AboutTina Expertise I can help on all aspects of the condition, treatment, support. I cannot diagnose but only give my personal expertise, and refer you to others who can help. I am in touch with doctors, therapists, and professionals on a regular basis. I can help with disability issues pertaining to lymphedema or cancer.
Experience 13 year cancer survivor, Lymphland Support group owner, Owner of Lymphland.com website, writer for Butterfly Gazette, forums coordinator for ELymphNotes online lymphedema magazine, patient and advocate for 10 years, Yahoo answers advanced level answerer.
Organizations Lymphland Support Group Owner, Lymphland.com website owner, National Lymphedema Network member, American Society of Lymphology member, ELymphNotes forums coordinator and writer, member of many online support groups. Rainbow Bridge Pet Loss Grief Counselor, former bank loan rep, pharmacy ass't
Education/Credentials college graduate, volunteer in pet loss grief counselling.
Expert: Tina Date: 3/6/2008 Subject: uncontroled mucslesmovement
Question Hi, I'm Patricia, 34 years old. Since I was 16 my muscles in my body started to move (bouncing up and down or trembling)I had it like everybody has it sometimes under my eye (especially when you are tired)but this contraction was there for a year. After a while it was all over my body, upper going from the right to the left, thum for 4 days in a row up and down, tip of my nose, etc. I went to the doctor; never heard of it, then to the hospital; they said it's a new kind of disease called restless legs syndrome. Nothing to do about it. Take some yoga/sport, etc. Now I have for 5 years that when I squeeze in my left arm that the muscle in my right leg makes contractions, this happens also when I make a cirkel with my head or even when I twist my left hand. In the back of my body a muscle seems to give a sort of electric shock true my body, the muscle that is next to my spine on the right side underneath my shoulder. It looks like if it's holding the contraction and than the muscle let's loose.
I smoke but I quit smoking for a while and no changes at all. I am not a drinker just when I go out once a week. I bought Sifrol but this medication is to heavy and I am at an age that I would like to get pregnant, so that's not a good combination.
I really go crazy at the moment. Don't no what to do anymore.
I am from Holland but I live in Costa Rica since 8 months. What they (masseuses, yogainstructors) advise me here is to take magnesium and potassium tablets.
Maybe you have heard something about this weird thing of and in the body? Muchos gracias, thank you
Answer Hi Patricia, I'm a little concerned, what tests have they done to rule out other problems ? Restless leg syndrome can be in other parts of the body but there are other conditions that have similiar symptoms, just want to be sure you had tests for other things.
Caffeine enhances RLS, so if you drink any, you might want to consider stopping it.
There are medications you can take to help such as calcium-channel blockers (used to treat high blood pressure and heart conditions), Reglan (metoclopramide),antinausea medications, allery and cold medications, tranquilizers, and the antiseizure medication, phenytoin.
Sometimes a vitamin deficiency can cause RLS symptoms such as low iron, that's why the tests are important.
The RLS organization has a booklet you can call for to read more about it 1-877-463-6757, also it helps to join support groups as they keep up to the minute about treatment options.
Basically what happens with RLS is that you have a neurological condition in which your brain makes a strong desire to move the legs or other parts of the body when sitting or laying down.
If you call the number above, they can also help you find a doctor that might help you more. The RLS also has an online community that you might want to join as well: https://www.rls.org/NETCOMMUNITY/SSLPage.aspx?&pid=500&srcid=514
