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Urology/Kallman Syndrome
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Question
I have been diagnosed with AIS, Partial Androgen Insensitivity Syndrome also known as Hypogonadism due to Testosterone receptor failure. On HRT since 1998 with more or less results I find it very hard to find proper care from local urologists or andocrinologists. They are not familiar with the desease and show nothing but contempt. Do you know someone who could help? This condition is very hard to deal with as a man and it feels that options are running out...
I'm sorry, but I'm unaware of any specific experts in this type of syndrome. Treatment is relatively straightforward as we typically use androgen replacement therapy.
You are likely to get more help with endocrinology than urology. Try a specialist at a tertiary care medical school university center.
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Answers by Expert:
Stephen W. Leslie, MD
Expertise
Questions concerning erectile dysfunction, kidney stones and prostate disorders including prostate cancer. I have a special interest in kidney stone disease prevention.
Experience
Full time practicing urologist with 30 years experience. Associate Professor of Surgery and Chief of Urology at Creighton University Medical Center. Editor in Chief of eMedicine Urology internet textbook. Author of only NIH approved book written for patients by a urologist on the subject of kidney stones "The Kidney Stones Handbook". Inventor of the "Parachute" and "Escape" kidney stone baskets and the "Calculus" stone prevention analysis computer program.
Organizations
American Urological Association, Ohio State Medical Association, Sexual Medicine Society
Publications
Men's Health, Journal of Urology, Urology, Healthwatch Magazine, Emergency Medicine Monthly, eMedicine, "The Kidney Stones Handbook", and numerous articles in various newspapers. He is also the editor of the Urology Board Review by McGraw-Hill used by urologists to study for their Board Certification Examinations.
Education/Credentials
Graduate of New York Medical College with residencies completed at Metropolitan Hospital New York, Albany Medical Center and University of Wisconsin-Madison.
Awards and Honors
Thirlby Award of the American Urological Association. Rated as one the country's Best Urologists by the Independent Consumer's Research Institute
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