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About Tina
(Top Expert on this page)

Expertise
I can help on all aspects of the condition, treatment, support. I cannot diagnose but only give my personal expertise, and refer you to others who can help. I am in touch with doctors, therapists, and professionals on a regular basis. I can help with disability issues pertaining to lymphedema or cancer.

Experience
13 year cancer survivor, Lymphland Support group owner, Owner of Lymphland.com website, writer for Butterfly Gazette, forums coordinator for ELymphNotes online lymphedema magazine, patient and advocate for 10 years, Yahoo answers advanced level answerer.

Organizations
Lymphland Support Group Owner, Lymphland.com website owner, National Lymphedema Network member, American Society of Lymphology member, ELymphNotes forums coordinator and writer, member of many online support groups. Rainbow Bridge Pet Loss Grief Counselor, former bank loan rep, pharmacy ass't

Education/Credentials
college graduate, volunteer in pet loss grief counselling.

   

You are here:  Experts > Health/Fitness > Rare/Orphan Diseases > Rare Diseases

SubjectDate AskedExpert

superficial thrombopheblitias6/14/2008Tina
  Q: My name is Jessica and I am 25 years old. I have been suffering with calf pain for almost 7 years ...
  A: has your doctor referred you to anyone else or just tried to treat things himself? You should be ...
Autoimmune problems6/13/2008Tina
  Q: I am 61 years old, have been treated for autoimmune problems, with chemo and plasma exchange (no ...
  A: Kenneth, what type of autoimmune problems were you diagnosed with? Is it of a leukemia type, or MS? ...
chronic jaw pain6/7/2008Tina
  Q: Since having a wisdom tooth extracted (in 2003), I have been in constant pain; is excercebated when ...
  A: I apologize that I didn't reply sooner, family emergency. Leg discrepancy can cause all sorts of ...
multiple lipomas5/21/2008Tina
  Q: Do you know of any successful therapies (holistic or otherwise)for multiple lipomas? Thank you so ...
  A: The standard treatment for lipomas is either steriod shots, liposuction or surgery to remove the ...
generalized lipodystrophy5/15/2008Tina
  Q: My brother suffers from generalized lipodystrophy since childhood. Since it is a rare disorder I ...
  A: Tell me a little more about his health, what other problems and conditions does he have? What tests ...
staph4/6/2008Tina
  Q: My daughter had a complete hysterectomy last July and contracted staph in the hospital. Since that ...
  A: Greetings Pam, the best bet is for her to see the infectious disease specialist. They need to do ...
Acute Transverse Myelitis3/24/2008Tina
  Q: Even getting the diagnosis was an unbeliveable experience, but basically, he had an intrathecal pain ...
  A: Your husband has had a rough time, it's very hard not only physically but emotionally for him as ...
lymph edema3/16/2008Tina
  Q: I have had lymph edema for a few years. I had total knee replacement surgery 01-30-08. I did fine ...
  A: I have known many others with lymphedema that have had knee replacements. It's mixed results. Some ...
head,facial, eye and ear pain3/8/2008Tina
  Q: Here's my issue -- I have been in terrible eye,ear and facial pain for over 6 years now. I can't ...
  A: I'm from NY too, it was a very traumatic experience to see the planes hitting the towers and the end ...
Finger Injury3/6/2008Tina
  Q: Three months (Dec 07) ago I poked my finger with a knife that was soaking with silverware patients ...
  A: I can give you my opinion but I can't diagnose. What probably happened is a soft tissue infection, ...
uncontroled mucslesmovement3/6/2008Tina
  Q: I'm Patricia, 34 years old. Since I was 16 my muscles in my body started to move (bouncing up and ...
  A: I'm a little concerned, what tests have they done to rule out other problems ? Restless leg ...
two diseases I am trying to learn about3/5/2008Tina
  Q: Have you heard of a disease where a cucumber seed gets stuck in someone's body ? Do you have any ...
  A: it could be that seeds of many different kinds do stick in the body, mostly in pockets in the colon ...
TESTICULAR PAIN2/27/2008Tina
  Q: I was am suffering from left testicular pain sometimes in right from last 1 month i went to ...
  A: shehzad, When the pain first started, what was happening in your life? What do you remember doing ...
TESTICULAR PAIN2/25/2008Tina
  Q: I was am suffering from left testicular pain sometimes in right from last 1 month i went to ...
  A: First off, have you had any injuries? vasectomy? are you active in sports? I'm just tossing ...
guinea worms2/22/2008Tina
  Q: can the guinea worm kill you in any way?
  A: Greetings, Sean Death from the worm is very unlikely, unless there is some other complication such ...
fist disease1/30/2008Tina
  Q: My 3 1/2 year old daughter was just diagnosed with fist disease. She has the red cheeks, but no ...
  A: Greetings Kelly, Fifth disease is caused by parvovirus B19, it's a virus and behaves similar to a ...
rare diseases should hmos pay1/23/2008Tina
  Q: I am writing a paper on the health care system of the United States, and to my understanding HMOs do ...
  A: Greetings Paul, I believe that insurance companies should pay for experimental testing because of ...
sick nephew with a multitude of symptoms without diagnoses1/20/2008Miranda Szopinska, M.D.
  Q: My nephew is 3 yrs old now, but his health issues began at infancy. At less than 6 months, he had ...
  A: He might have an autoimmune condition. These symptoms are not ALL linked, but his propensity toward ...
fibromyalgia1/10/2008Miranda Szopinska, M.D.
  Q: I have been diagnosed with fibromyalgia and rosacea, but my doctor is doing tests to rule other ...
  A: Considering the information you have given me, I would suggest Lupus. Lupus causes a rash, joint ...
wots going on?...its stil going on!1/10/2008Tina
  Q: i wrote to u in august regarding my absent periods,breast milk etc..wel,im stil non the wiser but ...
  A: I would go to your g.p. and tell him/her that you want a referral to an endocrinologist because they ...
wots going on?...its stil going on!1/10/2008Tina
  Q: i wrote to u in august regarding my absent periods,breast milk etc..wel,im stil non the wiser but ...
  A: I think you need to find an endocrinologist who will take a closer look at your pituitary gland, you ...
death by hanging by the leg1/10/2008Miranda Szopinska, M.D.
  Q: Sorry for the weird question, but my son was asking how long it would take to die if someone were ...
  A: This is sort of out of my area of expertise, but I think I can answer it anyway. Hanging someone ...
ears1/10/2008Tina
  Q: I was born with 2 different shaped ears, or thats what my parents told me. No one else is like this ...
  A: As long as your hearing is fine I wouldn't worry too much about it, everyone has differences in one ...
symptoms of what disease/condition1/3/2008Tina
  Q: I am 38 year old male. Extremely fatigued, swollen underarm lymph node, itchy rash, notice I'm ...
  A: Greetings Jan, what kinds of tests have you had? Healing very slowly is a sign of anemia, so that ...
Hemachromatosis12/28/2007Miranda Szopinska, M.D.
  Q: I am a 36 yo male of European descent and I was diagnosed with hereditary hemachromatosis last year. ...
  A: Because of the magnetic properties of iron, it is very possible that the pain you felt was because ...
Rabia en gatos12/27/2007Miranda Szopinska, M.D.
  Q: Saludos! Tengo varias preguntas respecto a rabia en gatos debido a unos incidentes recientes. ...
  A: Saludos! Creo que es mejor que examinen la cabeza del gato, para estar seguro que no tiene la rabia. ...
Rabia en gatos12/26/2007Miranda Szopinska, M.D.
  Q: Saludos! Tengo varias preguntas respecto a rabia en gatos debido a unos incidentes recientes. ...
  A: Salutos. Lo siento, pero no pienso que puedo contestar a todas sus preguntas; algunas de ellas ...
Curious if this could be something12/23/2007Miranda Szopinska, M.D.
  Q: a week ago my brother had breif flu like symptoms including vomiting once, but said he since feels ...
  A: Andrea, Despite your contact with animal urine, it's probably not Leptospirosis, as Leptospirosis ...
Legs fused together?12/20/2007Miranda Szopinska, M.D.
  Q: In my biology class, we were talking about genetic abnormalities, and my teacher showed us a ...
  A: This sounds like Sirenomelia, or Mermaid Syndrome. It's very rare, and only found in 1 of every ...
Auto-immune disease of father12/13/2007Tina
  Q: My father is a very ill man. In the early 90's he started having severe pains in his forearms and ...
  A: Oh my, Sean, it almost sounds like he has Osteomyelitis, has anyone ever mentioned that term to ...
Auto-immune disease of father12/12/2007Tina
  Q: My father is a very ill man. In the early 90's he started having severe pains in his forearms and ...
  A: Just another question was he ever checked for Scleroderma? I would try getting him into a very ...
mucus and cough with eating anything12/12/2007Tina
  Q: i am 31 female, have chronic lyme disease, Postural Orthostatic Hypotension, and low blood volume ...
  A: First I would have to ask how you got diagnosed to begin with for the hypotension? Was it from ...
mucus and cough with eating anything12/9/2007Tina
  Q: i am 31 female, have chronic lyme disease, Postural Orthostatic Hypotension, and low blood volume ...
  A: Have you ever seen an endocrinologist? They deal with various endocrine system problems and might ...
Auto-immune disease of father12/9/2007Tina
  Q: My father is a very ill man. In the early 90's he started having severe pains in his forearms and ...
  A: I'm sorry your father is having such a rough time. The puss part was a red flag to me and I am ...
mucus and cough with eating anything12/7/2007Tina
  Q: i am 31 female, have chronic lyme disease, Postural Orthostatic Hypotension, and low blood volume ...
  A: My first question would be have you been tested for any stomach issues such as acid reflux? And ...
What's going on?11/25/2007Tina
  Q: Tina, For the past seven years I've had what I think is sleep paralysis. Upon waking up I feel ...
  A: Greetings, Greg. It sounds like you might have a few things going on. First off the sleep ...
Anxiety or Thyroid?11/19/2007Tina
  Q: About 1 month ago I was sittin at home watching tv when suddenly a strong strange feeling went ...
  A: Greetings Amy, Common symptoms include anxiety, insomnia, rapid weight loss, diarrhea, high heart ...
Swollen Handa11/12/2007Tina
  Q: My husband had a lung collapse about 2 yrs ago and ever since his hands swell up. We have gone to ...
  A: Does your husband take any pills on a daily basis other than vitamins? What tests have they done? ...
prader-willi syndrome and nose bleeds10/12/2007Tina
  Q: My 7 year old nephew has prader-willi syndrome. His nose started bleeding last night. Today, the ...
  A: Greetings Ava To my knowledge, it's not a symptom of the prader-willi syndrome. Does he have any ...
addisons10/9/2007Tina
  Q: what would you reccomend?..she is already taking cortisone and hydrocortisone. She sees her Dr in ...
  A: Greetings Aida, sorry to be slow to respond, got a new computer and was without internet for 2 days. ...

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