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Lupus/allergies, lupus or something else

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Question
do not know where to start..I am female/54/diabetic/bad control/post meno/anxiety/hypertension/high lipids/stomach issues like reflux and IBS, maybe others..in mid March was very sick with sinusitis..that began the weird lip swelling..first the half of my top lip..moved to half of low lip..(outer lips) and my tongue on either the tip or sides..one side at a time..take benadryl everywhere I go...panicking..no rhyme or reason..kept food list..meds too..on 2 different insulins. glucatrol xl., benicar, metformin, protonix, tranxene, OTc like pepto bismol and mylanta and alka seltzers...aot...now end of May it still happens..so far either ip or tongue...afraid of getting in windpipe..Dr seems unconcerned..I noticed suddenly american cheese then breaded chicken at Jacks but not kfs, then ate an egg and in grocery store 5 hrs later it did it...then when daughter sat by me it happened on my lip right then..sriving me crazt; scared for my life as Benadryl takes a few hrs to work and some tmes I sleep thru night from benadryl and places get smaller but go away the next day...help me..and another thing..it happened once when I had ONE bite of a cheddar cheese cracker..today I foolisly swallowed my pills with a swig of mylanta and pepto and then it happened on tongue..only thing ate earlier was a tiny chicken finger from Jacks...IF I ever got swollen in windpipe would I feel aa lump like my tongue and lips do or would I just start to smother???is it lupus..asking casue a flat patch of white spots on left side of face like part of skin, when I get hot it shows up more...kinda a lacy pattern...5 yrs ago kept the butterfly look, but not now...two cousins have it

Answer
Hi Jan-

My heart goes out to you. But I want you to know there is hope!

I have had lupus for 22 years, and although it is not widely, known, 100% of lupus patients have food allergies. And the most common allergies are gluten (wheat) and dairy. Eggs are on that list as well. From your own description, it sounds like you react to dairy/ cheese and wheat.

I remember reading a story in the book "Food: your miracle medicine" of a woman whose severe, crippling rheumatoid arthritis was caused entirely by her addiction to cheese (she was eating a pound of cheese a day!). That story really opened my eyes about what I put in my mouth.

I'm going to give you a few suggestions
1) see if you can carry an epipen. It will work much faster than taking oral benadryl. If you can't, then get the liquid benadryl, which will get into your system faster than a pill will.

2) check out this post by Dr. Mark Hyman
http://www.huffingtonpost.com/dr-mark-hyman/how-to-stop-attacking-you_b_657395.h

3) start tracking your symptoms and what you eat. Here's a free tool:
http://thesingingpatient.com/free_offer/

4) Try going for one week without eating any wheat, eggs, or dairy. On the 8th day, add back in one of those (either the wheat dairy or eggs, but not more than one of them) and see if any of those symptoms show up within 24-48 hours. Keep written record. On the 11th day, add back in a 2nd food (wheat, dairy, or eggs) and keep track. and on the 14th day, add in the last food you removed. See what happens. There are all kinds of blood tests you can have taken, and some are quite expensive, but doing this elimination diet is actually the most effective (and cheapest!) way to find out how your body responds to foods.

I eliminated gluten (wheat), all dairy, eggs, artificial sweeteners, and shrimp, and I have gone from a severe lupus flare (heart failure, kidney failure, anemia, stroke) and taking 9 meds and chemo to being on no lupus meds at all. I'm even healthier than a number of my "healthy" friends. Food is powerful! It can harm, and it can heal.

You are on the right track. Your instincts are telling you that what you eat is aggravating your body. And that is definitely in line with what the more progressive doctors are discovering about all autoimmune disorders.

Hugs and best wishes!
If you think of it, as you heal, write in with your progress report, even if you're frustrated. I'm here to help as much as I can-
Carla Ulbrich
The Singing Patient

Lupus

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Carla Ulbrich

Expertise

I can answer questions such as "what is lupus?" (How common is it? Is it contagious? What are the symptoms? etc.). Also, I can answer questions such as "what are the available treatments for lupus?" (both standard and alternative). Really, I'll take almost any question on lupus, though. If I can't answer it, I'll be very surprised, but I'll also go find someone who can.

Experience

I've been living with lupus (SLE) since 1992. I've had three severe bouts with it, including symptoms such as kidney failure and stroke (if you can call having a stroke a "symptom"). I have completely regained my health, though I have to be mindful to take care of myself, lest I get sick again. I use both mainstream and alternative medicine, and have tried just about everything under the sun to alleviate symptoms. A lot of it worked.

Organizations
Lupus Foundation of America Association for Applied and Therapeutic Humor Toastmasters Folk Alliance

Publications
How Can You Not Laugh at a Time Like This? (Tell Me Press, pub.) What is Laughter Lupus Sundial Newsletter

Education/Credentials
BA in music (UNC-Greensboro)

Awards and Honors
Novelty Song of the Year, Just Plain Folk Awards Winner, South Florida Folk Festival Song Competition Lupus Foundation of America Seal of Approval (for book)

Past/Present Clients
Medicaid Conference Alaska Palliative Care Conference Right at Home Health Care SePHIMA Anritsu Club Med Nursing in Practice

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