About CONNIE FOWLER Expertise MAIN QUESTION ARE CHIARI MALFORMATION ,TETHERD CORD SYNDROME WITH RELATED DISORDER.
ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus,
Experience I can help with questions on Chiari malformation and related disorders like ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus, I went four years with not getting proper help for my son with Education and Medical issues. The Chiari type I malformation is a rare, neuromuscular deformity at which most Neurosurgeons believe it is present at birth. The brain exists in a cavity surrounded by bone. The brainstem normally sits in a funnel-like cavity just above the spinal cord. The problem occurs when the posterior fossa is not developed properly. Instead of the brainstem sitting in its proper space, the brainstem is pushed downward through the skull, causing pressure on the cerebellum and spinal cord Another concerns is the normal flow of CSF through this area because the cerebellum are pushed into the opening of the base of the skull meeting the spine can cause obstruction to its natural flow. (This downward displacement of the cerebellar tonsils is called the Chiari malformation.)
Organizations The Organization that I belong to is Our Chiari kids, Keeping kids healthy, Child care network,
Education/Credentials December 2000 my son went in for brain decompression his Filum released (Tethered cord syndrome) as these are not a done deal surgery and we have years of doctor appointment and possible more surgery's, my heart and soul is in the understanding and research of this condition that the Doctor said my son was born with, as I am finding out this can be a genetic disorder as my self I have been diagnosed with Chiari and my oldest son has Scoliosis which is a sign of Chiari malformation.Because this is a rare disorder not to many people know of it or understand the disability that can come with it if left untreated, this is my goal to bring more awareness and be a support to those who have been told they too may have Chiari Malformation.
Basic child care resource, Child developement, Child Behavior, Reaching to new heights in the research of chiari Malformation.
Question a young man was injured wrstling this weekend, and we just heard his has syrinxs-not sure exactly what that is .they said the fluid sacs on his spinal cord will continue to get bigger, and they are life threatening. is this all a result of the injury or is this a condition he had that was intensified by the injury. i guess because i have a son that wrestles it scares me. the boy was moving all parts of his body and wanted to get up, but they made him go to the hospital, because he originally said his neck hurt.
Answer Hi Mimi, Thank you for your question.
Syringomyelia?
sear-IN-go-my-EEL-ya) A cyst forms within the spinal cord called a syrinx, expands and elongates over time, destroying the center of the spinal cord. The spinal cord connects the brain to nerves in the extremities, if can damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs
Most likely he already had this condition, anytime you play contact sports you take a chance of injuring yourself. The percentage of those who do not get injured highly out weigh the one who do.
Best regards C.L.Fowler
