Sexually Transmitted Diseases/HSV-2 chronic fatigue
Kay wrote at 2007-06-13 02:09:21
I am a 53 year old female, recently diagnosed with HSV2. I have observed similar symptoms as the 24 year old male with complaints of severe fatigue. I also suffer from headaches, low grade fever, and a rash in the genital area but no blisters. I have also noticed swollen, sore lymph glands but rather than the groin area the ones that bother me are the ones behind my ears.
I too have been tested for other STDs including HIV, all results being negative. I have just experienced my 3rd outbreak, the first being 12/06 and am beginning to recognize headaches and fatigue as the first sign. I feel like I can deal with all the other symptoms but the fatigue is quite debilitating. I have found however if I take large doses of odorless garlic it seems to alleviate the length and severity of my symptoms.
John wrote at 2007-07-15 03:53:05
Update. It's been over 4 months and the fatigue is no better, no worse. Constant muscle heaviness and a feeling of malaise, fever, and greater fatigue when I exercise. I have not had any recurrent outbreaks of skin rash so I am thinking that this condition is caused by a change to my immune or nervous system triggered by the virus and not the virus itself. Why is there nothing about this on the internet? I just started acyclovir treatment to rule out active viral infection as the cause. If this doesn't work I don't think there's anything else to do.
Judy H wrote at 2009-03-16 05:03:19
I am glad I came across this website, as I was searching for why I feel so fatigued. I am a 57 year old female. I mowed the lawn this morning finding that I am so exausted after doing this. This is not the first time I have experienced this. I also feel some symptoms of past herpes a boyfriend "handed over to me," after a "bonding" trip with his son to Thailand.
After reading the article about the stiff neck I to just fobbed it off as I have had a few spills in my life. I have just recalled my brother (I never met) died from meningites at a young age so maybe it is in the genes.
Karen wrote at 2010-08-15 02:07:47
I was diagnosed with genetal herpes at age 24. I am now 50. In my later years fatigue has been my most reliable symptom that I am about to have an outbreak. Usually 1 to 2 days prior to the outbreak I am so tired I can hardly drag myself out of bed and through my day. I am normally an energetic individual. It does sound like this symptom is being overlooked. Hope this helps.
olinlowes wrote at 2010-09-12 05:27:55
I had almost the EXACT same symptoms as the gentlemen noted above during my primary outbreak. The only difference was that I was later diagnosed with both HSV 1 AND HSV 2 and the nodes in my armpits (axillary area) were swollen and have remained swollen every since the primary outbreak in December of 2008.
My neck has remained stiff every since the primary outbreak. My doctor tested me for syphilis, gonorrhea and HIV after I was tested for HSV and all were negative.
elena wrote at 2011-03-09 07:39:09
I can't believe I finally found a discussion about the possible connection between HSV-2 and (in my case) Chronic Fatigue Syndrome! 15 years ago, I got sick over the course of a few days, originally, with something that was almost like a stroke. I had also had a very minor whiplash and some personal issues occure about a month before this time, so I never knew if it was a structural or viral issue. I went into the ER and doctors put me in the MS category for three years, until that was ruled out, and I was put in the Chronic Fatigue Syndrome/Fibromyalgia category.
I don't know if I had any herpes symptoms back then, but about eight years back, I began to have HSV-2 symptoms and was also diagnosed with that. My herpes outbreaks get so severe, that the meningitis aspect has had me in the ER for such severe migraines (along with fever, vomiting, etc.). I am allergic to the antivirals, so can't take them! (Allergic to most meds.) I have been trying lysine again, with allergy reactions, but a little bit of suppression, maybe.
I cannot fight off the herpes for whatever reason (the "chronic fatigue"?, general low immunity?)... and today my herpes symptoms are my WORST symptoms (I believe I actually get some minor brain swelling, confusion, vision issues etc.). I have had terrible neck issues for the 15 years, but since my x-rays showed cervical disc herniation and slight spinal stenosis, I always just chalked the pain up to that. Though the pain becomes awful during an outbreak. I almost had spinal fusion surgery due to all the issues with that, but have been afraid. The doctors actually said that the herniation I have might not even cause pain in others. SO!
I would love to talk with John (all these years later) and all of you, because I truly believe that their IS a connection! I used to dance and work full time, and I've now been on disability for 10 years! Maybe we could start a support group?
Would love to hear back and hear follow ups! Sorry this was so lengthy.
Lostsoul wrote at 2011-10-02 18:23:05
I also have developed fatigue, brain fog, major joint pain on the left side of my body following a new infection with hsv2. I hope this does not continue as chronic fatigue. My symptoms are getting worse and it had been 2 months since the initial infection.
Tired One wrote at 2012-09-07 19:50:17
I was initially diagnosed after my 1st child was 9 mos old. I hv had infrequent and frequent episodes over the last 25 plus years. I remember when I originally investigated symptoms no mention was made about fatigue.... It is nice to know I am not alone. Horrific fatigue is by far my worst symptom...I should be so lucky to have a loss of appetite! I want to sleep all the time and believe this has morphed into a chronic fatigue...which does not help my weight or my energy levels during work and the exercise I need to lose weight. I keep thinking I m just lazy...but I would give the world to find a way to get the energy I lack.....
Another Voice wrote at 2014-06-07 17:30:02
I wanted to add to this conversation and offer some working solutions I've found for why I've been so tired. I'm a guy in my mid-20s, good shape, social, happy healthy guy. I was misdiagnosed as not having HSV2 for about 2 years before I had a big outbreak (maybe three blisters and a rash, relative to a lot of people it was pretty minor). I felt a little sick, just general flu-symptoms and went to a doctor and got diagnosed on site and then with blood work for HSV2. I was in shock since for two years I had been told to my face it's not HSV2. This sent me into a pretty desponded state and I will say I was a little depressed for 2 months. Once I finally got over the diagnosed psychologically and I began sleeping normally i thought I'd feel fine. Unfortunately, this did not happen and it's been the hardest part. Constantly tired, muscle and joint aches, leaving work to go home and immediately go to sleep, horrible brain fog on nights without 10+ hours of sleep, etc. After having doctors running blood work for everything from Lupus to HIV to Crohn's disease, I was told I'm most likely depressed or I might have CFS or Fibro.
Not wanting to go on a popular anti-depressant in order to rule out depression (due all the horrible side effects) I did some research and decided to try SAM-E (you can buy it at a local store, though I recommend the Jarrow brand online). I take 400mg a day and feel vastly better including less muscle and joint pain (I was very athletic and played a lot of sports and got osteoathritis in my knees). If anyone is looking for something new to try I recommend trying SAM-E
Also, get the rest your body is telling you! Sleep helps my prodrome symptoms which for some reason have been constant for months now which is really rough. I'm trying ways to boost my immune system, and am going to try Red Marine Algae next week in hopes eventually this will all stop and I can beat this CFS and get back to sleeping 6 hours a night. Hope this gives people ideas of what options are out there!