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About Tina
(Top Expert on this page)

Expertise
I can help on all aspects of the condition, treatment, support. I cannot diagnose but only give my personal expertise, and refer you to others who can help. I am in touch with doctors, therapists, and professionals on a regular basis. I can help with disability issues pertaining to lymphedema or cancer.

Experience
13 year cancer survivor, Lymphland Support group owner, Owner of Lymphland.com website, writer for Butterfly Gazette, forums coordinator for ELymphNotes online lymphedema magazine, patient and advocate for 10 years, Yahoo answers advanced level answerer.

Organizations
Lymphland Support Group Owner, Lymphland.com website owner, National Lymphedema Network member, American Society of Lymphology member, ELymphNotes forums coordinator and writer, member of many online support groups. Rainbow Bridge Pet Loss Grief Counselor, former bank loan rep, pharmacy ass't

Education/Credentials
college graduate, volunteer in pet loss grief counselling.

   

You are here:  Experts > Health/Fitness > Rare/Orphan Diseases > Rare Diseases

SubjectDate AskedExpert

excess mucus production9/19/2008Tina
  Q: what is the cause of excessive sinus drainage and the mucus builds up and lodges in the throat which ...
  A: I have been asked this question alot lately about excess mucus. There are other answers you can ...
didnt know where to put this.9/15/2008Tina
  Q: i wasn't sure where to ask but i need some help getting information on Tourettes syndrome for a ...
  A: It is really hard for people with tourette's. Your friend may feel self conscious, not want to ...
disease type9/12/2008Tina
  Q: What is the likelihood that there are disease causing microbes out there that we have never seen ...
  A: I'm sure there are alot of disease causing microbes out there that have never been diagnosed. Take ...
didnt know where to put this.9/11/2008Tina
  Q: i wasn't sure where to ask but i need some help getting information on Tourettes syndrome for a ...
  A: Tourettes syndrome is also known as Tourette, Tourette Spectrum Disorder, and Tourette Disorder. ...
severe edema after knee replacement8/17/2008Tina
  Q: About the four day after my surgery, I began to have severe edema in my calf, ankle, and foot in the ...
  A: First off have you had any swelling prior to the knee replacement? Also, is there any other members ...
Rickets8/17/2008Tina
  Q: I am a 16 years old male that has genetic Rickets from my mom My Right arm is curved with little ...
  A: The bumps could be from small fractures that cause scar tissue, cysts, osteoid bumps, many causes. ...
noonan syndrome8/14/2008Tina
  Q: I was wondering if there is any connection to noonan syndrome and a parent's exposure to agent ...
  A: A parent could carry the gene but not be affected but again with alot of conditions and illnesses, ...
Rickets8/11/2008Tina
  Q: I am a 16 years old male that has genetic Rickets from my mom My Right arm is curved with little ...
  A: Not all people with rickets are short. X-linked hypophosphatemia is another name for hereditary ...
Rare and undiagnosed condition8/7/2008Tina
  Q: I am writing about my mother who has suffered from a degenerative and yet undiagnosed condition for ...
  A: The best place to find a specialist for lewy body disease would be the Mayo clinic. I'm going to ...
Human de-worming7/21/2008Tina
  Q: Got three cats. Found out one of them has worms, and it isn't the one cat who is allowed to go ...
  A: I would take one of the cats to the vet and have the type of worm diagnosed, you need to treat all ...
Daughter not breathing7/20/2008Tina
  Q: My 9-yr-old daughter has a condition where she just stops breathing altogether (she can't exhale). ...
  A: It sounds like an apnea type problem, maybe trachea caudal displacement and it's possible that she ...
rabies?7/19/2008Tina
  Q: I live in a suburb of Illinois. The other day, I was walking out of my office about 3:00 in the ...
  A: How big do you think the item was that hit you, did it feel hard like a baseball or more soft? Bats ...
Right side pain7/18/2008Tina
  Q: I'm hoping you can help shed some light on my problem. I have had pain on my right side since ...
  A: I'm sorry you are having pain and it sure is frustrating to not know where it's coming from or what ...
A question for you7/17/2008Tina
  Q: A few years ago, I started not feeling right and went to see my doctor. After all kinds of tests ...
  A: There's a few different kinds of metabolic disorders, there's Addison's Disease, Fabry's, ...
rabies fear7/15/2008Tina
  Q: Greetings from Turkey.Let me explain my biggest fear.About one month ago i saw a little pretty cat ...
  A: First no your wife cannot get the virus from you and I highly doubt you even have it nor will you ...
Myelofibrosis7/14/2008Tina
  Q: My mum was diagnosed with myelofibrosis. her symptoms were very low red blood cell count, easily out ...
  A: I'm sorry your mom is not feeling well. There is no known cure for myelofibrosis, but there are ...
Hyperinsulinism/Hyperammonemia GDH7/13/2008Tina
  Q: Our daughter became the 20th child with this diagnosis, in the nation. There is no cure for her. I ...
  A: First I would say the injury is at least temporarily disabling, so you would be eligible for ...
persistant testicular pain7/12/2008Tina
  Q: i have been having persistent left testicle pain for approx. 10 months. In a 1-10 scale of pain it ...
  A: It sounds like it could be some type of noninflammatory chronic pelvic pain syndrome, maybe ...
superficial thrombopheblitias6/14/2008Tina
  Q: My name is Jessica and I am 25 years old. I have been suffering with calf pain for almost 7 years ...
  A: has your doctor referred you to anyone else or just tried to treat things himself? You should be ...
Autoimmune problems6/13/2008Tina
  Q: I am 61 years old, have been treated for autoimmune problems, with chemo and plasma exchange (no ...
  A: Kenneth, what type of autoimmune problems were you diagnosed with? Is it of a leukemia type, or MS? ...
chronic jaw pain6/7/2008Tina
  Q: Since having a wisdom tooth extracted (in 2003), I have been in constant pain; is excercebated when ...
  A: I apologize that I didn't reply sooner, family emergency. Leg discrepancy can cause all sorts of ...
multiple lipomas5/21/2008Tina
  Q: Do you know of any successful therapies (holistic or otherwise)for multiple lipomas? Thank you so ...
  A: The standard treatment for lipomas is either steriod shots, liposuction or surgery to remove the ...
generalized lipodystrophy5/15/2008Tina
  Q: My brother suffers from generalized lipodystrophy since childhood. Since it is a rare disorder I ...
  A: Tell me a little more about his health, what other problems and conditions does he have? What tests ...
staph4/6/2008Tina
  Q: My daughter had a complete hysterectomy last July and contracted staph in the hospital. Since that ...
  A: Greetings Pam, the best bet is for her to see the infectious disease specialist. They need to do ...
Acute Transverse Myelitis3/24/2008Tina
  Q: Even getting the diagnosis was an unbeliveable experience, but basically, he had an intrathecal pain ...
  A: Your husband has had a rough time, it's very hard not only physically but emotionally for him as ...
lymph edema3/16/2008Tina
  Q: I have had lymph edema for a few years. I had total knee replacement surgery 01-30-08. I did fine ...
  A: I have known many others with lymphedema that have had knee replacements. It's mixed results. Some ...
head,facial, eye and ear pain3/8/2008Tina
  Q: Here's my issue -- I have been in terrible eye,ear and facial pain for over 6 years now. I can't ...
  A: I'm from NY too, it was a very traumatic experience to see the planes hitting the towers and the end ...
Finger Injury3/6/2008Tina
  Q: Three months (Dec 07) ago I poked my finger with a knife that was soaking with silverware patients ...
  A: I can give you my opinion but I can't diagnose. What probably happened is a soft tissue infection, ...
uncontroled mucslesmovement3/6/2008Tina
  Q: I'm Patricia, 34 years old. Since I was 16 my muscles in my body started to move (bouncing up and ...
  A: I'm a little concerned, what tests have they done to rule out other problems ? Restless leg ...
two diseases I am trying to learn about3/5/2008Tina
  Q: Have you heard of a disease where a cucumber seed gets stuck in someone's body ? Do you have any ...
  A: it could be that seeds of many different kinds do stick in the body, mostly in pockets in the colon ...
TESTICULAR PAIN2/27/2008Tina
  Q: I was am suffering from left testicular pain sometimes in right from last 1 month i went to ...
  A: shehzad, When the pain first started, what was happening in your life? What do you remember doing ...
TESTICULAR PAIN2/25/2008Tina
  Q: I was am suffering from left testicular pain sometimes in right from last 1 month i went to ...
  A: First off, have you had any injuries? vasectomy? are you active in sports? I'm just tossing ...
guinea worms2/22/2008Tina
  Q: can the guinea worm kill you in any way?
  A: Greetings, Sean Death from the worm is very unlikely, unless there is some other complication such ...
fist disease1/30/2008Tina
  Q: My 3 1/2 year old daughter was just diagnosed with fist disease. She has the red cheeks, but no ...
  A: Greetings Kelly, Fifth disease is caused by parvovirus B19, it's a virus and behaves similar to a ...
rare diseases should hmos pay1/23/2008Tina
  Q: I am writing a paper on the health care system of the United States, and to my understanding HMOs do ...
  A: Greetings Paul, I believe that insurance companies should pay for experimental testing because of ...
sick nephew with a multitude of symptoms without diagnoses1/20/2008Miranda Szopinska, M.D.
  Q: My nephew is 3 yrs old now, but his health issues began at infancy. At less than 6 months, he had ...
  A: He might have an autoimmune condition. These symptoms are not ALL linked, but his propensity toward ...
fibromyalgia1/10/2008Miranda Szopinska, M.D.
  Q: I have been diagnosed with fibromyalgia and rosacea, but my doctor is doing tests to rule other ...
  A: Considering the information you have given me, I would suggest Lupus. Lupus causes a rash, joint ...
wots going on?...its stil going on!1/10/2008Tina
  Q: i wrote to u in august regarding my absent periods,breast milk etc..wel,im stil non the wiser but ...
  A: I would go to your g.p. and tell him/her that you want a referral to an endocrinologist because they ...
wots going on?...its stil going on!1/10/2008Tina
  Q: i wrote to u in august regarding my absent periods,breast milk etc..wel,im stil non the wiser but ...
  A: I think you need to find an endocrinologist who will take a closer look at your pituitary gland, you ...
death by hanging by the leg1/10/2008Miranda Szopinska, M.D.
  Q: Sorry for the weird question, but my son was asking how long it would take to die if someone were ...
  A: This is sort of out of my area of expertise, but I think I can answer it anyway. Hanging someone ...

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