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Living With Disabilities/Questions Answered by Expert Barbara Uggen-Davis
| Subject | Date Asked |
| EDS professional help in British Columbia | 1/26/2012 |
| Q: I was diagnosed with non-severe EDS (joint hypermobility and chronic pain from physical trauma) ... A: Sorry for the delay in getting back to you. I have emailed a friend with EDS in Canada who may be ... | |
| VEDS | 9/16/2011 |
| Q: I am scared that I might have VEDS. I know you're not a doctor, but I was wondering if you were ... A: Your doctor can take the skin biopsy and ship it to the lab in Washington for testing. ... | |
| VEDS | 9/15/2011 |
| Q: I am scared that I might have VEDS. I know you're not a doctor, but I was wondering if you were ... A: Yes, I am familiar with VEDS and can often recognize the distinct facial features. However, facial ... | |
| Symptoms & Diagnosis | 3/1/2011 |
| Q: I happened upon a description of Ehlers-Danlos last week and was struck by how many of the symptoms ... A: Lisa, You certainly have enough of the traditional EDS signs/symptoms to make it worth ... | |
| My hands and feets shivers of cold | 2/15/2011 |
| Q: Peace be upon you O, brother barbara I am suffering from chilliness on my hands and feets.Whenever ... A: My expertise is in specifically Ehlers-Danlos Syndrome, a connective tissue disorder. Cold ... | |
| EDS Doc in Phoenix area | 2/14/2011 |
| Q: I'm 42 and have recently been diagnosed with EDS. What a relief to finally know what all my ... A: The problem with EDS is that there aren't really many "experts" or specialists in EDS. There are a ... | |
| EDS VASCULAR medication | 2/3/2011 |
| Q: This is a question I am embarrased to ask but am having serious problems. I have a confirmed ... A: Pain management and EDS is one of the toughest challenges. Finding the balance between pain meds ... | |
| Physical Therapy and EDS | 12/30/2010 |
| Q: I have extreme pain in my neck, shoulder, left elbow, knees and tail bone. I have EDS and wear a ... A: Physical therapy for EDS is one of those things that can be really beneficial if done right, or ... | |
| Help with my medications | 12/24/2010 |
| Q: My name is Susan. I have been unemployed for several months. I have Lupus. I am on several ... A: Susan, This is outside my area of expertise, but there are some options I know of. 1) Check with ... | |
| eds | 11/2/2010 |
| Q: do many people with eds have fatigue??? if so, why?? A: Yes, fatigue and even chronic fatigue syndrome have been linked with EDS. This study was actually ... | |
| Hey again | 10/3/2010 |
| Q: I asked you a question 3+ months ago I think about EDS. You mentioned Sticklers, going to see my ... A: I'm not a disability expert, so my best advice would be to consult an attorney that handles ... | |
| WHAT'S WRONG | 9/19/2010 |
| Q: I was wondering would you please tell me: can a person feel depressed in a wheelchair? Thanks A: My area of expertise is Ehlers-Danlos Syndrome, not disabilities in general. However, with respect ... | |
| Mis-diagnosed once, don't want it to happen again | 9/5/2010 |
| Q: I went to a genetic doc in 2008 to see if I had this disorder. She tested me on the Beighton Scale ... A: I've not read about body temp being connected to EDS, but I know MANY people with EDS, including me, ... | |
| Mis-diagnosed once, don't want it to happen again | 8/24/2010 |
| Q: I went to a genetic doc in 2008 to see if I had this disorder. She tested me on the Beighton Scale ... A: Sorry for the delay in getting back to you. This is a pretty long question and I want to give it a ... | |
| EDS | 8/11/2010 |
| Q: Damn was surprised to find this under disabilities. Been having a hard time getting on disability ... A: Russell, Your story certainly fits the pattern of most people with EDS. I'm not a doctor, so I ... | |
| Ehlers Danlos | 5/21/2010 |
| Q: I have a 6 year old just dx with this. How serious is it and what do I need to know. How bad will ... A: Lisa, First, I must preface my answer by saying I am not a doctor and cannot give medical advice. ... | |
| massage modalities for children with EDS | 5/3/2010 |
| Q: Are there any massage techniques I can use on my 3 yr. old daughter who has EDS? She doesn't have ... A: Christina, My father is a licensed massage practitioner and also has EDS. Since he is a far better ... | |
| EDS | 2/4/2009 |
| Q: I had custody of my 11 yr old nephew for a year. He Dx is joint hypermobility. I think he has EDS ... A: This sounds like it could be EDS. EDS type III, now called Hypermobile type EDS, is diagnosed with ... | |
| Ehlers Danlos Syndrome | 1/21/2009 |
| Q: I have Ehlers Danlos Sydrome and I am trying to find advice. I know because of the disorder I am not ... A: I don't know much about specifics of root canals, although I know several people with EDS who have ... | |
| EDS question | 1/9/2009 |
| Q: My daughter in 21 and has EDS. She has a lot of joint pain and problems with dislocations. Going ... A: Check into the department of vocational rehabilitation. DVR provides accommodations to help her get ... | |
| referral of doctor in phoenix area | 1/8/2009 |
| Q: I am a in search of an experienced doctor in the Phoenix area. I was hoping that someone that has ... A: I am not in the Phx area and don't know of any docs there, but I do know someone with EDS who lived ... | |
| Ehlers-Danlos Syndrome & Surgeries | 12/28/2008 |
| Q: Although I am only 37 years old, I feel I am aging in "dog years". With my first (hernia) surgery ... A: Most doctors are clueless about EDS. Your best bet to find a doctor familiar with EDS is to ask for ... | |
| EDS type III and pregnancy | 8/25/2008 |
| Q: You apparently responded to my question that I sent last week but the email that was sent to me only ... A: People with different types of EDS can varying symptoms. Another person with EDS, Maggie Buckley, ... | |
| EDS type III and pregnancy | 8/20/2008 |
| Q: I am about 5 weeks pg with my second child and was diagnosed with EDS type III earlier this year. I ... A: My first question for you is, have you had a skin biopsy test for VEDS? For many years, the skin ... | |
| ehlers-danlos type lll | 8/12/2008 |
| Q: Are we entitled to a disability car sticker or any disability help as my joints are degenerating as ... A: EDS can be a reason to get a disability plate/placard if your symptoms warrant it. EDS by itself ... | |
| Possible Future Disability Issue | 7/20/2008 |
| Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ... A: Mike, I am not an expert on social security disability (SSDI), so I encourage you to speak with a ... | |
| EDS | 7/17/2008 |
| Q: I am an Lic. Massage Therapist and a good friend of mine has a daughter with EDS. Her DR. ... A: Michael, I am going to refer your question to my father, Michael Uggen, LMP. He is a licensed ... | |
| C1-C2 fusion in a 5 year old | 4/22/2008 |
| Q: My 5 year old daughter is in the process of being diagnosed with EDS. She goes to clinic on May 14. ... A: Sorry to hear about your daughter's ordeal. I can't offer medical advice, particulary with fusions ... | |
| eds vascular type | 8/1/2007 |
| Q: ..I am a 37 year old lady who suffered a ruptured brain aneurysm in May 2006. This was preceeded by ... A: Let me preface first with a disclaimer - I'm not a doctor and can't give medical advice or answers. ... | |
| medical equipment costs | 12/2/2006 |
| Q: my father is a diabetic and has had amputations on both legs and has had 20 some operation in 3 yrs ... A: Heather, My area of knowledge is on Ehlers-Danlos Syndrome, so this question is somewhat outside my ... | |
| Ehlers Danlos Type IV | 7/5/2006 |
| Q: My husband was just diagnosed with Ehlers Danlos Type 4. The diagnosing physician recommended that ... A: Sorry to hear about your husband's diagnosis. I have type III (now called Hypermobile type) and ... | |
| EDS face. | 6/6/2005 |
| Q: ------------------------- brabara....thanks so much for your help....muchos appreciato!... ... A: Here is the info he sent to me... > I don't know of any specific excercises for TMJ. I do, > ... | |
| Ehlers Danlos and Workplace accomadation for ADA Compliance | 2/25/2005 |
| Q: My husband has EDS and is having problems getting his workplace to understand and provide ADA ... A: What accommodations does he need? What are his specific problems? I can help him with writing the ... | |
| Ehlers Danlos and Workplace accomadation for ADA Compliance | 2/24/2005 |
| Q: My husband has EDS and is having problems getting his workplace to understand and provide ADA ... A: They can't ask for anything more than a letter from the doctor that states that he has EDS, what ... | |
| Looking for information,,, | 9/12/2004 |
| Q: ! Oh yes...please do forward my problem to someone else who might be able to help, by all means! ... A: I sent your question to Mike Uggen, LMP. Mike is a licensed massage therapist in Seattle, WA. He ... | |
| EDS - general information | 7/27/2004 |
| Q: My boyfriend has EDS (classic type) I was wondering if you could give me some general psychological ... A: This is a very sensitive topic and not many organizations have wanted to tackle this discussion ... | |
| applyong for disability with eds.. | 3/26/2004 |
| Q: i have eds iv and am considering applying for disability. im 28 years old and have no clue what to ... A: I have not personally applied for SSDI, so I am not an expert in this aspect of dealing with EDS. I ... | |
| Back Pain with EDS | 12/8/2002 |
| Q: I am 33 years old and I have loose joints in all of my main limbs. About 2 years ago it started to ... A: Have you been officially diagnosed with EDS? If so, what type? How long have you known? Is your ... | |
Living With Disabilities
Answers by Expert:
Barbara Uggen-Davis
Top Expert on this page
Expertise
I can answer questions related to coping with Ehlers Danlos Syndrome including: bracing, symptoms, alternative therapies, support groups, etc. If your question does not relate to Ehlers-Danlos Syndrome, I am not able to answer you.
Experience
Although I am not a doctor, I have extensive experience in dealing with EDS from personal experience and from being actively involved in EDS Support and Education groups since 1994.
Organizations
EDS Today, Canadian Ehlers-Danlos Association, UK EDS Support Group.
Publications
I was both a writer and editor for EDS Today for 10 years.
Education/Credentials
I have a BA in Business Administration/Accounting and an MBA in Business Management/Information Systems. I work in the medical field with 12 years experience in over-the-counter bracing and support products. In 2007, I joined a medical technology company.
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