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About Barbara Uggen-Davis
(Top Expert on this page)

Expertise
I can answer questions related to coping with Ehlers Danlos Syndrome including: bracing, symptoms, alternative therapies, support groups, etc.

Experience
Although I am not a doctor, I have extensive experience in dealing with EDS from personal experience and from being actively involved in EDS Support and Education groups since 1994.

Organizations
EDS Today, Canadian Ehlers-Danlos Association, UK EDS Support Group.

Publications
EDS Today. I am both a writer and editor for the publication.

Education/Credentials
I have a BA in Business Administration/Accounting and an MBA in Business Management/Information Systems. I work in the medical field with 12 years experience in over-the-counter bracing and support products. In 2007, I joined a medical technology company.

   

You are here:  Experts > News/Issues > Disability Issues > Living With Disabilities

SubjectDate AskedExpert

Help for persons with spinal cord injuries8/27/2008Jon Eriquezzo
  Q: I know someone who had a back injury that tore his muscle and injured several disks and has had some ...
  A: Mini Grants for Artists with disabilities (could swing $500 for a laptop if this person wants to ...
EDS type III and pregnancy8/25/2008Barbara Uggen-Davis
  Q: You apparently responded to my question that I sent last week but the email that was sent to me only ...
  A: People with different types of EDS can varying symptoms. Another person with EDS, Maggie Buckley, ...
EDS type III and pregnancy8/20/2008Barbara Uggen-Davis
  Q: I am about 5 weeks pg with my second child and was diagnosed with EDS type III earlier this year. I ...
  A: My first question for you is, have you had a skin biopsy test for VEDS? For many years, the skin ...
dyspraxia8/14/2008John Craig
  Q: I'm 13 and I've got dyspraxia in my hands and fingers i wanted to ask what is dyspraxia and why do i ...
  A: Definition Dyspraxia is a neurological disorder of motor coordination usually apparent in childhood ...
ehlers-danlos type lll8/12/2008Barbara Uggen-Davis
  Q: Are we entitled to a disability car sticker or any disability help as my joints are degenerating as ...
  A: EDS can be a reason to get a disability plate/placard if your symptoms warrant it. EDS by itself ...
housing for disabled8/3/2008Margot RN BScN CGN
  Q: I am 31 yrs old and have been disabled with epilepsy since I was 6 months old. I have always lived ...
  A: I guess it depends on whether you would be safe living on your own. Have you ever looked in to ...
selection of IOL for cataract7/21/2008Jeannine
  Q: I am 70, living in India. My both eyes needs cataract surgery. I am advised to go for a foldable IOL ...
  A: I had a similar problem, because the pouches in both my eyes were not fully formed and were both ...
Possible Future Disability Issue7/20/2008Barbara Uggen-Davis
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: Mike, I am not an expert on social security disability (SSDI), so I encourage you to speak with a ...
Possible Future Disability Issue7/20/2008Mary Marques-Caramico
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: Mike... You will qualify for Social Security Disability only if you have paid into the Social ...
Possible Future Disability Issue7/20/2008Lindsey Davis
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: I apologize for taking so long to reply to your question. Sounds like you're in quite a bit of ...
Possible Future Disability Issue7/20/2008John Craig
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: Mike, First thing you need to know is what the problem is. It could be a very simple thing. Let me ...
EDS7/17/2008Barbara Uggen-Davis
  Q: I am an Lic. Massage Therapist and a good friend of mine has a daughter with EDS. Her DR. ...
  A: Michael, I am going to refer your question to my father, Michael Uggen, LMP. He is a licensed ...
Disable/can;t get needed help!7/15/2008Jon Eriquezzo
  Q: I've been waiting for ssi since 2004, been denied twice, this is my third try. I have a atty.but I ...
  A: I can only imagine what you are going through! I too lived for several years with chronic pain that ...
Brackmann De-Lang6/11/2008Jon Eriquezzo
  Q: I have a 3 year old nephew who has been diagnosed with Brackmann De-Lang and have been having ...
  A: I was under the impression that Brachmann de Lang and Cornillia de Lange syndrome were one in the ...
NEW HOME6/2/2008Margot RN BScN CGN
  Q: I HAVE TO BE IN AN ELECTRIC SCOTTER/CHAIR, BUYING A NEW HOME, DOES TEXAS, OR THE FEDERAL GOVERMENT ...
  A: The best people to talk to would be: Robert Langford Ph.D., President Texas Center for the ...
blindness5/27/2008Jeannine
  Q: I'm 13 girl and blind in one eye since i was born.and if it helps a teaching assistant sometimes ...
  A: Zoe, That could be because your good eye gets tired and dry. My good eye gets a sticky film over ...
C1-C2 fusion in a 5 year old4/22/2008Barbara Uggen-Davis
  Q: My 5 year old daughter is in the process of being diagnosed with EDS. She goes to clinic on May 14. ...
  A: Sorry to hear about your daughter's ordeal. I can't offer medical advice, particulary with fusions ...
transportation for cripples4/2/2008Jon Eriquezzo
  Q: I am doing a reseach on the methods we can provide better mobility for cripples. I appreciate your ...
  A: People who have impaired mobility can benefit from many adaptations to sidewalks and vehicles. I ...
PLEASE EXPLAIN2/16/2008Margot RN BScN CGN
  Q: I was wondering would you please explain to me: why do I have to have things explained to me in ...
  A: People who have CP may have grown a bit slower as babies before they were born so their brains ...
PLEASE EXPLAIN2/16/2008Jon Eriquezzo
  Q: I was wondering would you please explain to me: why do I have to have things explained to me in ...
  A: I can read your question, and therefore answer it, in two possible ways: The first way is by ...
PSC Cateracts2/13/2008Jeannine
  Q: I'm writing for a friend who I think needs more info for the decision she's making. She has PSC ...
  A: Lisa, This is what I found when I googled PSC. Below is the biggest symnptom it causes. ...
Definition for legal blindness, total blindness, low vision as a disablitily2/11/2008John Craig
  Q: I'm doing research to determine what the difference is between legal, total blindness, and low ...
  A: Sorry it has taken me a bit to get back to you. The best advice I can give you is to check with the ...
Appealing to your experience...2/11/2008Jeannine
  Q: I am a filmmaker living in England, and I am currently working on two films that deal with visual ...
  A: Hope I can be of some help. Here goes. I took art all throughout my school years, and even in ...
Job Security1/29/2008John Craig
  Q: I'm extremely frustrated. I have a learning disability which makes it extremely hard for me to ...
  A: In most states there is a vocational placement service called VESID. This service deals with ...
cataracts1/20/2008Jeannine
  Q: Recently I went to visit a specialist because of my eyes. 3 Years ago I had Chemotherapy and my ...
  A: Firstly let me tell you that from what I just read, I admire you greatly and think you are a very ...
change in attitude?1/17/2008Jeannine
  Q: my vision is very poor.my BEST CORRECTED VISUAL ACUITY IS JUST ABOUT 20/200 IN BOTH THE EYES.i feel ...
  A: You sound a lot like myself, actually. I have had bad vision since birth. It'd been around 20/200 ...
Toe Problem1/2/2008Allison Mitchell
  Q: I have had Spina Bifida and various leg issues all my life. Off-and-on for months now, I have had ...
  A: In the past, I had similar problems with burning in my feet. About 2 years ago, I was diagnosed with ...
sport for son12/12/2007John Craig
  Q: I was wondering if you could suggest a sport/activity for my 10 year old son who is not athletic at ...
  A: Almost every sport requires some use of his legs. However, depending on what he can tolerate I will ...
help me discrimination problem11/15/2007Mary Marques-Caramico
  Q: I have a problem with a handy cap permit discrimination, they won't make reasonable accomidations ...
  A: The first thing I recommend is that you contact your EEO/Affirmative Action Officer for the city. ...
Explaining to others about disability9/16/2007Lindsey Davis
  Q: I am a 47 year old male receiving permanent disability benefits. This is a permanent situation so ...
  A: So sorry it took so long to get back with you, family decided to drop by this weekend! Ah!! Well, ...
Explaining to others about disability9/16/2007Jerry Ryan, Ph.D.
  Q: Ryan, I am receiving permanent social security disability benefits and have been for about 10 ...
  A: Being a quadriplegic in a motorized wheelchair, I don't get that question very often. However, when ...
DISABILITY QUESTION 58/22/2007Jerry Ryan, Ph.D.
  Q: Would you please explain to me: what cerebral palsy is? Thanks C Barwick ANSWER: According to the ...
  A: If you mean control their motions, that's part of the problem with the transmission of signals to ...
diabetes8/18/2007Mary Marques-Caramico
  Q: yes i have type two diabetes i take insulin i was suppended for 3 days for going to the bathroom to ...
  A: This is an employment law violation. Your employer cannot deny you a reasonable accommodation. ...
DISABILITY QUESTION 48/2/2007Jerry Ryan, Ph.D.
  Q: Would you please explain to me: what cerebral palsy is? Thanks C Barwick ANSWER: According to the ...
  A: Most often, a loss of balance is caused by an inner ear problem involving the semicircular canals. ...
eds vascular type8/1/2007Barbara Uggen-Davis
  Q: ..I am a 37 year old lady who suffered a ruptured brain aneurysm in May 2006. This was preceeded by ...
  A: Let me preface first with a disclaimer - I'm not a doctor and can't give medical advice or answers. ...
DISABILITY QUESTION 47/30/2007Margot RN BScN CGN
  Q: Would you please explain to me: what cerebral palsy is? Thanks C Barwick ANSWER: Hi Cameron an ...
  A: Cerebral palsy affects the central nervous system and changes the tone of muscles. It takes mild, ...
DISABILITY QUESTION 27/30/2007Jerry Ryan, Ph.D.
  Q: Would you please explain to me: what cerebral palsy is? Thanks C Barwick ANSWER: According to the ...
  A: An acute sense of smell, taste, hearing, or other senses is just as likely in someone with ...
DISABILITY QUESTION 37/27/2007Margot RN BScN CGN
  Q: Would you please explain to me: what cerebral palsy is? Thanks C Barwick ANSWER: Hi Cameron an ...
  A: I know that people with one sense that is weaker or non-existent (ie: blind or deaf) do develop ...
DISABILITY QUESTION 27/23/2007Margot RN BScN CGN
  Q: Would you please explain to me: what cerebral palsy is? Thanks C Barwick ANSWER: Hi Cameron an ...
  A: The medical definition of cerebral palsy is a "non-progressive" but not unchanging disorder of ...
DISABILITY QUESTION 27/23/2007Jerry Ryan, Ph.D.
  Q: Would you please explain to me: what cerebral palsy is? Thanks C Barwick ANSWER: According to the ...
  A: Since I'm not a physician nor do I know your medical condition, my best guess is that you are having ...

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Questions by
Active Experts:
Margot RN BScN CGNJohn CraigJeannine
Jon EriquezzoBarbara Uggen-DavisAllison Mitchell
Mary Marques-CaramicoLindsey Davis 

     
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