About CONNIE FOWLER Expertise MAIN QUESTION ARE CHIARI MALFORMATION ,TETHERD CORD SYNDROME WITH RELATED DISORDER.
ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus,
Experience I can help with questions on Chiari malformation and related disorders like ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus, I went four years with not getting proper help for my son with Education and Medical issues. The Chiari type I malformation is a rare, neuromuscular deformity at which most Neurosurgeons believe it is present at birth. The brain exists in a cavity surrounded by bone. The brainstem normally sits in a funnel-like cavity just above the spinal cord. The problem occurs when the posterior fossa is not developed properly. Instead of the brainstem sitting in its proper space, the brainstem is pushed downward through the skull, causing pressure on the cerebellum and spinal cord Another concerns is the normal flow of CSF through this area because the cerebellum are pushed into the opening of the base of the skull meeting the spine can cause obstruction to its natural flow. (This downward displacement of the cerebellar tonsils is called the Chiari malformation.)
Organizations The Organization that I belong to is Our Chiari kids, Keeping kids healthy, Child care network,
Education/Credentials December 2000 my son went in for brain decompression his Filum released (Tethered cord syndrome) as these are not a done deal surgery and we have years of doctor appointment and possible more surgery's, my heart and soul is in the understanding and research of this condition that the Doctor said my son was born with, as I am finding out this can be a genetic disorder as my self I have been diagnosed with Chiari and my oldest son has Scoliosis which is a sign of Chiari malformation.Because this is a rare disorder not to many people know of it or understand the disability that can come with it if left untreated, this is my goal to bring more awareness and be a support to those who have been told they too may have Chiari Malformation.
Basic child care resource, Child developement, Child Behavior, Reaching to new heights in the research of chiari Malformation.
Question Hi,
I have concerns, my son has t5678 compression fractures, l5-s1 2.5mm disc bulge. There was cord contusion in thoracic area. Son has loss. Primarily right side following s1 dermatone pattern. He has no feeling in bladder. He has had two episodes of AD. I realize AD is more commonly a symptom in injuries higher than t6, but he does get this. We have no obvious location of cord injury, but know there is one. Three docs say, yes absolutely cord injury; one says most likely in t5-7 area.
I have long suspected injury to cervical area. Yes, mris and cts were done. These were done four months after motorcycle crash.
His newest symptom is double vision, along with extreme visual changes. He gets headaches Some issues with memory.Brain mri done recently was clear.
Some of his dermatone (loss) matches cervical area.
I am wondering...what is the likelyness this is Horners?
Any suggestions?
Thank-you,
Diana
Answer Hi Diana, Thank you for your question.
Horner's syndrome is usually congentil yet can be brought on by trauma in the neck area.
Signs :
drooping upper eyelid, slight elevation of the lower lid, constricted pupil, the impression that the eye is sunk in.
I also cannot help but think it could be a Psuedo Tumor? Psuedo Tumor is a false Tumor that does not show up on MRI or CT. To test for this the DR need to do a Lumbar Puncture to see if he has high levels of CSF build up in his brain and spine.
I hope I have help. Best regards, C.L.Fowler
