About CONNIE FOWLER Expertise MAIN QUESTION ARE CHIARI MALFORMATION ,TETHERD CORD SYNDROME WITH RELATED DISORDER.
ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus,
Experience I can help with questions on Chiari malformation and related disorders like ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus, I went four years with not getting proper help for my son with Education and Medical issues. The Chiari type I malformation is a rare, neuromuscular deformity at which most Neurosurgeons believe it is present at birth. The brain exists in a cavity surrounded by bone. The brainstem normally sits in a funnel-like cavity just above the spinal cord. The problem occurs when the posterior fossa is not developed properly. Instead of the brainstem sitting in its proper space, the brainstem is pushed downward through the skull, causing pressure on the cerebellum and spinal cord Another concerns is the normal flow of CSF through this area because the cerebellum are pushed into the opening of the base of the skull meeting the spine can cause obstruction to its natural flow. (This downward displacement of the cerebellar tonsils is called the Chiari malformation.)
Organizations The Organization that I belong to is Our Chiari kids, Keeping kids healthy, Child care network,
Education/Credentials December 2000 my son went in for brain decompression his Filum released (Tethered cord syndrome) as these are not a done deal surgery and we have years of doctor appointment and possible more surgery's, my heart and soul is in the understanding and research of this condition that the Doctor said my son was born with, as I am finding out this can be a genetic disorder as my self I have been diagnosed with Chiari and my oldest son has Scoliosis which is a sign of Chiari malformation.Because this is a rare disorder not to many people know of it or understand the disability that can come with it if left untreated, this is my goal to bring more awareness and be a support to those who have been told they too may have Chiari Malformation.
Basic child care resource, Child developement, Child Behavior, Reaching to new heights in the research of chiari Malformation.
Question Three nights ago, my 4 month old nephew suffered what seemed to be a seizure. It was 3 a.m. and he cried out in his sleep, my sister assumed it was b/c he wanted to be nursed so she attempted to nurse him. He wouldn't take it, and that never happens. She held him up to take a look and his eyes were rolling in the back of his head. It was as if he was trying to open them but could not. She then brought him to me, and it was as if I was holding a doll baby. His arms and legs were limp, his head was shaking slightly and his stare was very glazed over. I called his name hoping he's smile, or cry, anything, but I got nothing. By then we'd called 911 and he was just fine. He yawned and laid his head on my shoulder and smiled at his mom. As I got him dressed he was giggling, talking, kicking like normal. Both the ER doctor as well as his pediatrician said he was in a sleep-like state. He has been just fine since then. My sister wants him referred to a neurologist. Do you think that is necessary? If my nephew did not have a seizure and was not in a "sleep-like" state, is there another explanation for what happened? I thoroughly appreciate your time and advice. Thanks!!
- Camille
Answer Hi Camille, Thank you for your question.
From what you have told me I honestly feel a infant that young having a seizer should see a Neurologist even if it is for precaution measures.
The only other thing I could think of would be night terror Although most common in children between the ages of 2 and 6 years, they can occur at almost any age.
Children who have night terrors are usually described as 'bolting upright' with their eyes wide open, with a look of fear and panic, and letting out a 'blood curdling scream'. These kids will usually also be sweating, breathing fast and have a rapid heart rate.
Typical night terrors last about 5 to 30 minutes and afterwards, children usually return to a regular sleep.
With you nephew shacking and having his eyes rolled back would be a warning sign to me,yet I am not sure with infant most people after having a seizer attack are overwhelming tired.
Best regards,C.L.Fowler.
