About CONNIE FOWLER Expertise MAIN QUESTION ARE CHIARI MALFORMATION ,TETHERD CORD SYNDROME WITH RELATED DISORDER.
ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus,
Experience I can help with questions on Chiari malformation and related disorders like ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus, I went four years with not getting proper help for my son with Education and Medical issues. The Chiari type I malformation is a rare, neuromuscular deformity at which most Neurosurgeons believe it is present at birth. The brain exists in a cavity surrounded by bone. The brainstem normally sits in a funnel-like cavity just above the spinal cord. The problem occurs when the posterior fossa is not developed properly. Instead of the brainstem sitting in its proper space, the brainstem is pushed downward through the skull, causing pressure on the cerebellum and spinal cord Another concerns is the normal flow of CSF through this area because the cerebellum are pushed into the opening of the base of the skull meeting the spine can cause obstruction to its natural flow. (This downward displacement of the cerebellar tonsils is called the Chiari malformation.)
Organizations The Organization that I belong to is Our Chiari kids, Keeping kids healthy, Child care network,
Education/Credentials December 2000 my son went in for brain decompression his Filum released (Tethered cord syndrome) as these are not a done deal surgery and we have years of doctor appointment and possible more surgery's, my heart and soul is in the understanding and research of this condition that the Doctor said my son was born with, as I am finding out this can be a genetic disorder as my self I have been diagnosed with Chiari and my oldest son has Scoliosis which is a sign of Chiari malformation.Because this is a rare disorder not to many people know of it or understand the disability that can come with it if left untreated, this is my goal to bring more awareness and be a support to those who have been told they too may have Chiari Malformation.
Basic child care resource, Child developement, Child Behavior, Reaching to new heights in the research of chiari Malformation.
Question Hello Dr. Fowler,
I am a very healthy 33 year old female. Suddenly on December 15th I started getting migraine headaches. Severe sensitivity to light, sound and they always start with diarrhea. I've had a whopping NINE in these last 4 weeks! I've been keeping a journal and definately seeing a pattern of foods that are triggering them. I seem to be hypersensetive to MSG, caffeine, chocolate, cheese and pretty much anything salty. So two questions-
1.) Any thoughts on why, all of the sudden, would I develop this hypersensitivity to these foods I've always eaten my whole life? I was worried so I went to the doctor and he just loaded me up with a bunch of pain killer samples.
Question #2- Should I be concerned do you think? I live in a small town where there is no neurologist, but if need be I can drive 100 miles into the city.
Appreciate any insight,
Amber
Answer Hi Amber Thank you for your question, Some people as they get older or who had a serious illness end up with a weaker immune system, food, sound, light, heat, cold Ect, will become more sensitive to them.
I do feel you may need to seek out a specialist they can help pin point what is causing your symptoms, whether through blood work or MRI .
My personal opinion is you should not turn to pain meds this can make your symptoms worse.
Best regards, C.L.Fowler
