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I can answer questions about systemic scleroderma and live and internet resources to help you cope with this disease. I have personal experience with scleroderma, osteoarthritis, fibromyalgia, and Sjogren's Syndrome.
I am a systemic scleroderma patient (20 years) and have been active in support online for nearly the same amount of time. I proposed the Usenet newsgroup alt.support.scleroderma and own the website ihavescleroderma.com.
I am a volunteer for the Scleroderma Foundation, Ohio Chapter.
Arthritis Today, Sept 1997, "A guide to the internet" (Amelia Yaussy)
International Webmasters Association, Web Technologies Certification
Awards and Honors
Volunteer of the Year, Scleroderma Foundation, 2004; Advocacy Appreciation Award, Scleroderma Foundation, 2005