Neurology (general) - Medical Specialists - Health/Fitness

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About Connie Fowler
(Top Expert on this page)

Expertise
I can help with questions on Chiari malformation and related disorders like ADHD, Hidden learning disorder, Autisms, Tethered cord syndrome, Pseudo-Tumor, Spina bifida, Syringomyelia, Hydrocephalus, I went four years with not getting proper help for my son with Education and Medical issues. The Chiari type I malformation is a rare, neuromuscular deformity at which most Neurosurgeons believe it is present at birth. The brain exists in a cavity surrounded by bone. The brainstem normally sits in a funnel-like cavity just above the spinal cord. The problem occurs when the posterior fossa is not developed properly. Instead of the brainstem sitting in its proper space, the brainstem is pushed downward through the skull, causing pressure on the cerebellum and spinal cord Another concerns is the normal flow of CSF through this area because the cerebellum are pushed into the opening of the base of the skull meeting the spine can cause obstruction to its natural flow. (This downward displacement of the cerebellar tonsils is called the Chiari malformation.)

Experience
December 2000 my son went in for brain decompression his Filum released (Tethered cord syndrome) as these are not a done deal surgery and we have years of doctor appointment and possible more surgery's, my heart and soul is in the understanding and research of this condition that the Doctor said my son was born with, as I am finding out this can be a genetic disorder as my self I have been diagnosed with Chiari and my oldest son has Scoliosis which is a sign of Chiari malformation.Because this is a rare disorder not to many people know of it or understand the disability that can come with it if left untreated, this is my goal to bring more awareness and be a support to those who have been told they too may have Chiari Malformation.

Organizations
The Organization that I belong to is Our Chiari kids, Keeping kids healthy, Child care network,

Education/Credentials
Basic child care resource, Child developement, Child Behavior,
Reaching to new heights in the research of chiari Malformation. http://icanlearn.homestead.com/monkeynoseenodo.html

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Subject	Date Asked	Expert

childs surgery for chairi 1	1/6/2008	CONNIE FOWLER
Q: My son is scheduled to have decompression surgery on 1/28/08. We have known about his chiari for 1 ... A: I am so glad you emailed me with this concern. My son and I both had this surgery with opening the ...
Nerve Damage - treatments?	12/31/2007	CONNIE FOWLER
Q: Dr. Fowler - Once diagnosed with nerve damage - post-partum (most likely due to the epidural), what ... A: It sound as if you have a condition called (Neuropathy) is a condition in which sensory changes ...
MRI findings	12/27/2007	CONNIE FOWLER
Q: ... I am a 28 yr old female with symptoms representing MS.....shock type sensations (arms.legs and ... A: It sound to me you could have a case of ( Syringomyelia ) Fluid being trap in your spinal canal. ...
dizziness, short of breath	12/18/2007	CONNIE FOWLER
Q: My problem mainly occurs at night shortly after I go to bed, where I start feeling dizzy and ... A: First let me apologize for not getting back to you sooner as my computer was down and I was unable ...
Right side facial numbness	11/30/2006	Vicharn Lipisuwanchote
Q: Let's just say any answer would be helpful and would put me in the right direction I need to go. But ... A: Your symptoms really suggest a tumor , if the imaging was taken for a long time,it maybe useful to ...
Central Pain	11/25/2006	Vicharn Lipisuwanchote
Q: My 20 year old daughter's life is being destroyed by chronic Central Pain. It is ripping the heart ... A: since the pathophysiology is not known much,and the pathology seems to be diffuse.so no specific ...
chiari 1 with brain lesions on MRI	11/22/2006	Vicharn Lipisuwanchote
Q: My sister had an MRI done and a few things came up. We were hoping that you might be able to explain ... A: the lesions in the brain need more evaluation about what is the disease.the brain which involved ...
lightheadedness	11/22/2006	Vicharn Lipisuwanchote
Q: I have had daily lightheadedness going on 3 years now. I have had many cardiology tests, but to no ... A: there are many causes for lightheadedness.so if you have any other symptoms you should tell the doc ...
Confused	11/21/2006	Vicharn Lipisuwanchote
Q: I am a undergrad student who is quite confused. I want to take pre-med, and have a backup major: A ... A: "i think" neurology is quite complicated compared to biology. and biology is required in more ...
muscle twitching and numbness	11/17/2006	Vicharn Lipisuwanchote
Q: I'M A 32 YR FEMALE. STARTED WITH NEURO SYMPTOMS JULY 2006 WITH NUMBNESS IN LEFT PINKIE. UPON LEFT ... A: 1.you're not having muscle dz or nerve entrapment( but in july 2006 you might have entrapment, it ...
Chiari & Tethered cord	11/16/2006	Vicharn Lipisuwanchote
Q: i was diagnosed with tethered cord and they said that my tonsils in the back of my head are 5mm ... A: tethered cord syndrome should be corrected as soon as detected , or at least before have permanent ...
Ventriculomegally, Agenesis Corpus Callosum, Atrophy Cerebellum	11/16/2006	Vicharn Lipisuwanchote
Q: Good Evening. Our little baby (Emma) had been delivered successfully on Oct 23. At the 5th month of ... A: generally patients like your baby not die from brain pathology. but as it needs treatment, maybe ...
multiple Brain Lesions w/abnormal romberg test	11/15/2006	Vicharn Lipisuwanchote
Q: I am a 40yr old female with high blood pressure controlled with lysinopril, and was a smoker for 20 ... A: it's important to recognize if the lesions are related to your symptoms, like if you have lesion in ...
Facial numbness	11/12/2006	Vicharn Lipisuwanchote
Q: Everyday at various times I have a numbness around my mouth and left jaw area. It even feels as ... A: your symptoms maybe explained by isolated trigeminal nerve palsy.intermittent course tells that ...
pinched nerve in neck with neuralgia in left arm	11/8/2006	Vicharn Lipisuwanchote
Q: I originally twisted my neck badly almost 4 months ago.It got so bad that It made me go to hospital ... A: it's good that's going eased. actually, no one can tell the duration but it usually stands no longer ...
Chiari and ADHD	5/21/2006	Connie Fowler
Q: Do you know if there is a link between ADHD and Chiari? My son has been diagnosed with a Chiari ... A: Oh yes ADHD has everything to do with Chiari Malformation. I have 3 boys all whom have ADHD OR ADD,2 ...
tethered cord syndrome	7/4/2005	Connie Fowler
Q: I am a 35 year old female and have had back problems my whole life. AS a child, I was told that my ... A: Good Morning. I am sorry to say that doctors did not catch this problem when you were a young child. ...
Mystery illness going on for years!	6/1/2005	Connie Fowler
Q: I am a mother of 2 children, both with their own set of problems. I am at my wits end with what is ... A: First I must commend you as I know all to well how heart wrenching it is to see your child in pain ...
nerve symptoms?	4/23/2005	Connie Fowler
Q: I'm experiencing muscle twitch, every day in various areas. I'm definitely underweight (92 lbs. at ... A: Abnormal body movements, such as muscle twitching, may or may not be present. By problems with the ...
Impediment of CSF Flow in Arachnoid Cyst Area (post-fenestration)	4/13/2005	Connie Fowler
Q: My 14-year-old son was diagnosed 2 years ago with a very large arachnoid cyst in the posterior ... A: My personal opinion is yes this impediment or obstruction in the CSF flow can cause Ryan's ...
Epilepsy	4/5/2005	Connie Fowler
Q: I suffered from epilepsy for 10 years and was on tegretol, i have since been off the meds for 9 ... A: The issue of epilepsy and alcohol consumption can be very confusing. . In small to moderate amounts, ...
Chiari Malformation risks	2/23/2005	Connie Fowler
Q: I have a 9mm brain herniation that my doctor says is Chiari 1 Malformation. I was in a car accident ... A: Unless you had some brain trauma and swelling during you car accident my guess is you had or was ...
Chiari/tethered cord	1/28/2005	Connie Fowler
Q: Connie, My son was diagnosed in september with chiari malformation and had surgery in October.He ... A: Chiari and Tethered cord syndrome usually go hand in hand. This is a Link to my son surgery for ...
Coma after General Anesthesia	1/11/2005	Connie Fowler
Q: Im not sure if you can help me in this area or not, I had a minor surgery and ended up in a coma for ... A: I wish I could help you with this question. I assume the Neurologist will do all test to find out ...
Help there is something wrong with my eye!!	1/7/2005	Connie Fowler
Q: It has been about a year already that my eye has been getting smaller or closing I do not understand ... A: My best advice for you is to go beyond your family doctor and see a neurologist, explain the ...
Chiari/Scoliosis	1/3/2005	Connie Fowler
Q: I will look at how long it is...do they typically see an improvement in the scoliosis after the ... A: If they do not see Chiari on your Daughters scan then there would not be a need for a decompression ...
Chiari/Scoliosis	1/3/2005	Connie Fowler
Q: I took my 12 year old daughter to a spine specialist because she had a curve that had reached 38 ... A: That is quit an increase of a curve and does sounds like Chiari. When you see the neurologist after ...
Back	12/17/2004	Connie Fowler
Q: I had a thoracic discectomy on October 22, 2003. I was fine upto about May of this year and the pain ... A: Have you seen your MRI and with your back concern what kind of job do you have that may or may not ...
HI! I am doing a research...	8/21/2004	Connie Fowler
Q: I am doing a research paper on my career opportunities. I want to be a neurologist. I want to know ... A: Wow! I have been to may different Neurologist/Neurosurgeons in the past 5 years. I have seen some ...
Dream	8/21/2004	Connie Fowler
Q: How do we dream? A: Sigmund Freud (1865-1939) revolutionized the study of dreams with his work "The Interpretation Of ...
Chiari type 1 malformation	8/11/2004	Connie Fowler
Q: My step son (age 5) who lives with us has chiari type 1 malformation and also has epilepsy. He does ... A: Good afternoon Myriah. Some people taking Keppra can get serious reactions including: · sleepiness ...
Snapping Scapula and how it effects nerves?	7/28/2004	Connie Fowler
Q: I was recently diagnosed with snapping scapula from a orthopedic doctor. Prior to his diagnoses I ... A: Ashley, Snapping scapula syndrome is fairly rare. When it happens, the soft tissues between the ...
cerebral angiogram	6/20/2004	Kimberly Rueffer R.N.
Q: ! Kimberly, I hope all is going well for you and yours. You answered a question recently for myself ... A: A cerebral angiogram is as safe as claimed. I have had 9 of them. Doctors by law HAVE to tell you ...
Spinal cord injury	6/8/2004	Connie Fowler
Q: I do have a couple of easy in comparision questions. I and injured myself at work. And due to the ... A: I have to say any doctor who would address your condition as disastrous if you did not have the ...
aneurysm	6/8/2004	Kimberly Rueffer R.N.
Q: ! Kimberly, You responded to a question I asked on June 4 concerning an 3 millimeter size brain ... A: I dont know of any way to really check a neurosurgeon's credentials, HOWEVER, all the neurosurgeons ...
Spinal cord injury	6/7/2004	Connie Fowler
Q: About 2 years ago i had a disc at c5 - c6 severly compress my spinal cord and nerve root. I waited ... A: I have to say I am real sorry surgery did not relieve your symptoms. Were you told the surgery would ...
migraines	6/6/2004	Kimberly Rueffer R.N.
Q: I live in Danville, PA which is about 60 miles north of Harrisburg or about three hours away from ... A: I have good days and bad days. The headaches are constant, on a scale of 1 to 10 with 10 being the ...
re:AVM	6/5/2004	Kimberly Rueffer R.N.
Q: I have been writing I am 23 with problems that may be from AVM. You asked where I live because you ... A: Not sure where Danaville is but 2 major cities with avm specialists are Unniversity of Pittsburgh, ...
migraines	6/5/2004	Kimberly Rueffer R.N.
Q: Sorry to write you so many times. This is the first time I have come accross someone who seems to ... A: Dont worry about writing to me, I enjoy helping people with this.A small avm is more likely to ...
migraines	6/5/2004	Kimberly Rueffer R.N.
Q: Re: Thanks for your answer. I did have an MRI although that was about a year ago. They said it was ... A: A vascular malformation could be an AVM or Arterial Venous Malformation, that's what I had.My ...

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