I am a medical professional (don't want to say what i do) but have an extensive medical background. I have had penis pain just below the head, upper right side for around 2 years. It feels like a burning sensation. Definitely feels like it's topical but it may be internal. Nobody can see a skin problem except for me - a slight possible irritation about the size of a nickel. To me it looks like the skin might have stretched too much - most dr's think I'm crazy. They say "that skin is supposed to stretch" In the beginning i was unable to walk without constant pain ( 8 out of 10). I have been to 3 urologists, 3 dermatologists, 1 therapist and my primary physician. All tests come back negative - including prostate exam and herpes. I even had a cystoscope, since i also have a history of kidney stones. I have taken Cipro for possible prostatitis, Diflucan for possible fungal infection, Valtrex for possible viral infection, applied lotrisone cream for possible fungal infection, applied antibiotic ointments, taken anti-inflammatories for pain, tried moisturizers, changing detergents ,changing soaps and using no soap at all. I am 50 yrs old, single and in good health - had to stop doing cardio workouts due to pain. I do a very small amount of exercise compared to what i once did. One urologist referred me to a pain specialist - Dr. tried gabapentin first ( had horrible side effects), then lyrica , then effexor...To this day the pain (almost 2 years) still exists but is milder or i have learned to deal with it better - not sure. I can masturbate, but usually have moderate pain during and following. I have had sex but it's painful during and after - even with sufficient lubricant. I suffer from chronic insomnia due to pain and worrying. All my friends sense something is wrong - i'm not comfortable discussing this with them. I have allowed this to totally change my life - was outgoing, enjoyed traveling and just enjoyed life. Now i am miserable and just want to get rid of this pain. I am currently taking just pain meds and low dose effexor. I am very sensitive to meds and don't want to take anything - especially since nothing seems to work. Any positive help would totally change my life. Thank You
You present a complex problem. Cystoscopy would identify strictures and urethral lesions while the dermatologists are likely to spot a skin lesion no matter how minor. You have had substantial evaluations with no positive findings.
Two additional thoughts occur to me. One is to consider a skin biopsy. If something is found, then at least there is a start at a diagnosis. The other is a penile ultrasound and/or MRI. If the skin is not the cause and neither is the urethra, then it's reasonable to suspect something inside such as Peyronie's. A soft tissue study might identify such pathology.
Finally, consider a consultation at a tertiary care university center like Mayo that often see complex or complicated cases like yours. Good luck.