AboutAmelia Yaussy Expertise I can answer questions about systemic scleroderma and live and internet resources to help you cope with this disease. I have personal experince with scleroderma, osteoarthritis, fibromyalgia, and Sjogren's Syndrome.
Experience I am a systemic scleroderma patient (12 years) and have been active in support online for nearly the same amount of time. I proposed the Usenet newsgroup alt.support.scleroderma and own the website ihavescleroderma.com.
Organizations I am a board member and volunteer for the Scleroderma Foundation, Ohio Chapter.
Publications Arthritis Today, Sept 1997, "A guide to the internet"
Education/Credentials International Webmasters Association, Web Technologies Certification
Awards and Honors Volunteer of the Year, Scleroderma Foundation, 2004; Advocacy Appreciation Award, Scleroderma Foundation, 2005
Question I just received a copy of my 24 hour urine test and it shows my creatine kinse, total, serum level at 270. I have scleroderma (limited), and have a lot of muscle pain recently. My doctor originally had this test run to check my calcium levels, but I saw this and don't know what it means. I still have 2 weeks for my visit but I'm reading things that are scaring me so I would like to find out what this could mean. My aldolase was 4.5 which is normal.
Answer CK/CPK is checked in scleroderma when there's a complaint of muscle weakness and could indicate muscle inflammation. If you haven't reported the recent extra muscle pain to your doc, make sure you do so that s/he has a full picture when assessing your results.
