AboutCarol Expertise I can answer questions about Lyme disease and recommend websites where one can find good, up-to-date information. I can also tell you how to find a Lyme specialist which is critical if you or anyone you know suspects that he or she may have Lyme disease. I can, also, provide you with a symptoms list.
Experience I suffered for 2 years with a bad case of neurological Lyme disease & finished a 37-month course of antibiotics in March, 2007. I went undiagnosed for 2 years, & saw a total of 14 various doctors and 'ologists. I attended a two-day Lyme conference in the spring of 2005 and I keep myself current on the topic of Lyme disease.
I quickly learned that YOU CAN HAVE A FLAMING CASE OF LYME DISEASE AND STILL HAVE NEGATIVE TEST RESULTS! It is essential for anyone who suspects that he/she may have Lyme disease to be tested for the co-infections that can occur with it. Only a Lyme specialist can perform these tests and make these diagnoses.
Question QUESTION: I review the list of symptoms & so, so many are problems my 34 yr old son is having. However, he does have one symptom that does not appear on this list. He has on and off had sores on the base of his neck, even down the center of the spine, but also seems to get sores on the palm of his hand. I'm not sure how to describe them - more like dime size swellen with no height to them. Is there anything out there that discusses anything similar?
Thanks!
ANSWER: Hi, Jean...
There are many Lymies that have described bizarre rashes, spots and sores that come and go. You may try posting that on LymeNet and see what type of responses you get.
I would not dismiss this as a complication of Lyme disease.
I would advise that the next time this occurs to get a picture of them. This would be very useful when seeing a Lyme specialist.
Carol
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QUESTION: Thanks for being there for all of us. I have spent the entire day researching and following the instructions to locate an LLMD in Bucks County, PA. And I certainly understand why you can't give me this information. However, my question is that I noticed there was someone else searching in Bucks County - is it possible to send me her e-mail or forward mine to her - .
I am dealing with some horrible burning issues and just don't know where to turn. Dr. is prescribing meds that caused lots of side effects last time taken.
Answer Hi, Jean...
You are very welcome!
I don't maintain a list of all the Lyme doctors in the US. That would be quite impossible. If I knew of this doctor's name and number, I'd surely give it to you.
When I get these questions, I do not have access to people's email addresses unless they email me directly because I post mine sometimes. However, I do keep my "SENT" messages so if you could provide me with the link of the post you are talking about, perhaps it would jar my memory and I could find if I have emailed this person. I get sooooo much email, you wouldn't believe it. If I can find it, I'll be glad to hook you two up.
