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Living With Disabilities/Cornelia De Lange Syndrome and Aging


T. Bailey wrote at 2008-11-02 21:47:24
You would be incorrect with living up to 6 years old...that angers me. I worked for a person who was 16 yrs of age. So the fact that the age six is up there doesn't make since. It maybe that your client is the oldest, but only living six years would be incorrect.

Heather wrote at 2009-09-15 15:43:15
I know this is a two-year-old question, but I run a group home for adults with DD and one is Cornelia de Lange.  She is almost 63 years old.  I am having the same issues finding information on this syndrome in older people.

D wrote at 2014-07-29 22:52:55
I work in a Canadian group home for DD adults and being 2014 we have a lady that is 66 years of age. Finding current information on oldest person alive with this syndrome and any new information on this syndrome is still a challenge. So few people with this and not enough studies or help for them or their support teams.

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Jon Eriquezzo, MS


Assisting people who have disabilities to live in their community.


Jon is the Executive Director of Crotched Mountain Residential Services in Greenfield, NH. He arrived at Crotched Mountain in October, 2001. He has over 30 years experience working in the field of developmental disabilities. He has held similar positions at LifeStream, Inc., in New Bedford, Massachusetts; Developmental Services of Strafford County in Dover; and The Plus Company, Inc., in Nashua. Jon has also served as a mental illness management case worker for the Area Agency in Nashua, NH and worked as a residential coordinator for the Society to Advance the Retarded and Handicapped in Norwalk, CT.

New Hampshire Residential Provider Network, Private Provider Network, National Rehabilitation Association.

MS Organizational Management and Leadership, Springfield College School of Human Services, Community Health Care Management Certificate from Antioch University

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