| Subject | Date Asked |
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| EDS | 2/4/2009 |
Q: I had custody of my 11 yr old nephew for a year. He Dx is joint hypermobility. I think he has EDS ...
A: This sounds like it could be EDS. EDS type III, now called Hypermobile type EDS, is diagnosed with ...
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| Ehlers Danlos Syndrome | 1/21/2009 |
Q: I have Ehlers Danlos Sydrome and I am trying to find advice. I know because of the disorder I am not ...
A: I don't know much about specifics of root canals, although I know several people with EDS who have ...
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| EDS question | 1/9/2009 |
Q: My daughter in 21 and has EDS. She has a lot of joint pain and problems with dislocations. Going ...
A: Check into the department of vocational rehabilitation. DVR provides accommodations to help her get ...
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| referral of doctor in phoenix area | 1/8/2009 |
Q: I am a in search of an experienced doctor in the Phoenix area. I was hoping that someone that has ...
A: I am not in the Phx area and don't know of any docs there, but I do know someone with EDS who lived ...
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| Ehlers-Danlos Syndrome & Surgeries | 12/28/2008 |
Q: Although I am only 37 years old, I feel I am aging in "dog years". With my first (hernia) surgery ...
A: Most doctors are clueless about EDS. Your best bet to find a doctor familiar with EDS is to ask for ...
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| EDS type III and pregnancy | 8/25/2008 |
Q: You apparently responded to my question that I sent last week but the email that was sent to me only ...
A: People with different types of EDS can varying symptoms. Another person with EDS, Maggie Buckley, ...
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| EDS type III and pregnancy | 8/20/2008 |
Q: I am about 5 weeks pg with my second child and was diagnosed with EDS type III earlier this year. I ...
A: My first question for you is, have you had a skin biopsy test for VEDS? For many years, the skin ...
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| ehlers-danlos type lll | 8/12/2008 |
Q: Are we entitled to a disability car sticker or any disability help as my joints are degenerating as ...
A: EDS can be a reason to get a disability plate/placard if your symptoms warrant it. EDS by itself ...
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| Possible Future Disability Issue | 7/20/2008 |
Q: I was sitting in a computer chair about two weeks ago, and after getting up I had a burning pain ...
A: Mike, I am not an expert on social security disability (SSDI), so I encourage you to speak with a ...
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| EDS | 7/17/2008 |
Q: I am an Lic. Massage Therapist and a good friend of mine has a daughter with EDS. Her DR. ...
A: Michael, I am going to refer your question to my father, Michael Uggen, LMP. He is a licensed ...
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| C1-C2 fusion in a 5 year old | 4/22/2008 |
Q: My 5 year old daughter is in the process of being diagnosed with EDS. She goes to clinic on May 14. ...
A: Sorry to hear about your daughter's ordeal. I can't offer medical advice, particulary with fusions ...
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| eds vascular type | 8/1/2007 |
Q: ..I am a 37 year old lady who suffered a ruptured brain aneurysm in May 2006. This was preceeded by ...
A: Let me preface first with a disclaimer - I'm not a doctor and can't give medical advice or answers. ...
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| medical equipment costs | 12/2/2006 |
Q: my father is a diabetic and has had amputations on both legs and has had 20 some operation in 3 yrs ...
A: Heather, My area of knowledge is on Ehlers-Danlos Syndrome, so this question is somewhat outside my ...
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| Ehlers Danlos Type IV | 7/5/2006 |
Q: My husband was just diagnosed with Ehlers Danlos Type 4. The diagnosing physician recommended that ...
A: Sorry to hear about your husband's diagnosis. I have type III (now called Hypermobile type) and ...
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| EDS face. | 6/6/2005 |
Q: ------------------------- brabara....thanks so much for your help....muchos appreciato!... ...
A: Here is the info he sent to me... > I don't know of any specific excercises for TMJ. I do, > ...
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| Ehlers Danlos and Workplace accomadation for ADA Compliance | 2/25/2005 |
Q: My husband has EDS and is having problems getting his workplace to understand and provide ADA ...
A: What accommodations does he need? What are his specific problems? I can help him with writing the ...
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| Ehlers Danlos and Workplace accomadation for ADA Compliance | 2/24/2005 |
Q: My husband has EDS and is having problems getting his workplace to understand and provide ADA ...
A: They can't ask for anything more than a letter from the doctor that states that he has EDS, what ...
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| Looking for information,,, | 9/12/2004 |
Q: ! Oh yes...please do forward my problem to someone else who might be able to help, by all means! ...
A: I sent your question to Mike Uggen, LMP. Mike is a licensed massage therapist in Seattle, WA. He ...
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| EDS - general information | 7/27/2004 |
Q: My boyfriend has EDS (classic type) I was wondering if you could give me some general psychological ...
A: This is a very sensitive topic and not many organizations have wanted to tackle this discussion ...
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| applyong for disability with eds.. | 3/26/2004 |
Q: i have eds iv and am considering applying for disability. im 28 years old and have no clue what to ...
A: I have not personally applied for SSDI, so I am not an expert in this aspect of dealing with EDS. I ...
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| Back Pain with EDS | 12/8/2002 |
Q: I am 33 years old and I have loose joints in all of my main limbs. About 2 years ago it started to ...
A: Have you been officially diagnosed with EDS? If so, what type? How long have you known? Is your ...
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