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About Barbara Uggen-Davis
(Top Expert on this page)

Expertise
I can answer questions related to coping with Ehlers Danlos Syndrome including: bracing, symptoms, alternative therapies, support groups, etc.

Experience
Although I am not a doctor, I have extensive experience in dealing with EDS from personal experience and from being actively involved in EDS Support and Education groups since 1994.

Organizations
EDS Today, Canadian Ehlers-Danlos Association, UK EDS Support Group.

Publications
EDS Today. I am both a writer and editor for the publication.

Education/Credentials
I have a BA in Business Administration/Accounting and an MBA in Business Management/Information Systems. I work in the medical field with 12 years experience in over-the-counter bracing and support products. In 2007, I joined a medical technology company.

   

You are here:  Experts > News/Issues > Disability Issues > Living With Disabilities

SubjectDate AskedExpert

Is Cleft Palate disability?11/7/2009John Craig
  Q: I was born with cleft palate but up to this point of age I'm not sure where should I belong. Is ...
  A: To be honest if you were standing in front of me I would knock that chip of your shoulder! It is ...
Is Cleft Palate disability?11/7/2009John Craig
  Q: I was born with cleft palate but up to this point of age I'm not sure where should I belong. Is ...
  A: I have the same situation. If I think the person isn't listen I tell them to. You need to be ...
Is Cleft Palate disability?11/6/2009John Craig
  Q: I was born with cleft palate but up to this point of age I'm not sure where should I belong. Is ...
  A: This is a doubled edged sword. Cleft palate in and of itself is not a disability per se. It becomes ...
Help me find the right shoes.9/30/2009John Craig
  Q: I'm John: I'm 39, I have Cerebral Palsy, and I've tried for years (online) to find shoes to fit my ...
  A: John, Not quite sure what state you live in. I am in NY and near me we have a specialty store for ...
Developmental centers9/28/2009Jon Eriquezzo
  Q: I'm not sure if you're the right person to ask; please forgive me if you're not. I have Asperger's ...
  A: I am the right person to ask. All residential facilities have different rules. Whatever program you ...
different stages of blindness.9/8/2009Jeannine
  Q: Is it possible to go from partial blindness where you can just distinguish dark and light shapes ...
  A: Jarita, I'm confused about the wording of your question. It sounds like you are saying you have ...
support8/27/2009Margot RN BScN CGN
  Q: My son's friend (in his 30's)was in a car wreck and was told he would probably never walk again. He ...
  A: There has been a lot of research proving that positive thinking does help whether you're battling ...
cataracts and computer screens6/22/2009Jeannine
  Q: Do cataracts get any worse from using a computer for twelve hours a day. thank you Alan
  A: Alan, I can only speak from personal experience...and no, I did not find that the computer screen ...
Job placement for severe OCD5/25/2009Jon Eriquezzo
  Q: my 20-year old son is suffering from severe OCD and is not able even to look for a job. We live in ...
  A: Your fist stop should be to try the Indiana Vocational Rehabilitation Vocational Rehabilitation ...
Motor dysgraphia5/17/2009John Craig
  Q: i looked it up on WikipediA and found most of my symtums coinside with Motor Dysgraphia i have been ...
  A: Hope this helps. Dysgraphia is a writing disability in which the individual's writing is incorrect ...
what can I do to better this situation?4/26/2009Jon Eriquezzo
  Q: I am 25, on disability for PTSD and had a baby 8 weeks ago. Unfortunately, the father, who I have ...
  A: Have you tried these resources? Scranton Area Family Center Jan Hess 541 Wyoming Avenue Scranton, ...
Resources3/21/2009Jon Eriquezzo
  Q: After sustaining a mild TBI I am struggling to put an independent life together again. Are there ...
  A: Here is an option, if you haven't tried it already: Brain Injury Resource Line (BIRL) toll free ...
EDS2/4/2009Barbara Uggen-Davis
  Q: I had custody of my 11 yr old nephew for a year. He Dx is joint hypermobility. I think he has EDS ...
  A: This sounds like it could be EDS. EDS type III, now called Hypermobile type EDS, is diagnosed with ...
Ehlers Danlos Syndrome1/21/2009Barbara Uggen-Davis
  Q: I have Ehlers Danlos Sydrome and I am trying to find advice. I know because of the disorder I am not ...
  A: I don't know much about specifics of root canals, although I know several people with EDS who have ...
DSSI1/17/2009Jon Eriquezzo
  Q: My son is 5 and has autism. He receives DSSI,yet we sold our house and moved. We had to or our house ...
  A: Here you go: http://www.ssa.gov/pubs/11000.html#part3 Resources (things you own) Resources that ...
EDS question1/9/2009Barbara Uggen-Davis
  Q: My daughter in 21 and has EDS. She has a lot of joint pain and problems with dislocations. Going ...
  A: Check into the department of vocational rehabilitation. DVR provides accommodations to help her get ...
referral of doctor in phoenix area1/8/2009Barbara Uggen-Davis
  Q: I am a in search of an experienced doctor in the Phoenix area. I was hoping that someone that has ...
  A: I am not in the Phx area and don't know of any docs there, but I do know someone with EDS who lived ...
Memory loss1/2/2009Margot RN BScN CGN
  Q: i'm 21 and my memory is just no good. I failed tests all the time even though I studied and I forget ...
  A: I think you need more than Vitamins ad would suggest you try going to a Memory Specialist or taking ...
Ehlers-Danlos Syndrome & Surgeries12/28/2008Barbara Uggen-Davis
  Q: Although I am only 37 years old, I feel I am aging in "dog years". With my first (hernia) surgery ...
  A: Most doctors are clueless about EDS. Your best bet to find a doctor familiar with EDS is to ask for ...
Parking Citations for Handicapped Vehicles10/30/2008Mary Marques-Caramico
  Q: I suffer from multiple schlerosis and have difficulty with memory loss. I have been parking in the ...
  A: You must take the ticket to court on the day you are assigned a hearing. I don't know what state ...
Person w/ Disability RIGHT TO HAVE A PET10/12/2008Mary Marques-Caramico
  Q: I hope you can answer this for me...I read that you are familiar with service animals, but I'm not ...
  A: Susan... With a doctor's note you would qualify for protection under HUD regulations. No pet ...
Intellectual Disabilities9/24/2008Margot RN BScN CGN
  Q: I am trying to find statistics on how common Intellectual Disabilities are in Virginia. I have ...
  A: These links might help... ...
Informative speech on Intellectual Disabilities9/18/2008John Craig
  Q: I will be giving a 3-4 minute speech on Intellectual Disabilities for speech class. This topic is of ...
  A: Sherry, Tough question!! Couple of thoughts, you could give a overview on a topic such as ...
cataract removal abd diabetes9/15/2008Jeannine
  Q: First off, God Bless you. I will try and be brief.I am slated to have both catarcts removed and I ...
  A: God bless you, too. I had been fixed for distance in both eyes. After some trouble I had with the ...
Help for persons with spinal cord injuries8/27/2008Jon Eriquezzo
  Q: I know someone who had a back injury that tore his muscle and injured several disks and has had some ...
  A: Mini Grants for Artists with disabilities (could swing $500 for a laptop if this person wants to ...
EDS type III and pregnancy8/25/2008Barbara Uggen-Davis
  Q: You apparently responded to my question that I sent last week but the email that was sent to me only ...
  A: People with different types of EDS can varying symptoms. Another person with EDS, Maggie Buckley, ...
EDS type III and pregnancy8/20/2008Barbara Uggen-Davis
  Q: I am about 5 weeks pg with my second child and was diagnosed with EDS type III earlier this year. I ...
  A: My first question for you is, have you had a skin biopsy test for VEDS? For many years, the skin ...
dyspraxia8/14/2008John Craig
  Q: I'm 13 and I've got dyspraxia in my hands and fingers i wanted to ask what is dyspraxia and why do i ...
  A: Definition Dyspraxia is a neurological disorder of motor coordination usually apparent in childhood ...
ehlers-danlos type lll8/12/2008Barbara Uggen-Davis
  Q: Are we entitled to a disability car sticker or any disability help as my joints are degenerating as ...
  A: EDS can be a reason to get a disability plate/placard if your symptoms warrant it. EDS by itself ...
housing for disabled8/3/2008Margot RN BScN CGN
  Q: I am 31 yrs old and have been disabled with epilepsy since I was 6 months old. I have always lived ...
  A: I guess it depends on whether you would be safe living on your own. Have you ever looked in to ...
selection of IOL for cataract7/21/2008Jeannine
  Q: I am 70, living in India. My both eyes needs cataract surgery. I am advised to go for a foldable IOL ...
  A: I had a similar problem, because the pouches in both my eyes were not fully formed and were both ...
Possible Future Disability Issue7/20/2008Barbara Uggen-Davis
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: Mike, I am not an expert on social security disability (SSDI), so I encourage you to speak with a ...
Possible Future Disability Issue7/20/2008Mary Marques-Caramico
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: Mike... You will qualify for Social Security Disability only if you have paid into the Social ...
Possible Future Disability Issue7/20/2008Lindsey Davis
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: I apologize for taking so long to reply to your question. Sounds like you're in quite a bit of ...
Possible Future Disability Issue7/20/2008John Craig
  Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
  A: Mike, First thing you need to know is what the problem is. It could be a very simple thing. Let me ...
EDS7/17/2008Barbara Uggen-Davis
  Q: I am an Lic. Massage Therapist and a good friend of mine has a daughter with EDS. Her DR. ...
  A: Michael, I am going to refer your question to my father, Michael Uggen, LMP. He is a licensed ...
Disable/can;t get needed help!7/15/2008Jon Eriquezzo
  Q: I've been waiting for ssi since 2004, been denied twice, this is my third try. I have a atty.but I ...
  A: I can only imagine what you are going through! I too lived for several years with chronic pain that ...
Brackmann De-Lang6/11/2008Jon Eriquezzo
  Q: I have a 3 year old nephew who has been diagnosed with Brackmann De-Lang and have been having ...
  A: I was under the impression that Brachmann de Lang and Cornillia de Lange syndrome were one in the ...
NEW HOME6/2/2008Margot RN BScN CGN
  Q: I HAVE TO BE IN AN ELECTRIC SCOTTER/CHAIR, BUYING A NEW HOME, DOES TEXAS, OR THE FEDERAL GOVERMENT ...
  A: The best people to talk to would be: Robert Langford Ph.D., President Texas Center for the ...
blindness5/27/2008Jeannine
  Q: I'm 13 girl and blind in one eye since i was born.and if it helps a teaching assistant sometimes ...
  A: Zoe, That could be because your good eye gets tired and dry. My good eye gets a sticky film over ...

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Active Experts:
Jon EriquezzoMargot RN BScN CGNBarbara Uggen-Davis
JeannineJohn Craig 

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