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About Connie Fowler
(Top Expert on this page)

Expertise
I can help with questions on Chiari malformation and related disorders like ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus, I went four years with not getting proper help for my son with Education and Medical issues. The Chiari type I malformation is a rare, neuromuscular deformity at which most Neurosurgeons believe it is present at birth. The brain exists in a cavity surrounded by bone. The brainstem normally sits in a funnel-like cavity just above the spinal cord. The problem occurs when the posterior fossa is not developed properly. Instead of the brainstem sitting in its proper space, the brainstem is pushed downward through the skull, causing pressure on the cerebellum and spinal cord Another concerns is the normal flow of CSF through this area because the cerebellum are pushed into the opening of the base of the skull meeting the spine can cause obstruction to its natural flow. (This downward displacement of the cerebellar tonsils is called the Chiari malformation.)

Experience
December 2000 my son went in for brain decompression his Filum released (Tethered cord syndrome) as these are not a done deal surgery and we have years of doctor appointment and possible more surgery's, my heart and soul is in the understanding and research of this condition that the Doctor said my son was born with, as I am finding out this can be a genetic disorder as my self I have been diagnosed with Chiari and my oldest son has Scoliosis which is a sign of Chiari malformation.Because this is a rare disorder not to many people know of it or understand the disability that can come with it if left untreated, this is my goal to bring more awareness and be a support to those who have been told they too may have Chiari Malformation.

Organizations
The Organization that I belong to is Our Chiari kids, Keeping kids healthy, Child care network,

Education/Credentials
Basic child care resource, Child developement, Child Behavior,
Reaching to new heights in the research of chiari Malformation. http://icanlearn.homestead.com/monkeynoseenodo.html
   

You are here:  Experts > Health/Fitness > Medical Specialists > Neurology (general)

SubjectDate AskedExpert

migraines6/4/2004Kimberly Rueffer R.N.
  Q: I am a 22 year old who has been experiencing and I quote "severe migraines," as I have been ...
  A: your symptomsa are classic of one of 2 things.1)Hemiplegic migraines, where the headaches cause the ...
aneurysm6/3/2004Kimberly Rueffer R.N.
  Q: I am writing to you as a concerned husband.My wife had a very bad headache in the middle of the ...
  A: I know all about aneurysm's. All avm's have aneurysms within them. The WORST thing you can do with ...
"Soft Neurolgical Signs"6/1/2004Connie Fowler
  Q: My son's neurologist informed me that my son has a Chiari I malformation. He is 9yo and with a few ...
  A: The surgery help with my sons small and large motor skills. Unfortunly because the doctors did not ...
spams after surgery5/4/2004Connie Fowler
  Q: I had a car accident (not my fault) on 2/25/2004. After working a week I went to the ER with spasms ...
  A: I am sorry to hear about you car accident. At times it can take an incident like that to discover ...
a constant "swimmy"head5/4/2004Connie Fowler
  Q: I have had this sensation in my head for five years now. It is worse every year. I have seen three ...
  A: I am not sure if a EEG could help but one way to find out about Chiari Malformation is a MRI. This ...
Headache in back of head4/29/2004Kimberly Rueffer R.N.
  Q: Yes, Thanks for the advice that you gave me about my headache and I am considering seeing a doctor ...
  A: Considering seeing a doctor about the headache? Make that WILL make an appointment with a doctor ...
teenage girl with ACM 2 and hydrocephalus and SV difficult to wake up4/15/2004Kimberly Rueffer R.N.
  Q: A 17-year old girl with the following history: She was born with severe hydrocephalus, slit ...
  A: Wow, she needs to be hospitalized and a team of physicians, neurosurgeon, neurologist, cardiologist ...
Amnesia4/4/2004Kenneth Burres MD
  Q: With retrograde amnesia, how is it possible to forget your own name, yet remember how to read and ...
  A: Memory losses depend on which part of the brain and associative cortices are affected. I had a ...
Trigeminal Neuralgia?3/28/2004Connie Fowler
  Q: I got a concussion about a month ago.... I landed on the back of my head. The CAT scan showed that ...
  A: This is a statement I have copied from (NINDS web page) Trigeminal neuralgia, also called tic ...
Learning Disorders3/24/2004Connie Fowler
  Q: I am doing a project for school and i was wondering if you could explain what happens to people with ...
  A: Can you please give me a little more detail about what happen to (people with learning disorders) Do ...
Twitches3/22/2004Connie Fowler
  Q: I have been diagnosed with migraines and/or cluster headaches. I was prescribed Amitryptiline and ...
  A: I do not believe migraines can cause twitches but some of the Neuromuscular side effects of ...
APRAXIA vs. ATAXIA3/10/2004Kenneth Burres MD
  Q: No, I was talking to someone who is in medical school and, after tutoring neuroscience in college, I ...
  A: Ataxia is a neurological symptom characterized by imbalance, wide-based gait, difficulty with ...
motor neuro problem2/29/2004Connie Fowler
  Q: Sir, my brother started losing strength in his legs and when i consulted doctors they asked me to go ...
  A: This could be a sign of many different things; if the medication is not working and symptoms are ...
Feeling2/24/2004Connie Fowler
  Q: I wonder, though: it sounds like MS would mostly result in a loss of balance less than a loss of ...
  A: Yes their is part of the brain that can recieve signals of touch and pain. My son has lost some of ...
Feeling2/24/2004Connie Fowler
  Q: Have you ever heard of a condition/disease/disabilty that is the cause of chronic and total loss of ...
  A: · This sound like Multiple sclerosis · MS affects 1 in 1000 people in Western countries. ...
brainstem2/17/2004Connie Fowler
  Q: is there a scientific/medical name for brainstem?
  A: I am sure there is a medical name for brainstem yet not sure what that is, most just refer this as ...
alcoholic myopathy2/11/2004Kenneth Burres MD
  Q: i am wondering if there is any treatment for alcoholic myopathy. i am 38 and suffer significant ...
  A: Alcoholic myopathy is a tough condition: 1. stop alcohol 2. correct liver dysfunction 3. get a ...
Moving hand and foot in opposite direction11/7/2003Connie Fowler
  Q: i've gone through a test by some one who specialize in psychology. first he ask me to move my right ...
  A: It is hard to tell exactly why the test was performed. Being able to accomplish the task with one ...
Spina Bifida?11/5/2003Connie Fowler
  Q: My daughter, now 32 yrs. old was born with an encephelocele on the 4th ventricular cortex and it was ...
  A: Neural tube defects (NTDs) are serious birth defects that involve incomplete development of the ...
Eye twitch10/13/2003Connie Fowler
  Q: I was trying to find out why I have been having a constant twitching in my left eyelid. It is quite ...
  A: Twitching of the eye almost always occurs in the muscles of the eyelid. Because they press on the ...
Shunts and sports9/22/2002Elaine Hale
  Q: My son is 16 yrs old and has had a shunt since he was 4 months. He was born with hydrocephalus. He ...
  A: Karen: I was told by my son's neuro when he had his shunt put in that he wwas not allowed to box or ...
interthoractic pressure and the brain9/10/2002Michael Thomas Miller, M.D.
  Q: I suffer from chronic constipation. Does the associated straining pose a threat of stroke or other ...
  A: Straining at stool can sometimes rupture an aneurysm in the brain leading to bleeding. You are at ...
Optimal Number of Plasmapheresis Treatments for acute Transverse Myelitis9/9/2002Michael Thomas Miller, M.D.
  Q: Miller. I was diagnosed with TM on June 6, 2002. I was admitted to the hospital and received 4 ...
  A: Segal, There is no universally optimum number of PLEX. Most protocol call for 6 exchanges, but this ...
balloon surgery8/14/2002Kimberly Rueffer R.N.
  Q: On July 8th I had 3 balloons put into my head for an aneurysm. I went on nimodipine for 21 days and ...
  A: sounds like they placed coils in the aneurysm from what you describe.Questions you may want to ask ...
CSF Overdrainage8/6/2002Michael Thomas Miller, M.D.
  Q: 7 months of unremitting pain due to CSF overdrainage (lumbar Infusion tests, VP Shunt and ...
  A: Pilkington, There are not enough cases that have been evaluated to really say. There is a good ...
Numb area above right knee7/28/2002Michael Thomas Miller, M.D.
  Q: When I was pregnant with my first child, born 1983, I developed an area of numbness a few inches ...
  A: When you were pregnant you compressed one of the femoral cutaneous nerves. Other than the loss of ...
Stroke Protocal7/14/2002Michael Thomas Miller, M.D.
  Q: Miller, I am writing a novel in which an eighty-seven year old man has a stroke and would like some ...
  A: Kiernan, Age and unclear time of onset would in general preclude the use of TPa. Craniectomy is ...
Muscle twitches7/13/2002Michael Thomas Miller, M.D.
  Q: A few months ago, I had a twitch in my left thumb that lasted a little over a week. I was concerned ...
  A: Muscle twitches (fasciculations) are common and benign. They are made worse with fatigue, caffeine, ...
eeg question6/22/2002Michael Thomas Miller, M.D.
  Q: Doctor: can you tell me if the eeg showes if you are prone to seizures, and if you have ever had one ...
  A: Wright, Hello again, I hope your mother is doing better. The answer to all your questions depend on ...
Could this bizarre phenomenon be neurological?6/7/2002Michael Thomas Miller, M.D.
  Q: Starting about two years ago, I have occasionally experienced an odd visual phenomenon that does not ...
  A: I can not offer you an explanation for your symptoms. I am not familiar with this complaint and I ...
ALS or something else?6/2/2002Michael Thomas Miller, M.D.
  Q: I am writing on behalf of my husband. He is 30 years old and has been experiencing fasciculations ...
  A: Elliott, Certainly your husbands symptoms are concerning and warrent immediate evaluation. You ...
Nerve pain5/31/2002Michael Thomas Miller, M.D.
  Q: I am hoping that you can offer some insight to a problem that I have been having lately. For the ...
  A: I can't address your case specifically. In general there are a number of disorders that can affect ...
facial numbness5/30/2002Michael Thomas Miller, M.D.
  Q: I have a friend who is experiencing numbness on the right side of her face. It's not motor control, ...
  A: 1) I don't think it likely that her symptoms are related to sitting infront of the air conditioner. ...
left side numbness4/24/2002Michael Thomas Miller, M.D.
  Q: I am a 25 year old female, about 5 months ago, my doctor swithched the brand of contraceptive pill ...
  A: Chapman, It is unlikely your symptoms are related to diabetes or thyroid disease. An MRI is ...
sleep/gerontology4/23/2002Michael Thomas Miller, M.D.
  Q: I have been a nurse for 20yrs. I have been working with very old veteran men for the past 6 yrs. ...
  A: Oney, This is not restricted to veterans. As people age there are several factors that cause them to ...
symptoms of my sister4/18/2002Michael Thomas Miller, M.D.
  Q: 3 weeks ago my 33 year old sister passed out for no apparent reason, since then she has not been the ...
  A: Actually, since I've never seen or spoken with either of you, I can't help you or your sister. If a ...
SPINAL CORD INJURY4/10/2002Michael Thomas Miller, M.D.
  Q: IS THERE ANY WAY YOU COULD SEND ME INFORMATION ON A SPINAL CORD INJURY CAUSED BY A ANURSYM PLEASE ...
  A: Mullinax, Aneurysms are generally treated by neurosurgeons, not neurologists. You should talk to ...
McArdles3/19/2002Michael Thomas Miller, M.D.
  Q: Muscle biopsys? What will it confirm? It has been sent to buffalo NY. My 15 yr old daughter. The ...
  A: Aust, A muscle biopsy will confirm the diagnosis of myophosphorylase deficiency (McArdles). There ...
Strange behaviour in my 12 year old3/18/2002Michael Thomas Miller, M.D.
  Q: ..(I apologise - previous email address incorrect) I really do hope you can help me. My daughter is ...
  A: Russell, As you can imagine with an issue this complex, I can't address your daughter's complaints ...
Follow up possible Encephopathic syndrome3/12/2002Michael Thomas Miller, M.D.
  Q: Doctor Miller: We had chatted about my mothers recent hospitilzation for what were flu pnemonia like ...
  A: Wright, Has your mother been seen by a neurologist while hospitalized? If so he would be in a better ...

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