom of fibromyalgia.
kate wrote at 2014-03-25 04:25:03
I have seizures as a direct result to allergy to any new drug Im taking especially antihistamines or seroquel. Its still called a seizure but.