Lyme Disease/Lyme related severe headache
diana clock wrote at 2010-05-26 19:42:36
we have had the same problems with our 14 year old son. not diagnosed yet after 2 months of pain, head, stomach, all over body aches, sometimes worse than other times. Lyme disease is a very haunting experience for the body as we are finding out on our own. we live in OK and the ID dr. claims we do not have lyme disease here...nonsense the medical community needs to wake and help these people if they can
Cindi zanki wrote at 2010-10-18 16:13:59
Can you please tell me the name of the eye doctor in Lancaster I have lyme and migrains and my vision is getting worse. I would like to go to someone so caring in the feild.
Chris wrote at 2011-02-09 13:28:12
Thank you for posting this Carol. It was a great help. My daughter too has suffered from Lyme disease, now 12 years. Headaches return even after 7 months of IV antibiotics and numerous oral antibiotics not to even mention 11 different doctors.Brain scan did show both sides of her brain with Lyme and after the IV's the right side only cleared.I don't live far from Lancaster Pa. so I would love to know the neuro-ophthalmologist there.Thanks again. Chris
rainbow wrote at 2011-12-02 22:56:35
I agree with Carol about head-related issues caused by lyme. Minocycline is the way to go. I had massive herx first time on mino, I thought I was going to ER. Second time, it was better. Third time, it is clearing my head issues after two weeks. I am at 100mg twice per day. I will continue until I am symptom free...
brett wrote at 2012-05-31 21:29:50
Carbamazepine (Tegretol) was the only thing and i mean the only thing that helped my lyme headaches...hope that helps
Karen wrote at 2013-01-04 04:00:47
I would also like to see this doctor in Lancaster. How do I send you my contact info? Thanks, Karen
Lcagee wrote at 2013-09-21 18:59:22
Did anyones headaches ever go away? Mine have lasted a year. Related to tic but in time but all my tests negative. No one seems interested in trying abx but id try anything. Mri negative. Lp negative.
Gena wrote at 2013-10-06 12:23:38
I would also like the name of this neuro opthamologist in Lancaster. My daughter is suffering from extremely painful migraines that have landed us in the ER twice this week. Says she feels as if her right eye is coming out of her head. Been off the antibiotics for Lyme treatment for 6 months and headaches are back with a vengeance.
Cindy wrote at 2015-01-17 21:26:18
I need the Lancaster doctor's info too! My 11 year old daughter is suffering. Is Carol still here????