Lupus/Lupus

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Question
Hi, I have been experiencing night sweats for over a year and extreme fatigue, muscle ache on and off.  I saw my Doctor who did blood work.  The blood work showed I had very low vitamin B12 it was 1 and he sid it should be on a scale of 4-5.  He said I tested positive for an autoimmune disease the tilt was 1:640.  

He referred me to a rheumatologist, who said I did not have Lupus and wants to repeat the blood test in six months as the tilt was hight.

I have asthma, which over the last year has deteriorated from non exisit to quite severe.

Feeling rather confused with it all and I'm not sure what I should do next, I still feel unwell.  Any suggestions would be welcome or advice.  

Thank you.

Answer
Hello!
Thanks for writing.
To start with the obvious, did you get on a B12 regimen?
Make sure you take a good high quality B12. I bought some cheap stuff and it made me feel worse.
One good source is drmercola.com . Another good source is metagenics.

Low vitamin B will definitely leave you very tired.
Low vitamin D (which is largely due to lack of sun exposure) is linked with autoimmune diseases.

The rheumatologists in general can't really do much for you until you get sicker- then, once you have a bunch of symptoms, they can diagnose you clearly. I would much rather avoid the getting sicker route and try just getting well.

If I were in your shoes I'd be looking for a holistic health coach, or a functional medicine doctor (one who looks for the root causes of disease and fixes it with nutrition and supplements rather than drugs). This center has a whole staff of holistic health coaches. Rose is wonderful, very experienced, and could be of great support to you. Tell her I sent you.
http://highlevelwellnessonline.com/wp/who/

Maybe some chi gung as well, to restore your life force. Look for healing chi gung (not warrior chi gung). You can either look for a class or find a DVD or check on youtube for instructional videos. It's very gentle and easy to do.

My best wishes-

Carla Ulbrich

The Singing Patient: Author, Speaker, Humorous Songwriter and Entertainer

http://www.thesingingpatient.com
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http://tinyurl.com/348hroc - Carla's book "How Can You NOT Laugh at a Time Like This?"

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Carla Ulbrich

Expertise

I can answer questions such as "what is lupus?" (How common is it? Is it contagious? What are the symptoms? etc.). Also, I can answer questions such as "what are the available treatments for lupus?" (both standard and alternative). Really, I'll take almost any question on lupus, though. If I can't answer it, I'll be very surprised, but I'll also go find someone who can.

Experience

I've been living with lupus (SLE) since 1992. I've had three severe bouts with it, including symptoms such as kidney failure and stroke (if you can call having a stroke a "symptom"). I have completely regained my health, though I have to be mindful to take care of myself, lest I get sick again. I use both mainstream and alternative medicine, and have tried just about everything under the sun to alleviate symptoms. A lot of it worked.

Organizations
Lupus Foundation of America Association for Applied and Therapeutic Humor Toastmasters Folk Alliance

Publications
How Can You Not Laugh at a Time Like This? (Tell Me Press, pub.) What is Laughter Lupus Sundial Newsletter

Education/Credentials
BA in music (UNC-Greensboro)

Awards and Honors
Novelty Song of the Year, Just Plain Folk Awards Winner, South Florida Folk Festival Song Competition Lupus Foundation of America Seal of Approval (for book)

Past/Present Clients
Medicaid Conference Alaska Palliative Care Conference Right at Home Health Care SePHIMA Anritsu Club Med Nursing in Practice

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