AboutAmelia Yaussy Expertise I can answer questions about systemic scleroderma and live and internet resources to help you cope with this disease. I have personal experince with scleroderma, osteoarthritis, fibromyalgia, and Sjogren's Syndrome.
Experience I am a systemic scleroderma patient (12 years) and have been active in support online for nearly the same amount of time. I proposed the Usenet newsgroup alt.support.scleroderma and own the website ihavescleroderma.com.
Organizations I am a board member and volunteer for the Scleroderma Foundation, Ohio Chapter.
Publications Arthritis Today, Sept 1997, "A guide to the internet"
Education/Credentials International Webmasters Association, Web Technologies Certification
Awards and Honors Volunteer of the Year, Scleroderma Foundation, 2004; Advocacy Appreciation Award, Scleroderma Foundation, 2005
Question Is there a specific name for the sort of joint pain that seems ot move around from night to night (days seem to be OK). I'm sure I have heard a name but cannot recall what it is. Tonight, for instance, my knee is throbbing..tomoroo it might be my shoulder> It seems to strike in the evening and it seems to be in a different place each time more or less. And quite painful..
Thank you
Bob
Answer I'm so sorry you're in pain. The only pain I've experienced that moved around is pain from fibromyalgia. One night it can be my elbows and the next night the knees, etc. If your pain is being caused by fibromyalgia, it's a particularly diffcult pain to treat, so work closely with your doctor to find something that gives you relief.
