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Living With Disabilities/Cornelia De Lange Syndrome and Aging

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T. Bailey wrote at 2008-11-02 21:47:24
You would be incorrect with living up to 6 years old...that angers me. I worked for a person who was 16 yrs of age. So the fact that the age six is up there doesn't make since. It maybe that your client is the oldest, but only living six years would be incorrect.


Heather wrote at 2009-09-15 15:43:15
I know this is a two-year-old question, but I run a group home for adults with DD and one is Cornelia de Lange.  She is almost 63 years old.  I am having the same issues finding information on this syndrome in older people.


D wrote at 2014-07-29 22:52:55
I work in a Canadian group home for DD adults and being 2014 we have a lady that is 66 years of age. Finding current information on oldest person alive with this syndrome and any new information on this syndrome is still a challenge. So few people with this and not enough studies or help for them or their support teams.


Living With Disabilities

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Jon Eriquezzo, MS

Expertise

Serving people who have disabilities to live in their community. Also federal and state regulation relate to disability services.

Experience

Jon is the vice president of innovation for the Crotched Mountain Foundation. Jon is responsible for ensuring the long-term growth of Crotched Mountain School and building upon its stature as a leader in special education. He also oversees ATECH Services in Concord, NH, with a focus on aligning ATECH's innovative services with the needs of the community.   Prior to assuming this role, Jon was the executive director of Crotched Mountain Residential Services where he provided housing, residential and day supports to nearly 200 children, adults and seniors.   Jon has worked in the disability-related field for 35 years and has provided housing and support services to people with disabilities throughout Connecticut, Massachusetts, Maine, New Hampshire and New York. A graduate of Springfield College, Jon holds a master's degree in Organizational Management and Leadership, a bachelor of science degree in Human Services and a certificate in Community Healthcare Management from Antioch University New England. He is a faculty member of Granite State College and teaches through the New Hampshire Department of Children, Youth and Families (DCYF) training partnership.

Organizations
New Hampshire Residential Provider Network, Private Provider Network, ANCOR

Publications
The New Hampshire Challenge

Education/Credentials
MS Organizational Management and Leadership and BS in Human Services from Springfield College Community Health Care Management Certificate from Antioch University

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