| Subject | Date Asked |
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| i have lupus | 11/10/2009 |
Q: i have had lupus for 17 years and went though 1 trasplant already but know they are telling me i ...
A: You have been through so much in your life. I can’t imagine how frustrated you must feel. You have ...
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| Positive ANA & Anti dsDNA | 11/7/2009 |
Q: It usually ranges from 99-100.3. It presents itself everyday. I have been through the ringer with ...
A: YES! Yes! Yes! Autoimmune diseases are Head gamers. Antibodies come and go. Blood work goes up and ...
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| Positive ANA & Anti dsDNA | 11/4/2009 |
Q: It usually ranges from 99-100.3. It presents itself everyday. I have been through the ringer with ...
A: Hello! Thanks for writing. It seems like you are going through alot right now. it is time you ...
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| SLE Mental Disorder | 9/30/2009 |
Q: My uncle is facing this SLE Mental Disorder Please help me and my uncle related to this if u people ...
A: Sheikh I am not a doctor unfortunately. I am a person who has Lupus and has had neuropsychiatric ...
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| Malar Rash? Anti-centromere pattern | 9/29/2009 |
Q: About 10 years ago I developed a rash on my face and joint pain. I have been treated for rosacea for ...
A: Hello! Sorry I have taken so long to get back to you. Your appointment has come and gone. I hope it ...
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| Lupus! and Diabetes | 9/29/2009 |
Q: Well can diabetes stem from having lupus? If so,how could it develop from that?
A: My are you the inquisitive type. Diabetes is a separate disorder from Lupus and not all forms of ...
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| LUPUS CAN IT MAKE YOU GO CRAZY? | 9/25/2009 |
Q: Well how does lupus affect the brain? Like how does it make you go crazy? ANSWER: Dear Corrina: ...
A: Unfortunately the Answer is yes. Babies and children can get it. When babies get it is called ...
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| Low CRP AND ESR | 9/18/2009 |
Q: My identical twin sister and I both have immune deficiency. (not Aids or HIV). Specifically I have ...
A: HELLO TO MY NEW MATE: I LOVE AUSTRALIA AND YOU AUSSIES. YOU GUYS ARE THE NICEST FRIENDLIEST PEOPLE ...
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| SLE, colitis, mental illness? | 9/13/2009 |
Q: I have SLE, hypothyroidism and colitis. For the past year I've experienced a worsening in my ...
A: Sheesh! You are a mess! let me give you a hug before I begin this long and complicated Journey with ...
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| LUPUS CAN IT MAKE YOU GO CRAZY? | 9/12/2009 |
Q: Well how does lupus affect the brain? Like how does it make you go crazy? ANSWER: Dear Corrina: ...
A: People with lupus often experience headaches, confusion, difficulty with concentrating, fatigue and ...
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| Tyramine | 9/8/2009 |
Q: Cynthia, I have Mitral Valve Prolapse Syndrome and have an extremely sensitive nervous system. I ...
A: Hello and thanks for writing me your question. I can relate to what you discussed in your letter. ...
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| Do I have lupus or just rheumatoid arthritis? | 9/7/2009 |
Q: I got infertility problem for 6 years. In February, I got pregnant but then got a miscarriage right ...
A: This is a tough one that eludes even the best doctors. I AM NOT A DOCTOR, let me get this straight. ...
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| Loosing my hair | 8/29/2009 |
Q: Hi my name is Delores and I have been diagnose with Lupus and since than I am loosing my hair really ...
A: I am not the timeliest with my responses but I do care! I apologize for not getting back to you ...
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| DsDna and Lupus | 8/24/2009 |
Q: A Rheumatologist diagnosed me with Lupus based solely on high ANA test results(ssDNA 770 dsDNA 137). ...
A: YES the DsDNA is typically Almost always seen with Lupus but there is exceptiosn which I shared with ...
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| Lupus and Plaquenil | 8/21/2009 |
Q: Further to my email yesterday. I have only 1 marker for Lupus, but my dr wants me to start taking ...
A: It seems that thankfully whatever you have is mild. What marker is the doctor referring to that is ...
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| DsDna and Lupus | 8/20/2009 |
Q: A Rheumatologist diagnosed me with Lupus based solely on high ANA test results(ssDNA 770 dsDNA 137). ...
A: I SCREWED UP! I APOLOGIZE. The way these letters were delivered, I did not read this letter first ...
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| ANA titer 1:640 | 8/14/2009 |
Q: I have had 3 doctors tell me that I have Lupus. My recent doctor saw me for literally 5 minutes ...
A: I am sorry to hear you have been through so much garbage. It sounds like this new doctor has some ...
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| fava beans | 8/14/2009 |
Q: I have lupus and I was recently at my rhumatologist and she ask me did I eat fava beans. I like ...
A: Hello! I wonder if your rheumatologist's last name is Lector? lol I don't know if you seen or ...
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| Lupus!! | 8/13/2009 |
Q: Can lupus kill someone? ANSWER: DEAR CGLLR: WOW! IS THAT A VERY SMALL BUT MIGHTY QUESTION! Yes ...
A: Wow is you a person with a barrage of questions. That is okay. My desire is to educate the public ...
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| Lupus!! | 8/13/2009 |
Q: Can lupus kill someone? ANSWER: DEAR CGLLR: WOW! IS THAT A VERY SMALL BUT MIGHTY QUESTION! Yes ...
A: Nope Lupus is not contagious and Nope there is no current cure for it. When a person develops an ...
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| daughter with JRA may have lupus | 8/12/2009 |
Q: I have a 11 year old daughter who was diagnosed with Systemic JRA about 5 years ago. She had 108 ...
A: YOU ARE NOT AT FAULT FOR ANYTHING! I know you feel the Miralax may have caused her some problems ...
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| Lupus!! | 8/9/2009 |
Q: Can lupus kill someone?
A: WOW! IS THAT A VERY SMALL BUT MIGHTY QUESTION! Yes Lupus can kill. Lupus can cause strokes, ...
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| lupus | 8/4/2009 |
Q: Cynthia , I have lupus and i feel very weak sometimes but the pain is getting very bad in my back ...
A: Let me begin by telling you, that you do not have to be formal with me. Cynthia is just fine. ...
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| daughter with JRA may have lupus | 8/3/2009 |
Q: I have a 11 year old daughter who was diagnosed with Systemic JRA about 5 years ago. She had 108 ...
A: First let me begin by apologizing for taking so long. I am not going to bore you with excuses on ...
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| LUPUS | 7/27/2009 |
Q: ANAw/Reflex positive (Abn:A) RNP of 3 Anti-dsDNA Antibodies 5 SED-Rate -27 What does the number ...
A: I will do my best to answer your questions as succinctly as I can. I am not a doctor but I am try ...
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| Lupus | 7/21/2009 |
Q: I read your response to Maria's question about her hair loss associated with Lupus. I too have been ...
A: I cant imagine how frustrated you must feel. Hair loss is something most women would not enjoy ...
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| my 9 yr old daughter who's been very sick | 7/13/2009 |
Q: My 9 yr old daughter has been very sick now for around 9 months. It started with her throwing up on ...
A: HUGS I am so sorry I took this long to respond to you. A day is a year when you have a loved one ...
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| lupus sle mixed ctd sjogerns | 6/12/2009 |
Q: when dr run tests we are never told what it stand s for!! im positive ana at 427 anti ssa and ...
A: Doctors can frustrate us sometimes, I know but a lot of them really do care. It is just that ...
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| Lupus Questions | 6/12/2009 |
Q: My name is Michele, I am 53 yrs old and I have been having so many symptoms hope that you can give ...
A: GOD LOVE YOU! You are a very very special person. My hat and heart is off to you for being a ...
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| Lupus Questions | 6/8/2009 |
Q: My name is Michele, I am 53 yrs old and I have been having so many symptoms hope that you can give ...
A: The computer states that i had answered your question and quite frankly, I do not remember doing ...
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| maybe Lupus | 5/28/2009 |
Q: My rheumatologist gave up on me and said he could do no more. Now my PCP ordered blood work came ...
A: Let me begin by giving you a hug then an apology. I am sorry I took so long to write you back. I ...
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| SJOGRENSAB, Anti-SS-A/SS-B | 5/16/2009 |
Q: I have a question on my daughter here are results I got and cant get anyone to give me clear answers ...
A: Let me begin by giving you a hug. I know you’re scared. Anything unusual is scary. All that you ...
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| neuropsychiatric symptons of lupus and divorce | 5/14/2009 |
Q: My wife is 38, has mild to medium active lupus and we have been happily married for 14 years. About ...
A: There are blood tests that can tell if a person is pre, peri or post menopausal. IT IS NOT NORMAL ...
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| blood test | 5/13/2009 |
Q: ok this is my question, i just have received my blood test results and i would like some help ...
A: I hope this letter finds you hanging in. Let me begin by sharing with you what I have shared with ...
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| neuropsychiatric symptons of lupus and divorce | 5/10/2009 |
Q: My wife is 38, has mild to medium active lupus and we have been happily married for 14 years. About ...
A: My heart and prayers go out to you and your wife. Let me begin by saying that I feel your pain. ...
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| Lupus or something else | 5/8/2009 |
Q: I was diagnosed with hashimoto thyroiditis, osteopenia, and i have an enlarged liver, and ...
A: It stinks that you are without medical insurance yet there is a way around this. Many cities have ...
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| Lupus or something else | 5/7/2009 |
Q: I was diagnosed with hashimoto thyroiditis, osteopenia, and i have an enlarged liver, and ...
A: let me begin by telling you that Fibromyalgia does not give you positive bloodwork. Fibromyalgia ...
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| Significance of a worsening titer? | 5/7/2009 |
Q: I have had a + ANA with the centromere pattern since 12/07. My titer in 12/07 was 1:80, then 1:320 ...
A: There is alot of confusion about ANAs and the significance of theri patterns and titers. You arenot ...
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| Lupus Bloodwork inconclusive,,,pls help me sort this out | 4/30/2009 |
Q: Any information you can provide would be most helpful. I just got my blood work back from my Dr., ...
A: Wow are you experiencing a myriad of symptoms. It must be frustrating for you. Scleroderma is ...
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| positive for sle lupus sjogerns | 4/29/2009 |
Q: hello for yrs poeple have made fun of me and sent me to mental health tried many meds do most ...
A: YOU ARE NOT CRAZY! I do not know how many times Lupus patients have written me and I have had to ...
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| symptoms | 4/26/2009 |
Q: Recent bloodwork - the following are all the items that came back either low or high: CRP-11.9 ...
A: I received your letter and Iam sorry it took me so long to get back to you. Your blood work shows a ...
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| Lupus and mental health symptoms | 4/15/2009 |
Q: I just read your reply to Micki. I have been experiencing so many of the same problems and coming up ...
A: YOU ARE NOT CRAZY! YOU ARE NOT INSANE! YOU HAVE PHYSICAL PROBLEMS!!!!!!!!!!!! Let me get that ...
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| Lab test Results and Autoimmune Disease | 4/11/2009 |
Q: Lab Tests - anti nuclear blood tesT Hello D ear CINTHEA.Please tell me what the following test ...
A: I do not know if this is your first letter or your second one but it includes a lot more information ...
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| lab tests are so frustarating | 4/10/2009 |
Q: My doctor is testing me for an autoimmune disease and one test came back positive and one came back ...
A: Autoimmunity seems to be a very popular topic. I have had numerous emails all asking for the same ...
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| New Tampa Bay resident needs Clinic | 4/10/2009 |
Q: A very dear friend of mine is on the verge of moving to Florida, he has been diagnosed for many ...
A: Can I go with him? I live in the Poconos where it is damp cold and miserable right now. I need ...
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| in the process of being diagnosed | 4/10/2009 |
Q: I am seventeen almost eighteen years old and I am in the early process of being tested for ...
A: KIM: Hello I am sorry I took so long to get back to you. I care I really do. It is just that ...
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| do i have lupus ? | 4/9/2009 |
Q: my ? is i had a normal ana first one done but an abnormal c3 level along with b12 dificiency i have ...
A: GOD BLESS YOU! Any one who is willing to donate a kidney to their mom deserves my love and deepest ...
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| LUPUS AN NEUROPSYCH SYMPTOMS | 4/7/2009 |
Q: maybe you can give me an answer FOR FEELING SO SICK ALL THE TIME.I AM SO TIRED ALL THE TIME.I AM ON ...
A: Wow!!! When I read your symptoms I can tell you are definitely suffering. A lot of what you ...
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| Lupus and Advocating for Yourself | 4/5/2009 |
Q: My 20 year old daughter had a positive result for an ANA blood test. The advice nurse who gave my ...
A: Hello! I really wish that I did not have to read letters like yours in 2009. It is letters like ...
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| Native Americans and Lupus | 3/30/2009 |
Q: anti ds dna ab qn 4 antinuclear atibodies direct 427 ssa 427 ssb 152 i was told along time ago ...
A: Hello! How are you? Thanks for writing me I Hope I can help. I reas your note and saw your lab ...
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| Lupus and Hair loss can it be prevented? | 3/24/2009 |
Q: my name is Bailey and I'm 16 years old. My doctors think I have lupus and I'm getting tested for it ...
A: I am sorry to see that you have not been feeling good. Hair loss is a symptom of Lupus but it is ...
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| hair loss in lupus | 3/24/2009 |
Q: I'm a young mom, and have been suffering diffuse-type hairloss for 2 1/2 years. Last year I also ...
A: Hello my new Aussie friend. How is everything down under? Thanks for all yoyur wonderful ...
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| thanks for your info in your lupus response | 3/13/2009 |
Q: wow Cynthia, my good friend has had Lupus since she was 17 and is now 33. She has been on prednizone ...
A: I believe in miracle and yes I believe in God! I have seen so many things in my life that it would ...
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| hair loss in lupus | 3/11/2009 |
Q: I'm a young mom, and have been suffering diffuse-type hairloss for 2 1/2 years. Last year I also ...
A: My Dear Sweet Maria: I am not the timeliest with my responses but I do care! I apologize for not ...
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| Anti-cardiolipin , Anti-coagulant tests | 3/10/2009 |
Q: my anti phospholipid is 2.6 .my anti cardiolipin is 1.6 and my lupus anti bady coagolant is 30 is it ...
A: Let me begin by telling you that you are going to be alright. The tests you describe are ...
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| Lupus and exercise | 3/9/2009 |
Q: IS THERE AN EXCERSISE PROGRAM THAT IS SAFE FOR LUPUS PATIENTS AND IF SO WHERE CAN I FIND ONE
A: YOU ARE A SMART MAN! Many individuals shy away from even the thought of exercise because, lupus ...
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| plaquenil | 3/3/2009 |
Q: i suffer from ra/lupus ive been taking presidone but my sugar has been very high so the doctor has ...
A: It is not uncommon for people to have concerns about the medication they are taking for any ...
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| Alopecia Areata and ANA Titer | 2/26/2009 |
Q: My niece is 16 yrs. old and is loosing her hair. She was referred to dermatologist and was ...
A: Let me begin by telling you that Alopecia Areata IS an Autoiimune disease. When a person develops ...
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| ANA test | 2/19/2009 |
Q: Does a Lupus patients ANA test always need to show positive...even in remission? Or does it only ...
A: This is an excellent question and one that baffles even the most seasoned rheumatologist. I am one ...
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| Lupus flare or flu lingering? | 2/19/2009 |
Q: I recently went to my family doctor because I was feeling terrible after having my son. My symtoms ...
A: I am sorry you are not feeling good. Congratulations on the birth of your boy. Pregnancy is a ...
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| Childhood Lupus and Genetics | 2/11/2009 |
Q: Lupus runs in my family on my father's side. My aunt had it and my younger sister has it. She was ...
A: You ask excellent questions!!!! I am sorry it took me a month to get back to you. Your question ...
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| Lupus and Low Platelets | 2/4/2009 |
Q: i have sle, 6 years now, and i have always had a drop in platlets when i flare, i have never had a ...
A: SANDEE if you feel this sick and your platelets are that low you should have been admitted to a ...
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| A Few Things | 1/26/2009 |
Q: I am a 34 year old female currently experiencing a few strange symptoms and worried. Every once in ...
A: I do care and want to help you the best I can. Be re-assured I know what you are going through I ...
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| lupus and crest disease | 1/20/2009 |
Q: also if you have had a auto amune blood test for lupus that came back negative twice mean you have ...
A: Hello! I hope this letter finds you okay. Let me begin by thanking you for writing to me and ...
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| Can low-grade lupus make you have the same symptons as lupus? | 1/15/2009 |
Q: HI I WAS Dianoised wiht low grade lupus i really be sick all the time sometimes i cant get out ...
A: Jennifer: First I need to know what you mean by "low grade" lupus? Does this mean a lupus that ...
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| Flu or flare? | 1/15/2009 |
Q: Finally a Lupus expert! I've had SLE for 8 years now (after birth of my daughter) and have been in ...
A: I am not a doctor. I am not a nurse but I care deeply about people and I have Lupus myself. I try ...
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| Anti-dsDNA | 12/7/2008 |
Q: I was recently diagnosed with lupus,RA and discovered I was pregnant in august. In my Lab results My ...
A: Let me begin by telling you that Hashimoto's is autoimmune and is seen alot with all types of ...
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| Trying to find answers | 12/3/2008 |
Q: I am a 24 year old female and am just trying to figure out what could be going on. I went to my PCP ...
A: • Dear Allison: • • Let me begin by apologizing for taking so long to respond to your email. I do ...
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| Anti-dsDNA | 12/3/2008 |
Q: I was recently diagnosed with lupus,RA and discovered I was pregnant in august. In my Lab results My ...
A: Hello! Congratulations on your pregnancy! How are things going for you? I bet you’re pretty excited ...
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| just found out i might have lupus | 11/12/2008 |
Q: just found out i might have lupus my hands look like the have blisters and bruises on the and the ...
A: Let me begin by telling you that it is going to be okay. Be diagnosed with anything at first is ...
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| Lupus | 11/11/2008 |
Q: I have been sick for almost four years now I have seen 2 immunologists and one rheumatologist. My ...
A: Let me begin by saying YOU ARE NOT CRAZY!!!!!! Sorry but that line cannot be used anymore. YOUR ...
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| ana titer | 11/6/2008 |
Q: Over the last two years my ana titer tests have been: positive 1620 positive 1320 positive speckled ...
A: Lupus is an autoimmune disease. Lupus can never be cured BUT it can go in and out of remission. It ...
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| C-reactive Protein test - definitive? | 11/2/2008 |
Q: I don't know if my questions are ones you can answer but I'm not sure what to do next, or if there ...
A: BRANDI: Let me begin by saying to you that there are no 100 % definitive tests for Lupus. Lupus ...
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| high ANA, anticentromere pattern | 10/21/2008 |
Q: I have a 16-year-old son with Mixed Connective Tissue Disease. After more than a year of becoming ...
A: Let me begin by telling you that I am not a doctor, so all my experience is based on my own personal ...
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