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About Tina
(Top Expert on this page)

Expertise
I can help on all aspects of the condition, treatment, support. I cannot diagnose but only give my personal expertise, and refer you to others who can help. I am in touch with doctors, therapists, and professionals on a regular basis. I can help with disability issues pertaining to lymphedema or cancer.

Experience
13 year cancer survivor, Lymphland Support group owner, Owner of Lymphland.com website, writer for Butterfly Gazette, forums coordinator for ELymphNotes online lymphedema magazine, patient and advocate for 10 years, Yahoo answers advanced level answerer.

Organizations
Lymphland Support Group Owner, Lymphland.com website owner, National Lymphedema Network member, American Society of Lymphology member, ELymphNotes forums coordinator and writer, member of many online support groups. Rainbow Bridge Pet Loss Grief Counselor, former bank loan rep, pharmacy ass't

Education/Credentials
college graduate, volunteer in pet loss grief counselling.

   

You are here:  Experts > Health/Fitness > Rare/Orphan Diseases > Rare Diseases

SubjectDate AskedExpert

suffer from Rabies fear7/2/2007Tina
  Q: We here (China ) many persons suffer from Rabies fear from certain reasons. Many persons were ...
  A: Over in the United States many places have made it a law that pets such as dogs or cats must be ...
webbing in the throat6/30/2007Tina
  Q: what causes web like matter to form in the throat which must be removed by laser surgery. symptoms ...
  A: I need a little more information, Noonan Syndrome is characterized by neck webbing, sunken chest ...
transverse myelitis6/29/2007Tina
  Q: ) i have been dx with transverse myelitis since march 2007 i was in a car accident in feb 2007 ...
  A: Myelin is compromised of a fatty substance that protects nerve endings by surrounding them. When ...
transverse myelitis6/26/2007Tina
  Q: ) i have been dx with transverse myelitis since march 2007 i was in a car accident in feb 2007 ...
  A: I'm glad the spinal tap came out good, I did see they did one but wasn't sure what they were looking ...
transverse myelitis6/26/2007Tina
  Q: ) i have been dx with transverse myelitis since march 2007 i was in a car accident in feb 2007 ...
  A: GREETINGS, First off, did they test any of your spinal fluid? The trauma could have caused this to ...
Guinea Worm Disease6/10/2007Tina
  Q: I have some questions regarding Guinea worm disease, and hope to find some answers here. Some web ...
  A: first off I hope you aren't infected with the disease. It is also called Dracunculiasis, and mainly ...
APS/Addison's Disease6/6/2007Tina
  Q: I was diagnosed with antiphospholipid syndrome (Hughes' syndrome). During my third miscarriage, my ...
  A: Are you seeing an endocrinologist? Do you have primary APS or secondary, and have you been tested ...
Protein B (SP-B) Deficiency5/30/2007Tina
  Q: Can you tell me if there is currently any treatment options, for this condition? I can only assume a ...
  A: Before I answer further, give me a little more history. Does your brother have any allergies, heart ...
what do i have5/28/2007Tina
  Q: I have been told it's brachial plexus by one doctor, But other doctors just blow by it and say there ...
  A: you can also try Catholic Charities, they do counselling and it's a sliding scale, free most times ...
what do i have5/28/2007Tina
  Q: I have been told it's brachial plexus by one doctor, But other doctors just blow by it and say there ...
  A: Hmm never heard of a scale before but I'd advise you to go to a counselor, psychologist because of ...
what do i have5/28/2007Tina
  Q: I have been told it's brachial plexus by one doctor, But other doctors just blow by it and say there ...
  A: It is possible they are both damaged and it just took some time for the true extent of both areas to ...
what do i have5/28/2007Tina
  Q: I have been told it's brachial plexus by one doctor, But other doctors just blow by it and say there ...
  A: this is out of my field, probably a neurology expert could answer better than me. I cannot ...
Harlequin babies5/12/2007Tina
  Q: conditions/features, treatments....through your knowledge, websites, other organizations, or ...
  A: It's a very rare disorder with an incidence of 1 in 300.000 births dating back to the 1750's. These ...
fibrous dysplasia5/8/2007Tina
  Q: My daughter has fibrous dysplasia in the sphenoid sinus and skull base. Recently there is some soft ...
  A: This is outside my field to tell you all the complications because I'm not a surgeon, but I will ...
what could happen if you are hanged up side down5/2/2007Tina
  Q: My son was hanged up side down by some students and left alone . I was the risk heath wisw that he ...
  A: I'm really sorry that happened to him. It could have put him at risk because of the circulation ...
what could happen if you are hanged up side down5/2/2007Tina
  Q: My son was hanged up side down by some students and left alone . I was the risk heath wisw that he ...
  A: That would depend on how long he was hung upside down, how he was hung like by his feet with tight ...
Illness or stress? Confused4/7/2007Tina
  Q: I know tht you can't diagnose, in fact nor can my own doctors,that is the confusing thing. I had a ...
  A: I think you have a couple things going on, the hormonal imbalances are still occuring from having ...
pricking3/21/2007Tina
  Q: Good night, doctor I don't know If I'd chosen the right specialist, but you can tell me if I didn't. ...
  A: when you say blood tests, have they just done a general one or one that shows specifics for liver ...
pricking3/20/2007Tina
  Q: Good night, doctor I don't know If I'd chosen the right specialist, but you can tell me if I didn't. ...
  A: First off I'm not a doctor so i can't diagnose but I can give my opinion based on experience and ...
a childhood disease?3/16/2007Tina
  Q: when she was 10 days old in 1981 my mother noticed a lump in back of her calf. she was taken to ...
  A: Yes, they can become tangled and wind up in a ball like shape. The superficial leg veins can become ...
a childhood disease?3/16/2007Tina
  Q: when she was 10 days old in 1981 my mother noticed a lump in back of her calf. she was taken to ...
  A: this is a little outside my area, I deal with lymphatic problems not veins but I'll try to give an ...
arm sleeve3/6/2007Tina
  Q: I am constantly tugging to keep up the compression arm sleeve. I have the extra long one, yet it is ...
  A: That is a problem alot of us have and Juzo has come out with a Juzo roll on adhesive that is kind to ...
myelodysplastic syndroms1/30/2007Tina
  Q: For 18 months wife's platelets dropping from 25. Hit 9 a week ago.On prednisone back up to 30 but ...
  A: I'm sorry your wife isn't feeling very good. This is outside my expertise but last night I spent ...
fifths disease12/20/2006Tina
  Q: is it also known as infantago?, i don't know if that is the correct spelling or not... sorry.
  A: This is a outside my area of expertise but fifths disease is also called erythema infectiosum. It's ...
Ill's (ill's) disease12/10/2006Tina
  Q: I have a friend that claims to have a rare disease he calls "Ill's disease". He says it is similar ...
  A: My specialty is lymphatic and lymphedema disorders, but I do have some knowledge of hepatitis. ...
scary and baffling illnes10/19/2006Sam Beckett
  Q: Beckett, My husband started having pain in his groin area about three and one half months ago. ...
  A: If it's ok, I'd like to ask a few questions. 1. What was the original pain in the groin like? Was ...
DECLINING HEALTH WITH NORMAL LAB RESULTS10/18/2006Sam Beckett
  Q: I've always had excellent health till about april 1998.I was 16 when I started to develop a feeling ...
  A: If it's ok with you, I'd like to take a little more time to consider the information you have given ...
mcardle disease9/30/2006Sam Beckett
  Q: can i be medical boarded out of the active duty military if i have mcardle disease?
  A: I'm afraid I can't answer this question - my knowledge of military medical boards is not sufficient ...
Unknown cause?9/11/2006Sam Beckett
  Q: Today I had the enlarged lymph nodes removed/biobsy, i should get the results in about ten days. I ...
  A: I'm very sorry for not getting back to you sooner - briefly, I was involved in a car accident and ...
Unknown cause?9/7/2006Sam Beckett
  Q: Sir, in response: 1. Have you experienced increased thirst or increased urination? No pain in ...
  A: I've got a couple of ideas about what might be the problem here, but remember that I cannot diagnose ...
Unknown cause?9/2/2006Sam Beckett
  Q: Sir ant help woul db a god sent, I am a 24yr old male. I am in excellent athletic shape and have no ...
  A: I'm sorry to hear about all of the problems you're having, I was hoping you could give me a little ...
Hanging Upside Down8/22/2006Sam Beckett
  Q: I am writing a story about a man who hangs upside down for a long period of time. There are several ...
  A: This is a very interesting question! Not the usual sort of thing I come across at all - your story ...
nephritis & crooked teeth?8/22/2006Sam Beckett
  Q: I was reading a book about a girl who had nephritis when she was young, in about 1910. The doctor ...
  A: Your question is very interesting. Nephritis is quite an outdated term used to describe a condition ...
West Nile Virus8/7/2006Sam Beckett
  Q: Sir, I know his symptoms were and I quote "terrible headaches, stiff neck and many others." Stiff ...
  A: From what you've told me I suspect your nephew may be suffering from what is known as postmeningitis ...
regarding machado-joseph disease5/14/2003albert de vries
  Q: I am a writer who is looking for information. A character in a story I am writing is afflicted with ...
  A: The carracter you choose is to young to be affected in his mobility and speech. because the ...
spiercontracties1/15/2003albert de vries
  Q: Afgaande op uw naam ga ik er even van uit dat u nederlandstalig bent. Hier mijn vraag: sinds ruim ...
  A: Ik weet er iets van het is een ongecontroleerde en onwillige beweging van de spieren ook wel genoemd ...
fifths disease5/24/2001not available
  Q: Do you know of this disease? Appears as an under the skin rash...flushed cheeks in children...What ...
  A: Erythemia infectiosum ( fifth disease ) rash starts on the cheeks and spreads to the arms, legs and ...
sickle cell5/5/2001not available
  Q: Could you tell me the difference between sickle cell carrier, "sickle cell trait", and one who ...
  A: Sickle cell trait is a milder form of the disease with red blood cells containing normal and ...
alternative treatment for recurrent abdominal adhesions4/30/2001not available
  Q: I have severe recurrent abdominal adhesions. Is there any treatment for this without surgery? I ...
  A: I am sorry that I have to tell you that no, there is no "cure" for abdominal adhesions. They come ...
info on this myastheniagravis4/14/2001not available
  Q: yes ineed some info on this diease i dont know if this is the right spelling myastheniagravis ...
  A: I sent you a reply in another form, but I can tell that you are quite worried about this disease. ...

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