AboutAmelia Yaussy Expertise I can answer questions about systemic scleroderma and live and internet resources to help you cope with this disease. I have personal experince with scleroderma, osteoarthritis, fibromyalgia, and Sjogren's Syndrome.
Experience I am a systemic scleroderma patient (12 years) and have been active in support online for nearly the same amount of time. I proposed the Usenet newsgroup alt.support.scleroderma and own the website ihavescleroderma.com.
Organizations I am a board member and volunteer for the Scleroderma Foundation, Ohio Chapter.
Publications Arthritis Today, Sept 1997, "A guide to the internet"
Education/Credentials International Webmasters Association, Web Technologies Certification
Awards and Honors Volunteer of the Year, Scleroderma Foundation, 2004; Advocacy Appreciation Award, Scleroderma Foundation, 2005
Expert: Amelia Yaussy Date: 7/11/2007 Subject: elevated CPK level, not sure which
Question As part of an in depth physical at the Mayo Clinic to determine the cause of
my year+ exhaustion, my CPK level came back out of range: 280, 305. Is
this a cause for concern? I don't know which kind of CPK level was tested. I
was a healthy, exercising person (although with controlled Hashimoto's for 13
+ years,) until this "crash set in last year. There is no easily identifiable
reason for this test result. I've been advised to wait a month and retest.
Comments? Thanks in advance, Julia
Answer Sounds like the retest is a good idea, since elevated CPK levels can occur in a lot of conditions. If you're still doing exercise, call and ask your doc how long in advance to stop exercising before the test. This can also be a cause of elevated CPK.
