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April wrote at 2007-05-31 15:54:51
Just started experiencing this same thing.  It started at about 8-9 mos of age.My son.  I first notice the head drop in the bathtub,he did it about 4 or 5 time. dropped to the front, and thought it was just a mucsle thing.  Then I noticed it more and more.  Made an appointment with peds. and happen to capture it 4 times on a video.  The Doc looked at it. and also wants to do an EEG. thinks it may be a mild seizre, atonic behavior, also did blood work to check the calcium levels. and we will be in for the neurologist next.  so we continue to monitor him and see if it gets better, it is not getting worse.  it's just seconds or limpness. it will be interesting to see how he does with the walking in the next couple of months. but perfectly Normal baby other then the periodical Head drop/ limpness.  Looking foward to more testing and answers.  COuld also just be a developmental thing. that he grows out of.  Interesting to see.  Good lukc with your answers.


SARA wrote at 2007-06-30 21:42:03
My 10 month old just started to do exactly the same thing. I came online to google this and this page is the only thing I found that was relasted. It is scary!!


odbd wrote at 2007-07-04 09:38:23
My son just turned 6 months and he started doing this head dropping thing just a couple of days ago. Googled for it and came to this page. I hope this is some developmental phase and goes away soon. I hope the problem went off with age for the other members of the group.  


odbd wrote at 2007-07-04 09:38:27
My son just turned 6 months and he started doing this head dropping thing just a couple of days ago. Googled for it and came to this page. I hope this is some developmental phase and goes away soon. I hope the problem went off with age for the other members of the group.  


junebug wrote at 2007-07-10 04:54:01
My son just started to do this in the last month. We thought it just a neck/muscle thing at first.I only went online to find out about it today, and what I have found terrifies me! Infantile Spasms (IS) is what comes up the most. I would never have thought this a seizure either, but from reading more it definitely seems likely that it is.



For all parents out there reading this and having observed these symptoms in their children, I recommend immediately visiting a pediatrician or neurologist. An EEG is necessary to rule worst case scenarios out, or to get a quick jump on treatment for whatever the cause.


gramdma wrote at 2009-08-10 17:19:40
My grandson does this , seems to be when he is very tired. He was 3 months premature & had been on a lot of meds including reglan.


menewme wrote at 2009-09-02 03:01:39
research atonic seizures and watch for any other movements of her extremities. eegs do not show seizure activity if she is not having an event, so if it reads normal it does not rule out siezure activity. watch for tics such as eyes blinking a lot or more pronounced or head twitching and extremity movements as well and let your doctor know.


lovnhi4evr wrote at 2010-07-06 06:56:58
My 9 month old daughter has just started doing the same thing.  I'm wondering if this is something hereditary, as I have had petite-mal and grand-mal seizures my entire life, but never heard of atonic seizures.  


ANTONIS wrote at 2011-04-05 07:00:20
This message is for Stacey who wrote the following:

Question

This may be long, but I need help.  My daughter is now 10 months old.  I had a perfect pregnancy and a healthy baby.  She is at home with me, so not in a day care where she has been a very healthy baby.  While eating lunch at a restaurant in January ( 7 months old), she starting having a head drop to the left.  It was scary.



PLEASE , PLEASE WE NEED INFORMATIO ON THIS, MY 10 MONTH SON DOES EXACTLY THE SAME.



ANTONIS  


Susie wrote at 2012-01-01 14:16:11
My daughter has similar symptoms. I have 4 girls and this is my last baby.  My others are all  healthy and I had them all natural full term.  This one I had at 40 and had gestational diabetes and was also prescribed lovenox for prventive blood clots.   When she turned 1 we expected her to walk and she did not.  She was still crawling and dragging her rt leg.  After 1.5 yrs I took her to a few MD's and they all looked her over with no problems and just said because she's my baby I was spoiling her and give her aggressive therapy. I took her to the main Md of the practice and he finally agreed to see her and was surprised by what he saw that was dismissed.   He ordered eeg and mri.  The mri was negative but the eeg is abnormal.  One Neurologist said she is giving her the umbrella of cerebral palsy and she has ataxia.  SHe presribed a seizure med but after we researched all the side effects we did not give it to her.  After a month she started to have head drops one after another.  After much persistant we convinced Dr to admit her and after hooking up to another eeg they said she had a hurricane going on in her brain.  It's hard to get Drs to listen and you have to be loud and persistant at times.  They convinced us to take the prescribed meds with her eeg.  The results were not to their satisfactoroso they tried kepra and after 4 days they send us home with that med.  She was doing okay and even took a few steps (she is only 2 at the time and does not walk or talk).  I found another Neuro and he prescribed depekene on top of kepra and she was doing okay and even pushing around her shopping cart but then one day she was not walking again and having head drops again with jerky movements when she sleeps.  She has been admitted in hospital 2 more times with eeg's and they still have no diagnose.  The genetics Dr so far has only up with a double twin chromosome which they say is rare.  I can't find any research on it.  She still can't walk or talk and is now 3.  We are frustrated and they just want to introduce more meds and I see her going down hill and almost vegetated state.  SHe has all normal features and still giggles and smiles though.  I was windering how yours was doing and do you know of any solutions or suggestions for mine?


concerned mom wrote at 2012-02-20 12:00:00
Have the EEG done.  Our 19mo old daughter began this at about 15mo.  We thought she was being silly then realized that it was abnormal.  We just got back home from a 36 hour hospital stay.  She had a video EEG and MRI done.  Thankfully MRI is clear, but EEG shows significant seizure activity. Some we see outward reactions (drop head/absence seizure) and many we do not.  She is now on medication and we are hoping it will subside and eventually she will grow out of it. The greatest danger for her right now is hitting her head on something when her head drops.


Mama Jane wrote at 2012-10-25 04:33:43
My daughter sadly has had seizures since birth due to an intrauterine stroke. I am not telling you i do or dont think these episodes are seizures, but can tell you they do manifest in MANY different ways. My daughter has had many different kinds over the year. I agree with the first reply...i would go with neurologist idea of doing EEG...it isn't invasive and would clarify whether or not it could be seizures. I hope for yours and your daughters sake they are not...best of luck to you....


Mama Jane wrote at 2012-10-25 04:35:57
Sorry, me again. You mentioned you have attempted to get it on video...keep trying to do that. When my daughters seizure type changed the last time i was able to record two episodes of questionable seizures and it was verified with her last eeg done shortly before that...they were seizures.  


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Dr. Frederick Blount

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Pediatrician, retired. I trained at Childrens Hospital of Philadelphia some years ago and I did private practice here in Winston-Salem for 30 years until I went full time to the Wake Forest Medical School until retirement.

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